Newbie

[windowfitter]

newbie

:depressed: Hello my name is gary im from the UK and im 43 years old ,was diagnosed with crohns in july this year after spending 2 weeks in hospital passing blood out of both ends.
i was released from hospital not realy knowing what was going on im being pumped full of drugs such as sulphersalzine and prednisone which has given me insomnia so i havn't slept properly since july ,this thing has also given me arthritis and proctitis.
i havn't been to work since july so money getting low and the wolves are at the door the company i work for wont allow me back to work and im completely deppressed

 

[Kev]

Hi Gary.. Welcome to the forum. Sorry to hear about your troubles. At least you are out of hospital and no longer passing blood from both ends. Bouts of depression is the norm with this disease. Same goes for the side effects of the drugs we take. If you break it down, and start dealing with one of these things at a time, it becomes more manageable. Anyway, we are here to listen, to help if and when we can, and I hope you find this place a good start on the road to eventual recovery or remission.

 

[windowfitter]

Thanks for the reply mate, nice to know theres people out there that understand .
at the moment the cure seems worse than the crohns,went back to hospital last week to see my consultant , for the fist time since i came out of hospital,he wasn't happy with my recovery he said i havn't reached remission yet. he also said he wasn't happy with the effects the prednisolone was having on me so he's going to start me on a drug called azathioprine what ever that is

 

[Kev]

Azathioprine, also known as Imuran. Been there, tried that, but no brass ring. I wish you better luck with it than I had. Plenty of others on here have used it with success

 

[Sojourn]

Welcome, and hope you have better success with Azathioprine/Imuran than what you were doing. There might be some other kind of medication they can give you to help with sleep though I can understand wanting to avoid those as I have. Most of us are all too familiar with problems relating to work and this disease. I've changed jobs a few times since being diagnosed almost 5 years ago.

 

[Mazen]

Welcome and hope you do well on Imuran. I'm also having some problems now at work. I'm currently flaring and my work requires some travel for meetings, and nobody seems to understand that when you have Crohn's and flaring, traveling is not an option (meds, rest , food..........). So now they are saying they want to complain to my boss that I'm not fulfilling my job correctly. So , what I will do now is get a doctor's report saying I cannot travel for a month or so and then see what I can do............... People are so thoughtless. I just want to know what they would do if they had Crohn's ........

 

[Cara Fusinato]

Hang in there. It's really hard with the first diagnosis and the first major flare. You feel like the world is bleak, the meds won't work fast enough, and why does this have to happen. Time, support, and meds helping will all get you through. You, like all of us, will learn how to live successfully and even happily again.

 

[soupdragon69]

Hey Gary,

I was diagnosed the Tues before Xmas 06 and have had a rough year til this summer. You will get there mate believe me.

The folks here are a great bunch and you can have a sounding board any time whether its to ask questions or have a yell or say you are having a good day!

Where in the UK are you? You will see I am in Cambridge (just outside it actually). You certainly are not alone and there are quite a few of us here.

Keep posting and welcome to the site mate!