News about my son, Do u have any similar experience?

[AlexIta]

Hello everyone,

Mattia has been checked, unfortunately by a Paediatrician; I was hoping more for a Paediatric Gastroenterologist. She check the history of my son and she asked us to do the Calprotectin test again. She suggested to wait a bit for the Calprotectin because it takes long to get down; so next month he will repeat the Calprotectin test. She also did palpation of the belly and of the colon. She told us that everything is ok and " she would be surprised if Mattia has IBD" and that Mattia most probably got a "virus". I asked the doctor to do other exams to exclude IBD, but she did not agree at the stage.

My son did not get any diarrhoea for 7 months, but unfortunately He had a bit of diarrhoea with blood last week. We do not know if he got milk at school, or something made with it, my wife is going to ask.

However, It looks to me always the same pattern of symptoms : 3-4 days with diarrhoea ( he goes to the bathroom 5 - 8 times per day); the 5th day he got a bit of blood ; not fever; a bit of stomach-ache just before to go to the loo; after 8-10 days everything is gone. Did any of you experienced something similar with your kids?

Now I am really puzzled . Is it possible that someone with IDB not treated, does not show sympthoms for 7 months?

I understood that UC and Crohn`s are very hard to spot, basically they proceed by exclusion of other diseases. I hope to get some info soon.

Have a nice day and all the best,

Alessandro

 

[Pilgrim]

I think that repeating the calprotectin test is a good plan.

It is absolutely possible that someone with IBD can go 7 months without symptoms. Crohn's, for instance, is a relapsing and remitting disease which means it has the pattern of coming and going as part of it's "routine". It can be years between for some people.

5-8 times per day is a lot. Blood is never normal. Our daughter never got a fever. Maybe at her worst there would be a low grade, like 99*F, fever. But even that came and went. She often says her "tummy hurts" before she has a bowel movement. So it all sounds like it should be watched.

Diagnosis does take a long time. I'm glad you have the fecal calprotectin test coming up.

Thanks for remembering us here with an update.

 

[CrohnsKidMom]

The calprotectin test is usually a good indicator of inflammation in the digestive system, so it's good they are going to repeat it.

Everyone's symptoms varies with this disease, which is one reason it can be hard to diagnose. My son was more of a text book case-had all the usual symptoms (mouth ulcers, daily fevers, abdominal pain, distended belly, anemic, weight loss)-so he was easier to diagnose. He also had constipation, which is an indicator of small bowel involvement.

I would push for further testing if this pattern continues, or other symptoms develop, and for sure if the next calprotectin level is high.

Good luck!

 

[AlexIta]

Tomorrow we will call the hospital, asking to see a pediatric GI, and get at least the blood test, I still think that he has non-IgE-mediated Cow’s Milk Protein Intolerance. He could have got the milk at school from his friends.

Calprotectin I guees, it will be high again.

Thanks for the support

 

[Farmwife]

Hi, my dearest Grace went 4 months once without a symptoms (I think she was 1.5 years old).

I hope you get answers.:hug:

 

[AlexIta]

Hi,

My son got milk at school (cows milk), the teacher just told us; it is more or less one week that he is drinking it. We have another appointment with the Paediatrician, she asked us to do the FC again in 2-3 months (Time that the intestine needs to recover). Plus we are going to do an oral challenge, take out milk and at some point trying to reintroduce it again.

I think we still have to do lots of test and see what will happen. At the moment, the diarrhoea is gone and so its the blood. He does not have any stomach ache and his appetite is very very good (it has always been very good).

I am tried to read some scientific papers about IBD, I do not have very clear milk role. It looks like that could increase the inflammation of the GI but there are other kind of food which are worse than milk (i.e. fruit with skin, fried food, nuts and chocolate). If someone with IBD eats these kind of food, the inflammation should not be as bad as with milk?

Thanks everyone for the support.

 

[Mr chicken]

Good is very indivualized for Ibd
What bothers one kid may not bother another
So the studies are very basic guides
My kiddo can't handle chicken and fish but is fine with tomatoes

 

[Clash]

My kiddo doesn't have any outward symptoms to food. He doesn't experience blood or D when eating anything. Yet his CD was severe and located at his TI. This disease is so individualized as to how it affects each person.

 

[AlexIta]

Hi Clash,

Just a question did he have any stomach-ache?

I think it will take a while to find out, what he has. May be the fastest way would be the Scope. I don t know.

 

[Clash]

Before dx my son's complaints were mouth ulcers, night fevers, severe fatigue, and there was pain to the right of his belly button. The pain was consistent and my son didn't describe it as a stomach ache. No certain food bothered but he did like soft foods better than any other. The area of inflammation had caused narrowing and I think soft foods just passed easier. He didn't experience D or blood after eating but his disease is located in his small bowel so sometimes that can be the case.

Since that first flare C has had inflammation but been asymptomatic.

 

[AlexIta]

Clash thank you for the invaluable information.

Next week, we will bring my son to the hospital, the Paediatrician wanna do more tests, luckily. I guess FC and Blood test and maybe refer us to a GI.

 

[malorymug]

My child was very sensitive to milk when he was at his sickest, I guess it was a flare. Once we got his inflammation under control he had no more troubles with milk. He doesn't really have any food restrictions and we let him eat what feels right to him. He chooses milk and milk based foods sometimes, and sometimes it doesn't sound good to him.

 

[kimmidwife]

Milk never bothered my daughter with Crohn's. Very glad you will be getting further testing. Diagnosis is usually made with a colonoscopy with biopsies of the intestine. Good luck and keep us posted.

 

[CrohnsKidMom]

My son was like malorymug's child. He could not tolerate milk when he was at his sickest, but once the inflammation settled, milk was fine.