New to this Forum- 20 Year Old w/ Crohns

[alllison_x]

Hi! My names Allison and I am 20 years old. I just got diagnosed with severe crohns disease in November of 2014. I really had no idea what the disease was up until that point. Nothing led up to me getting sick, it all hit me pretty fast. Unfortunately I had no idea what I had gotten into.

Anyways, I'm here to talk if anyone ever needs it (even though I am fairly new to the disease I still want to be of support)
I also want to get to know other teens out there going through the same thing as me!

 

[teeny5]

Welcome to the forum!

 

[DJW]

Hi and welcome.
I'm glad you decided to join. Give yourself time to adjust.

Sending you my support.

 

[SarahBear]

Welcome to the forum, Allison! Sorry you've had need to find us.

Are there any specific questions or concerns you're having? How is your treatment going so far?

 

[FrozenGirl]

Welcome Allison!
I'm also 20 diagnosed Nov 2013. How are you doing now? Flaring, remission or the horrible In-between?

 

[alllison_x]

Welcome to the forum, Allison! Sorry you've had need to find us.

Are there any specific questions or concerns you're having? How is your treatment going so far?

I don't have any questions so far..figuring everything out one day at a time. I got really sick about the month ago and ended up in the hospital. I was there for a week and given fluids through an IV the whole time. I also had a blood transfusion (two bags). Then they decided to do a colonoscopy to see if anything had changed sense I first got diagnosed and they found that there is only two inches out of my whole body not infected with crohns now (small intestine, large intestine, and colan are infected) I tried to stay away from Humira but my gastro said I needed the big guns now. so Ive just recently started that and I never thought I could ever feel "normal" again but i do!

 

[alllison_x]

Welcome Allison!
I'm also 20 diagnosed Nov 2013. How are you doing now? Flaring, remission or the horrible In-between?

Remisson! Thank god, I was so bad I couldn't even leave the house. My gastro recently put me on Humira (along with a few other things) and I have never felt better sense I got diagnosed. I am so relieved that this medication is working

 

[Ian_H]

Hey welcome!

I was diagnosed at 20 as well. Same diagnoses. The forum really helps out finding personal experiences of meds, surgeries etc that doctors can't truly give you. It helped a lot recently when I started remicade to read others experiences. Good luck and if you have any questions don't hesitate to ask!

Ian

 

[Ian_H]

Hey welcome!

I was diagnosed at 20 as well. Same diagnoses. The forum really helps out finding personal experiences of meds, surgeries etc that doctors can't truly give you. It helped a lot recently when I started remicade to read others experiences. Good luck and if you have any questions don't hesitate to ask!

Ian

 

[Mr chicken]

Glad humira is working so well for you
Ds is 11 ( dx at age 7) and has been on humira for 2.5 years now
It works wonders .

 

[pcrutchfield]

Hi, I'm Phyllis and new to the Forum. I've been truly informed by several of you
I have been on Remicade every 4 weeks for 2 years along with Azathioprine which I take 4 pills daily. I read about the rashes and itching, that is what I am experiencing now. My doctor put me on benadryl and pepcid. It didn't seem to work, so I added Seabreeze for the rash. But it seems I'm getting what looks like lesions only on my backside. Has anyone experienced this?