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[Mini-mighty2011]

Hello to everyone
I have just joined this site and am looking forward to speaking to people who understands all about these types id diseases. I was diagnosed on the 21st of September 2011 with severe Crohn's disease and it has gone down hill since then,I am only now waiting to have my first surgery.i have had to be referred to 3 different hospitals as the first one messed up my treatment and the 2nd one couldn't help me anymore. I have had lots of treatments from asacol to infliximab. I am currently taking tramadol,paracetamol,methotrexate,gabapentin,buscopan,mabevarine,citalopram,iron tablets,anti histamines (just been informed I have an allergic reaction to somethings..no idea what) and I think that's it..my husband has to sort them for me as I forget what I am taking. I was also just told that I have ulcerative colitis in my large bowel and crohns in my small bowel,my eyes and possibly my bladder..which I am being tested for in December. I am 30 years old and would just love to hear other people's opinions on how to cope with all if this,I know there are people who are much worse off and I feel terrible for them but I can try to be strong for so long n then just cave when I don't expect it. My main fear is that one of my 2 daughters might end up having this life changing illness and that would be absolutely terrible. Anyway,sorry for going on,just needed to vent abit I think. I look forward to any future conversations. Best wishes to all x x

 

[DJW]

Hi and welcome.

I can't post links on my handheld device but I recently read the chance of children getting IBD is about 10%. I'd suggest checking out Crohn's and colitis foundation of America. Ccfa.com. They have lots of great info.

Sending you my support.

 

[fuzzy butterfly]

Hi welcome but sorry u are here if u know what i mean . Hope you can get things sorted asap. As for your girls im sure there is a blood test that can be done to check if they may have or develope crohn's. It may be useful to see, as if that was the case they could keep an eye on them n hopefuly try n prevent it getting a good hold b4 any major damage was done. Best wishes

 

[Mini-mighty2011]

Thankyou very much for your replies,I'll keep that all in mind and I'll look into it. Thankyou for replying too..means a lot to talk to people who have or understand what this is like. Best wishes to all x x

 

[fuzzy butterfly]

You are welcome mini mighty.The folks on here are happy to help as much as poss. It is great to speak with folks who really know how it feels .. im in remission for the last 19mths. So sometimes feel like i shoudnt be here. But then think no actualy you can still give advice help n support coz you have been there . So please ask anything you need to n someone will have dealt with it at somepoint. Best wishes