Hi all. My name is Will. Here is my story...
I'm 27 and I have had Crohn's for 14 years.
Almost died at 13 due to doctors in town being unable to diagnose me. My parents at the end of their rope with doctors unable to help tried me on a Celiac diet and that kept me alive long enough to get a referral out of town to a competent GI for an almost immediate diagnosis.
Asacol kept me in check for most of high school, then up to pentasa and then my first taste of prednisone, beudesonide, flagyl.
At that point I was second year university and facing my first resection. So now I have 6" less small bowel and luckily with imuran I was able to maintain remission for 6 years and a few education path changes.
With all that I quit school this past December, started a new career in January, bought my first house with the love of my life, and about to propose....
Go figure the perfect time for the Crohn's to come back. I have now been out of remission for the past 3 months. Evidently things aren't too bad as my GI has few words for me. I had to request him to be a little more aggressive for medication as he wanted to resume me on 100 mg of imuran, cipro and flagyl and see how things played out. So fortunately he listened and also prescribed 40 mg prednisone tapering over 8 weeks. Week 3 of prednisone seems to be the magic week as this week has given me the most consecutive days without issues. I'm at 5 days and counting of feeling "normal" weak but "normal". Still a few weeks away from a colonoscopy to see just how bad things really are up there...
What I have found with this flare up is that I am way out of touch with everything that has happened and been learned about Crohn's in the last 6 years.
I feel lucky to have found this community as well as the wealth of new information out there on the 'net. I look forward to getting back up to speed and back on track to managing this disease that I took for granted the last few years.
I'm 27 and I have had Crohn's for 14 years.
Almost died at 13 due to doctors in town being unable to diagnose me. My parents at the end of their rope with doctors unable to help tried me on a Celiac diet and that kept me alive long enough to get a referral out of town to a competent GI for an almost immediate diagnosis.
Asacol kept me in check for most of high school, then up to pentasa and then my first taste of prednisone, beudesonide, flagyl.
At that point I was second year university and facing my first resection. So now I have 6" less small bowel and luckily with imuran I was able to maintain remission for 6 years and a few education path changes.
With all that I quit school this past December, started a new career in January, bought my first house with the love of my life, and about to propose....
Go figure the perfect time for the Crohn's to come back. I have now been out of remission for the past 3 months. Evidently things aren't too bad as my GI has few words for me. I had to request him to be a little more aggressive for medication as he wanted to resume me on 100 mg of imuran, cipro and flagyl and see how things played out. So fortunately he listened and also prescribed 40 mg prednisone tapering over 8 weeks. Week 3 of prednisone seems to be the magic week as this week has given me the most consecutive days without issues. I'm at 5 days and counting of feeling "normal" weak but "normal". Still a few weeks away from a colonoscopy to see just how bad things really are up there...
What I have found with this flare up is that I am way out of touch with everything that has happened and been learned about Crohn's in the last 6 years.
I feel lucky to have found this community as well as the wealth of new information out there on the 'net. I look forward to getting back up to speed and back on track to managing this disease that I took for granted the last few years.
