Newbie....trying to understand my Crohn's. Am I the only one?

[Tazzy]

I have recently been diagnosed with Crohn's....within the past 3 months, as you can all imagine it wasn't exactly what I wanted to hear when I was told 'Yes it looks like you have Crohn's' and the worse part was not knowing how to take it. I have always been one to hide my feelings, put a smile on and carry on like normal, so once I was put onto my new medication (pentasa)this is exactly what I have done.
Although, I have had to have a course of steroids due to having erythema nodosum appearing on my legs again as well as struggling with a few mouth ulcers (nothing compared to the 30+ I had before I was officially diagnosed). I am back off the steroids now and continuing with pentasa.
However, being a second year uni student with two part-time jobs (roughly 12 hours a week) I am finding I am extremely tired, i tend to get at least 8 hours sleep a night, I'm also finding it so hard to concentrate, I can't focus on my work and finding it really difficult to listen to my lecturers but over the past couple of days I have been really struggling, with feeling light headed, headaches and feeling a bit sick. I don't know whether I'm getting myself stressed out over my work load or what.

Am I the only one who feels this? Is it the condition or is it the medication?

 

[Reena]

You may be dehydrated from the meds, that may be why you're getting headaches and feeling light headed. I read on the NHS website that Pentasa may make you dehydrated. You should drink a glass of water and see how you feel in about half an hour

 

[Reena]

How is everything? Still getting headaches and such?

 

[Tazzy]

Yeah, I'm seeing the doctor tomorrow so can discuss it with him.

 

[PhoenixBird]

Yes, I get dehydrated from the Pentasa too. Just drink lots of water with it

 

[BLEEDBLUE214]

I am 26 now and have had Crohn's since I was 18. I was on pentasa when I was first diagnosed with it and got the same feelings. Your case may be different, but I found that drinking plenty of water with it seemed to help. I really hope you get to feeling better, and any questions at all feel free to ask me!! I feel your pain!!!