New to this but need diet advice

Crohn's Disease Forum

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Joined
Oct 10, 2011
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new to this but need diet advice

Hello everyone,
I have been looking through this forum and thought I should join, incase I can possibly help or need help.

I am 41 years old from the UK, i was diagnosed with Crohn's disease when I was 20. After being told i was anorexic by the doctors because they automatically thought all young girls who were thin and unwell were all wrongly diagnosed with eating disorders. The hospital i was first taken too was making me eat my breakfast, complan drink at late morning, lunch, complan late afternoon, dinner then complan early evening. i was constantly sick and in pain. I was transferred to Hope hospital in Salford Manchester where i spent the next 12 weeks trying to put on weight to be strong enough for an operation. By the time i was diagnosed my weight had gone from 10 stone 8lbs to 5 stone 6lbs, truth is i was on deaths door and my parents were saving for my funeral.

I had my operation and had to be on a TPN (total parenteral nutrition) through a drip everyday. I was also left with a stoma, which at the age of 20 was very hard to cope with psychologically. The stoma was taken away after a while.
Since then i have had another 3 operations to take different parts of my bowel away.

Im now 41, its took me years but i can actually say i have learnt to live with it. Learnt the hard way regarding diet as what to eat and what foods to avoid. My last operation was approximately 9 years ago, i do have flare ups but i act quickly with steroids for a week or two.

i dont take any medication at all to help with crohn,s disease. I have two grown up children ages 21 and 14 who im proud of but equally i know there proud of me. I have spent the last 5 years studying to be a complementary therapeutic practitioner and graduate from university next month. studying was stressful but somehow i think it kept my mind occupied from my illness.

I have struggled over the last 20 years to keep weight on as being 5ft 7inches tall doesnt suit me to be too thin. over the past 2-3 years the weight has crept on and believe it or not im looking at dieting. The hard part of dieting is knowing what to eat as i cant eat salads, fruit, red meats, nuts, etc etc. most of the foods i cant eat, diets are recommending you to eat.

Does anyone have a diet plan for crohn's disease sufferers?

Thanks Karen
 
Have you seen a GI recently? Are you in remission? Have you had a scope? Its a good idea to get a scope done every couple years to make sure your disease is kept at bay.

The diet thing is so different for each crohnie. What works for one doesnt work for another. You can check out the diet and nutrition part of the forum for more ideas.

Welcome to the forum.
 
Thanks for the reply.
No not seen my GI for approx 3 years.
I do think and feel im in remission and have been for a long time.
The GI will only investigate if im unwell, so i havnt had a scope either.
thanks for the advice i will take a look at the diet and nutrition on here later.
Karen
 
Hi Karen and welcome! Diet is so different for all of us. I struggle with it myself, especially since healthy things are not good for us Crohnies.

Have you heard of the Specific Carbohydrate Diet (SCD)? Many people with IBD claim it has done wonders. However, it is very difficult to stick with. It's a much more strick gluten free diet. But if you are diligent, I think it would be work a try.
 
I recently lost 90 pounds (while in remission-it was intentional). I basically counted calories. I ate whatever I could tolerate, but stayed around 1200 calories/day. I also exercised 30 minutes/day.
 
Thankyou Jill i will certainly do my research on the diet before committing myself because alot of dietary changes i need to make i was hoping to fit them around my 14 year old daughter too.
Hi Stephanie, 90 pounds is alot of weight to lose calorie counting...well done! I have just signed up for a ladies gym, which is 30 minutes exercise aday, but although i come off sweating i sometimes feel 30 mins isnt long enough for me to lose 42lb.
My family give me such a hard time when i mention the word "diet" as they have seen me at 5 stone 6lbs and think being bigger is healthier for me.

karen
 
I recently lost 90 pounds (while in remission-it was intentional). I basically counted calories. I ate whatever I could tolerate, but stayed around 1200 calories/day. I also exercised 30 minutes/day.

If you happen to find that 90#, would you mind giving it to me??

At my Dr visit Monday, I checked in at a whopping 144#....:yfrown:
 

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