New to this forum, but not to Crohn's

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Joined
Jul 19, 2011
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Hi all,

I'm new to this forum, looking for comaraderie as my Crohn's keeps escalating. I'm a Crohnie who was diagnosed 5 years ago, but suffered through symptoms for at least 5 years before that. I always attributed it to stress...eventually a checkup long overdue revealed a WAAAAY low RBC. There was a history of colon cancer in my family, so docs order a colonoscopy just "as a precaution." Surprise! Crohn's disease dropped on me 5 minutes after I came out of anesthesia.

I have been blessed with an AMAZING GI doctor. At first, it was "mild." I was prescribed Pentasa, and that went OK. Then, a couple years later, I flared and ended up in the ER with a super high fever and distended abdomen. Entocort was next. Then, on my honeymoon, I doubled over in the worst pain of my life. My first partial bowel obstruction (I later learned). That was the first of 3 in the past year. My stricture is getting really severe, I'm now forming a fistula between bowel loops, and my doc has put me on Cimzia. I've got a wonderful, understanding husband, and a fantastic doctor, but at times I feel so helpless. So, I spend time peeking in on Crohn's sites. I figured it might be time to join in the conversation.
 
Your honeymoon "adventure" sounds a bit too familiar for comfort. I'm sorry you had to go through it that way. Lucky we have such wonderful husbands, eh? My hubby is my hero!

Glad you dropped in and joined. Welcome and be well!
 
HI KMM and welcome...I'm glad you joined us instead of lurking :)

That must have been terrible to have an obstruction interrupt your honeymoon!:ymad:

How do you like Cimzia? How long have you been on it now?
There are not a lot of people on here that are on it yet, but there are some of us. Well, I'm not, but my daughter is. She started this past May and, although she's had a few set backs since, it seems to be doing wonders for her now and we're hoping she can stay with it for a very long time.

Have a look around! You will find some wonderful people here.

best wishes,
~T~
 
Hi and welcome! I am glad you decided to join! It really helps to speak to others going through the same things.

How is Cimzia working for you? I sure hope it's helping you to improve!
 

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