xX_LittleMissValentine_Xx
Moderator
Hi guys!
Sorry I havn't been posting recently, I've been very busy settling into uni life! But I have been around from time to time, having a little look so I didnt completely leave you!
Just thought I would give you a little update coz quite frankly my situation is so rediculus atm that it is laughable!!
So anyway as you may or may not know I started Uni at the end of september, and I was worried about how I might start to feel bad again because of stress. So all was well and I was having a good freshers week and then suddenly I started to feel bad again. Unfortunatley I think this was alcohol induced! (Its not fair! I like drinking, but crohnie hates it! :voodoo: ) So anyway there we are me not as good as before but not terrible by any means!
Then in October, I went home to Reading to go and see my GI and to have my cerivical cancer injection and regular blood test.
And i saw a different GI this time, he was nicer than the other one - bit of a better bed side manner. I told him the situation as I hadnt been to the hospital since December. And basicly it was a little inconclusive, he said that he was guna talk to the normal GI (his boss) and check my CRP (inflamation) and then decide whether they want to change my dosage or if they want to do anything else.
He said he would ring me in a few days and let me know.....
9 Days Later....
Havnt heard anything so my mum rang the secratery to try and find out what was going on! She rang me back and said that I needed to have a blood test to check my CRP. Which was a bit strange coz i had had a blood test done the morning i went to the hospital. But I thought never mind. I went to the medical centre at my uni to see if they did blood tests. They said they did so I booked one.
Now at home i usualy just go in tell them what needs to be tested and who needs the results at the hospital then they get on with it. But now coz I dnt live in the same county as my GI aparently It gets harder!
So i went in, expecting an appointment with the nurse (waited ages I might add!) And the doctor called me in?? So I thought ok this is strange, i only need to see the nurse. So i told the dr i needed a blood test. And get this right....She didnt know ANYTHING about me! Even though I have registered and now they dont have any of my notes back at the old surgery at home, she didnt know anything about me. So ofc I had to tell her my whole crohn's history!!! Then she did the blood test form and said that I needed to go and see if the nurse was ok to do it today. And I thought well I hope so since I booked an appointment for a blood test in the first place!!!
Anyway the nurse said I would have to wait 15mins so I did and had the blood test and I told her that it needed to be sent to Reading, she said that the best thing to do would be to wait for the results to be in and then I could get them and pass it on. Oh my goodness I thought, it is always a nightmare to try and get the results back! She said they would take a week ( this was last friday now)
So I rang my mum and told her what was happening, and she rang the secretery in Reading to tell her what was going on.
Then yesterday I had a voicemail on my phone from the doctor telling me my results. She said that my CRP was 31 and that there were some worrying results with my white blood count and lymph something. And that I needed to tell the doctors in reading ASAP so they can decide what to do and then to tell her so she can sort it out etc etc.... (sigh! If u are finding it hard reading this imagine what it is like for me living with it!!! )
Also It is important for me to state here that when I had a blood test I was in the thick of a very nasty cold. I was aware that this might affect my blood test a bit but I thought atleast then they would change my dosage and I would feel better.
So after this phone call I wasnt worried coz i thought well thts because of the cold.
So I rang my mum and told her the results and told her to tell them that I have a cold. So she rang them and then the secretery rang me back and said that I needed to get the other doctors to fax her the results!
Jusus Christ! Im thinking now! whatever next !!!
So I emailed the doctors at the uni and said this is the number please can you fax them the results! (easy enough!)
Then I got a reply saying they cant do that becuase they do not have my doctors information and that I need to ring this other surgery in bath who will be able to do it! ( What the hell? I GAVE YOU THE NUMBER TO FAX IT TOO!!!!)
Oh I am having enough of this!!
So I went in there today to talk to them about it. The people at reception said that I needed to talk to the doctor or the nurse. So i just banged on the nurses door!! (I'm not making an appointment just for that) And she was annoyed coz clearly they were busy and I had just stormed in. So I explained the situation (again as she didnt remember me from before.) So she said ok and asked me to wait outside.
After waiting she called me in and said that the doctor had rang me with the results and left a voicemail. Yes i said I know that. AND THEY WANT YOU TO FAX IT TO THEM!!!!
So she gave me the number to call for the other surgery who will aparently do it! I rly dnt know why they cant do it but anyway now I have to ring them tomoro and some point and see what they say.
But anyway one more little bit of the story is:
My mum just rang me coz the GI sent me a letter back home to summerise the appointment I had had with him. It basicly said: Holly's CRP was showing to be a little inflammed in july at 12, if this has increased slightly then we might have to do an colonoscopy to see if this is due to crohns or irritable bowl.
...Increased slightly....MY CRP IS 31!! So because of my cold they are guna do another colonoscopy!! aaagh! I just wanted it to be a bit higher so they would increse my meds!
Its quite funny in a way!
Im so sorry guys I have written an essay! I hope it doesnt bore u! anyways thts it rly, i hope i dnt have anymore grief when i ring the other surgery tomoro!]
I guess I'll let u know what happens and what the doctors decide.
Hope you are all ok
Love Holly
xxxx
Sorry I havn't been posting recently, I've been very busy settling into uni life! But I have been around from time to time, having a little look so I didnt completely leave you!
Just thought I would give you a little update coz quite frankly my situation is so rediculus atm that it is laughable!!
So anyway as you may or may not know I started Uni at the end of september, and I was worried about how I might start to feel bad again because of stress. So all was well and I was having a good freshers week and then suddenly I started to feel bad again. Unfortunatley I think this was alcohol induced! (Its not fair! I like drinking, but crohnie hates it! :voodoo: ) So anyway there we are me not as good as before but not terrible by any means!
Then in October, I went home to Reading to go and see my GI and to have my cerivical cancer injection and regular blood test.
And i saw a different GI this time, he was nicer than the other one - bit of a better bed side manner. I told him the situation as I hadnt been to the hospital since December. And basicly it was a little inconclusive, he said that he was guna talk to the normal GI (his boss) and check my CRP (inflamation) and then decide whether they want to change my dosage or if they want to do anything else.
He said he would ring me in a few days and let me know.....
9 Days Later....
Havnt heard anything so my mum rang the secratery to try and find out what was going on! She rang me back and said that I needed to have a blood test to check my CRP. Which was a bit strange coz i had had a blood test done the morning i went to the hospital. But I thought never mind. I went to the medical centre at my uni to see if they did blood tests. They said they did so I booked one.
Now at home i usualy just go in tell them what needs to be tested and who needs the results at the hospital then they get on with it. But now coz I dnt live in the same county as my GI aparently It gets harder!
So i went in, expecting an appointment with the nurse (waited ages I might add!) And the doctor called me in?? So I thought ok this is strange, i only need to see the nurse. So i told the dr i needed a blood test. And get this right....She didnt know ANYTHING about me! Even though I have registered and now they dont have any of my notes back at the old surgery at home, she didnt know anything about me. So ofc I had to tell her my whole crohn's history!!! Then she did the blood test form and said that I needed to go and see if the nurse was ok to do it today. And I thought well I hope so since I booked an appointment for a blood test in the first place!!!
Anyway the nurse said I would have to wait 15mins so I did and had the blood test and I told her that it needed to be sent to Reading, she said that the best thing to do would be to wait for the results to be in and then I could get them and pass it on. Oh my goodness I thought, it is always a nightmare to try and get the results back! She said they would take a week ( this was last friday now)
So I rang my mum and told her what was happening, and she rang the secretery in Reading to tell her what was going on.
Then yesterday I had a voicemail on my phone from the doctor telling me my results. She said that my CRP was 31 and that there were some worrying results with my white blood count and lymph something. And that I needed to tell the doctors in reading ASAP so they can decide what to do and then to tell her so she can sort it out etc etc.... (sigh! If u are finding it hard reading this imagine what it is like for me living with it!!! )
Also It is important for me to state here that when I had a blood test I was in the thick of a very nasty cold. I was aware that this might affect my blood test a bit but I thought atleast then they would change my dosage and I would feel better.
So after this phone call I wasnt worried coz i thought well thts because of the cold.
So I rang my mum and told her the results and told her to tell them that I have a cold. So she rang them and then the secretery rang me back and said that I needed to get the other doctors to fax her the results!
Jusus Christ! Im thinking now! whatever next !!!
So I emailed the doctors at the uni and said this is the number please can you fax them the results! (easy enough!)
Then I got a reply saying they cant do that becuase they do not have my doctors information and that I need to ring this other surgery in bath who will be able to do it! ( What the hell? I GAVE YOU THE NUMBER TO FAX IT TOO!!!!)
Oh I am having enough of this!!
So I went in there today to talk to them about it. The people at reception said that I needed to talk to the doctor or the nurse. So i just banged on the nurses door!! (I'm not making an appointment just for that) And she was annoyed coz clearly they were busy and I had just stormed in. So I explained the situation (again as she didnt remember me from before.) So she said ok and asked me to wait outside.
After waiting she called me in and said that the doctor had rang me with the results and left a voicemail. Yes i said I know that. AND THEY WANT YOU TO FAX IT TO THEM!!!!
So she gave me the number to call for the other surgery who will aparently do it! I rly dnt know why they cant do it but anyway now I have to ring them tomoro and some point and see what they say.
But anyway one more little bit of the story is:
My mum just rang me coz the GI sent me a letter back home to summerise the appointment I had had with him. It basicly said: Holly's CRP was showing to be a little inflammed in july at 12, if this has increased slightly then we might have to do an colonoscopy to see if this is due to crohns or irritable bowl.
...Increased slightly....MY CRP IS 31!! So because of my cold they are guna do another colonoscopy!! aaagh! I just wanted it to be a bit higher so they would increse my meds!
Its quite funny in a way!
Im so sorry guys I have written an essay! I hope it doesnt bore u! anyways thts it rly, i hope i dnt have anymore grief when i ring the other surgery tomoro!]
I guess I'll let u know what happens and what the doctors decide.
Hope you are all ok
Love Holly
xxxx