Newbie

[samantha]

newbie

Hiya I am sam, I have had cd for 14 years.
I have had one operation a resection nearly 2 years ago, it didnt work so never again (well to the next time)
I have just had a stay in hospital due to a major flare up.
I am currently taking Pred 10mg a day until next week then I will be a steroid free zone. This is the last ever time I will take the Pred due to the vile side effects and when I taper i loose the movement in my legs and cant walk for a few days and am in total agony!
I also take pentasa and anti sickness. and have vit b12 every 12 weeks.
At the mo I am feeling pretty bad at nights with my joint pain and being sick through a partial blockage ( i think).
I also have gall and kidney stones as well as the teerrible joint pain which I am thinking it is due to the Pentasa so will find out when i visit GI on 11th may.
Hope everyone is as well as possible.
Sam xx

 

[Kossy]

Welcome to the board Sam. Sorry to hear about your surgery. I hate Predisone too. Well I think we all hate the side effects of it.
I never had joint pains while I was on Pantasa. It was all cause by the Predisone.
Well best of luck to you!

 

[samantha]

Thanks Kossy, also forgot to say i have 2 children boys age 7 and 12, a bloke and a job as a restaurnat supervisor part time which is enough for me even thought I really enjoy it.
Oh and i am from the UK.

 

[Kossy]

I had no idea what a "bloke" was. I went to a website that's called English to Amerian.. this is what it said..

bloke n. pron. "blowk" (English); "bloke" (the rest of us). The closest American equivalent is guy, and it is pretty close. A bloke is a joe public, a random punter - any old guy off the street. Where it differs from guy is that it can't apply to your friends. You can't walk up to a group of your mates and say "Hi blokes, what's up?", as they'd all peer at you as if you'd been reading some strange cross-channel dictionary. The most common usage of the word bloke is almost definitely in the phrase "some bloke in the pub".

Before I found this I was just thinking of what it was... I was no where close to what it means.... It's funny we speak the same language but we have totally different slang terms for almost everything.

 

[Kate]

Hi sam

Yeah I have to agree the pred sideffects suck so yay to be off them in a week for you. Welcome to the site and all the best

Kate

 

[ReeRee]

Hi Sam and Welcome! It's so good to have you here and I look forward to seeing you around alot. Maybe you can teach Kossy how to speak British.. For the record, Kossy, I knew what a bloke was. I'm a BBC fan and watch it all the time! LOVE the Naked Chef on Food Network too.

I think it's safe to say that everybody here hates Prednisone..lol. That is some evil stuff.

 

[samantha]

yeah a bloke is my man Andy xx

 

[mikeyarmo]

Thank you so much for sharing your story with us Samantha. 14 years is a terribly long time to be fighting this disesae, and I am sorry to hear you are having such a hard time with pain. Hopefully getting off the prednisone soon will help though (I will be completley off it myeself in about 2 weeks time).

I hope you are able to stay around here more often, as we would all love to get to know you even better.

 

[samantha]

Thanks Mike, loving the site as you can prob tell from my huge amount of posts today mainly to the games bit, its fab.
Yeah 14 years is a long time but I can;t even remember not having this damn disese now!
You will def see me about a lot.
Sam x

 

[jyarmo]

Hi Samantha!
Welcome to the board! We're going to you hold you to that...we want to see you around here a lot!

 

[Tami Lynn]

Hey Sam!

Glad you found us! Hope you start feeling better soon, and I look forward to seeing you around on the board!

 

[Karen]

WELCOME ABOARD >>> SAM !!

I am sure that you will find lots of support here at the CROHN'S FORUM & if U need a friend ... count me in !! Once again WELCOME ABOARD !!

 

[cookey]

Hi there Sam, great to meet you. Happy to hear you will be steroid free soon. That's always cause for celebration. If you need anything, don't be shy. Your amongst a great crowd of people.