I'm new here but I've been dealing w/Crohn's since I was 16, I'm now 47. The past year has been horrible! My husband was diagnosed last year w/advanced glaucoma & is now legally blind. He was an over the road truck driver but because of this he had to come home & apply for SSD.
We have a 16 yr old daughter who has ADHD(I also have ADHD but, that dx didn't exist when I was a kid!) & a learning disability. The past year has been a nightmare & the stress of it all is killing me! I started a flare back in 10/15 & have gone down hill since then. Up until a few weeks ago, I was working 2 jobs just trying to survive but not doing very well!
In the past few months I've had 2 colonoscopies, a CT scan, & an upper endoscopy. My GI finally came to the conclusion that I needed to see a surgeon because he couldn't get the scope through either end because of scar tissue. A few weeks ago my daughter who aside from the ADHD is a healthy 16 yr old, came home with a stomach virus. She woke up at 4 or 5am puking her guts up & by noon was done & on the mend! I, on the other hand, started puking that afternoon & it went on for about 5 days. I became so dehydrated that I literally didn't pee for 4 days, I was so weak I could barely walk!
I ended up out of work for 3 weeks. When I was finally able to go back to work, my pt job told me that they had to put me in as a quit because I had been out so long, which was fine with me because I still was incapable of working both jobs. My ft job is where I have my benefits & all anyway! That was all just a couple of weeks ago, yesterday I finally had to go out on short term disability until I have my surgery because my job is way to physical & I'm just too weak & constantly nauseous to do my job & didn't want to hurt myself or anyone else!
Financially, this is a disaster for us & so now my stress level is even higher than it was! My husband is still waiting on disability & I have a waiting period of 1 week until mine kicks in. I'll probably be a regular here now that I'm home.
Thanks for reading & I look forward to talking to people who understand where I'm coming from! :sign0144:
We have a 16 yr old daughter who has ADHD(I also have ADHD but, that dx didn't exist when I was a kid!) & a learning disability. The past year has been a nightmare & the stress of it all is killing me! I started a flare back in 10/15 & have gone down hill since then. Up until a few weeks ago, I was working 2 jobs just trying to survive but not doing very well!
In the past few months I've had 2 colonoscopies, a CT scan, & an upper endoscopy. My GI finally came to the conclusion that I needed to see a surgeon because he couldn't get the scope through either end because of scar tissue. A few weeks ago my daughter who aside from the ADHD is a healthy 16 yr old, came home with a stomach virus. She woke up at 4 or 5am puking her guts up & by noon was done & on the mend! I, on the other hand, started puking that afternoon & it went on for about 5 days. I became so dehydrated that I literally didn't pee for 4 days, I was so weak I could barely walk!
I ended up out of work for 3 weeks. When I was finally able to go back to work, my pt job told me that they had to put me in as a quit because I had been out so long, which was fine with me because I still was incapable of working both jobs. My ft job is where I have my benefits & all anyway! That was all just a couple of weeks ago, yesterday I finally had to go out on short term disability until I have my surgery because my job is way to physical & I'm just too weak & constantly nauseous to do my job & didn't want to hurt myself or anyone else!
Financially, this is a disaster for us & so now my stress level is even higher than it was! My husband is still waiting on disability & I have a waiting period of 1 week until mine kicks in. I'll probably be a regular here now that I'm home.
Thanks for reading & I look forward to talking to people who understand where I'm coming from! :sign0144:
I hope you're over the major hump and your entire family can begin to improve.
