My daughter last year was a 85% student, this year, she just holding onto a 50%. She has a history of food allergies (dairy, egg, mustard seed) which she has outgrown, and a new one.. shellfish she just grew it this year.
We were unsure of her having LD, and or ADHD, or Food reactions. So we went to our local GP who really did nothing. She did a referral for the children's hospital for ADHD testing. It was not accepted by our insurance.
Insurance gave me a list of doctors to see, who spent 30min running tests three times.
My DD by this point was totally off her head. She could NOT stop moving, she was wearing ear muffs to try to block out the noise in the class. She was "diagnosed" as severely ADHD, and recommend to be put in a class of no more then 8 children.
No one heard, or listened to us, about the reaction to food, and her behavior.
I ended up pulling Gluten and Dairy, and we saw some improvement. Through a elimination diet we also pulled Soy and Corn.
I thought she was having a "yeast overgrowth" (which I am not told by MD that that, and a leaky gut is medically impossible.
When she was at her worst, it was like she was intoxicated. truly. i guess the more 'PC' term to use is "Brain Fog" and "hyperactive".
Over the xmas break we travelled quite a bit and my DD was sick, (both ends) with what I assumed was "die off" or "the flu" or even "seasickness" for six weeks.
after each episode if being ill, she had a few days of "clarity" and then the cycle would stat again.
Our Allergists nurse advised us to go direct to the GI Clinic at the local children's hospital. Because she was not having true allergies. But we were able to get our appointment moved up to March (next week).
We saw the GI doctor, who mixed up my daughter with another girl (same name, different age) and started to talk about my "daughters cancer" (not quite the best foot forward.. kwim?) She corrected her error and on we went.
She ordered genetic testing for "celiec" and did a up and down scoop.
we are still waiting results - but scoop showed 12 or so ulcers, and she was given the diagnoses of "mild crohn's.
her school work, started to slip again (she was doing great the first week back). but she was doing 150% better then the fall. she no longer used ear muffs in class, and is on top of things. but still "off".
I asked about her "drunken" or "brain fog" and was told it was no way connected to her Crohns, and that I was going to be referred to another departments once she was "cleaned up". The doctor and nurse advised it was highly unlikely that she had SIBO (not Yeast.. SIBO would be the correct term) based on her test results.
And that she was not hyper from any sugar/fruit/high starchy foods - and to put rice, grains and apples back into her diet.
Well, I did.. and guess what.. thing started to slip again. And then the HUNGER was unreal. She was eating over 4000 cal, a day - and still loosing weight. I MEAN UNREAL. They tested her for tape worms etc, and came back all clear.
And for the first time, my DD did not have loose stools, she was now getting slightly constipated.
(are you with me?)
So every 10 days we are in a cycle.. eyes are dilated, focus is off, dream state.. "brain fog" but less movement then the fall.
If my DD drinks lots of water, it seems to help "clear her mind" as does having a "BM".
Of course, all of this is in my mind, and I am making it up.
Starting this week, we are having her tested for Fructose, Sucrose and lactose intolerance. Because she will have been on a low residue diet, I am sure they will come up fine.
SO.. here is where my enlightenment came in - when she is carb loading - rice, rice pasta, higher fat foods, she eats like crazy - is always hungry, and is slower to have a BM.
When she eats a low residue diet, she has more BM, is more "clear" and has better (not great)focus.
but this is 100% connected to her foods, what she has eating, and her bowel movements.
And then her GI, and her nurse tell me I am wrong, and that that can not be.
So, please tell me - I spend more time with my daughter then anyone.. and yet, I am making up fairy stories.
Has this happened to ANYONE ELSE?
We were unsure of her having LD, and or ADHD, or Food reactions. So we went to our local GP who really did nothing. She did a referral for the children's hospital for ADHD testing. It was not accepted by our insurance.
Insurance gave me a list of doctors to see, who spent 30min running tests three times.
My DD by this point was totally off her head. She could NOT stop moving, she was wearing ear muffs to try to block out the noise in the class. She was "diagnosed" as severely ADHD, and recommend to be put in a class of no more then 8 children.
No one heard, or listened to us, about the reaction to food, and her behavior.
I ended up pulling Gluten and Dairy, and we saw some improvement. Through a elimination diet we also pulled Soy and Corn.
I thought she was having a "yeast overgrowth" (which I am not told by MD that that, and a leaky gut is medically impossible.
When she was at her worst, it was like she was intoxicated. truly. i guess the more 'PC' term to use is "Brain Fog" and "hyperactive".
Over the xmas break we travelled quite a bit and my DD was sick, (both ends) with what I assumed was "die off" or "the flu" or even "seasickness" for six weeks.
after each episode if being ill, she had a few days of "clarity" and then the cycle would stat again.
Our Allergists nurse advised us to go direct to the GI Clinic at the local children's hospital. Because she was not having true allergies. But we were able to get our appointment moved up to March (next week).
We saw the GI doctor, who mixed up my daughter with another girl (same name, different age) and started to talk about my "daughters cancer" (not quite the best foot forward.. kwim?) She corrected her error and on we went.
She ordered genetic testing for "celiec" and did a up and down scoop.
we are still waiting results - but scoop showed 12 or so ulcers, and she was given the diagnoses of "mild crohn's.
her school work, started to slip again (she was doing great the first week back). but she was doing 150% better then the fall. she no longer used ear muffs in class, and is on top of things. but still "off".
I asked about her "drunken" or "brain fog" and was told it was no way connected to her Crohns, and that I was going to be referred to another departments once she was "cleaned up". The doctor and nurse advised it was highly unlikely that she had SIBO (not Yeast.. SIBO would be the correct term) based on her test results.
And that she was not hyper from any sugar/fruit/high starchy foods - and to put rice, grains and apples back into her diet.
Well, I did.. and guess what.. thing started to slip again. And then the HUNGER was unreal. She was eating over 4000 cal, a day - and still loosing weight. I MEAN UNREAL. They tested her for tape worms etc, and came back all clear.
And for the first time, my DD did not have loose stools, she was now getting slightly constipated.
(are you with me?)
So every 10 days we are in a cycle.. eyes are dilated, focus is off, dream state.. "brain fog" but less movement then the fall.
If my DD drinks lots of water, it seems to help "clear her mind" as does having a "BM".
Of course, all of this is in my mind, and I am making it up.
Starting this week, we are having her tested for Fructose, Sucrose and lactose intolerance. Because she will have been on a low residue diet, I am sure they will come up fine.
SO.. here is where my enlightenment came in - when she is carb loading - rice, rice pasta, higher fat foods, she eats like crazy - is always hungry, and is slower to have a BM.
When she eats a low residue diet, she has more BM, is more "clear" and has better (not great)focus.
but this is 100% connected to her foods, what she has eating, and her bowel movements.
And then her GI, and her nurse tell me I am wrong, and that that can not be.
So, please tell me - I spend more time with my daughter then anyone.. and yet, I am making up fairy stories.
Has this happened to ANYONE ELSE?
