Not diagnosed with anything but so scared it's IBD

[milly85]

Firstly sorry about the tmi I'm about to post.

I'm female and 29 at the moment. Five years ago I got sent for an appointment to see a consultant and had a sigmoidoscopy done because I had blood in my stools and sometimes I would just get mucus and blood whenever I felt the urge to go. It was not continuous but it was there and it frightened me. But nothing came of that appointment. I suffered a bout of psychosis during that time but obviously that has nothing to do with my symptoms. Unfortunately I got diagnosed with schiz which was later changed to schizoaffective, bipolar or possibly just bipolar. I haven't had a psychosis episode since then. Sometimes when I'm having stomach problems though, I do feel very down and ill so not sure if there is a connection.


Anyway,


So the same thing is happening on and off and I've been avoiding for years. Finally saw my GP again who thinks it might be lower grade IBD whatever that means. I've been getting blood and mucus on and off and always have loose stools. I feel uncomfortable whenever I eat specially at work when I am stressed. So I avoid eating. Keep having to go to the loo even though nothing comes out but mucus and wind. People told me it's the spicy food I'm eating but I'm not so sure. I'm scared of what's to happen next after I see a specialist again. My GP has requested for me to have more tests done. It's so weird that I am this big and I hardly eat.

I'd like to also add that I bleed for different reasons because sometimes it's just painful to go and I get this burning sensation.

I'm sorry if I am not supposed to post here as I am not officially diagnosed with anything but I really need help and I am scared.

 

[scottsma]

Hello and welcome to the forum.It's sad that you have to be here,but you will get lots of support and advice.Please try not to worry too much,easier said than done,I know.It is very scarey when you haven't been diagnosed yet,and each appointment seems to take an age,but IBD is manageable with the right medication and sometimes with a change of diet.Stress can sometimes aggravate symptoms too.Have a look at the different threads we have,you're sure to find lots to interest you and also put your mind at rest. Best wishes.

 

[milly85]

Hello and welcome to the forum.It's sad that you have to be here,but you will get lots of support and advice.Please try not to worry too much,easier said than done,I know.It is very scarey when you haven't been diagnosed yet,and each appointment seems to take an age,but IBD is manageable with the right medication and sometimes with a change of diet.Stress can sometimes aggravate symptoms too.Have a look at the different threads we have,you're sure to find lots to interest you and also put your mind at rest. Best wishes.

I'm reading I found a lot of people here going through the same symptoms I am and ofcourse I'll only find out for sure after tests. Thanks for the support!

 

[Abbynormal]

Welcome to the forum!
I think it's great that you.ve posted on here and I wish that I had known about the forum before I had got diagnosed with Crohn's disease. I know it's easier said than done but try not to worry too much until you have spoken to your doctor- stressing out will just make u feel crappy! Not that I can say much cause I'm always worrying lol. I hope you get a proper diagnosis soon and if it does turn out to be IBD I hope they get you quickly on some medication.....keep us posted

 

[wellen1981]

Don't worry OP, the more you read this forum the more you will realise there is no such thing as tmi on here!

I also like abbynormal wish i had found this forum pre-diagnosis.

OP, my only advice would be to get checked out properly and/or referred to a gastro specialist by your gp asap. The tests vary but i had colonoscopy, flexible sigmoidoscopy, and MRI scan.

Then after i was diagnosed with Crohn's Disease in the terminal ileum.

 

[milly85]

I have been referred to a gastroenterology at UCLH in London. If they take too much time I have insurance to get myself checked out privately. She has requested bloods in the meantime. I kind of feel some relief it's not all in my head. As a child I suffered a lot of stomach problems, particularly the embarrassing gas which really made kids bully me since I was 5. I'm not sure it was IBD though since I'm sure it can't take this long to come to anyone's attention. What really bugs me is why i am so overweight and I struggle to eat breakfast and lunch because if I'm at work I can't take care of those things. I eat at home because at least I can lie down if I feel off.

 

[wellen1981]

I have been referred to a gastroenterology at UCLH in London. If they take too much time I have insurance to get myself checked out privately. She has requested bloods in the meantime. I kind of feel some relief it's not all in my head. As a child I suffered a lot of stomach problems, particularly the embarrassing gas which really made kids bully me since I was 5. I'm not sure it was IBD though since I'm sure it can't take this long to come to anyone's attention. What really bugs me is why i am so overweight and I struggle to eat breakfast and lunch because if I'm at work I can't take care of those things. I eat at home because at least I can lie down if I feel off.

I don't know if it is typical across the UK / England but I wait 3 months between appointments but I am sure my first appointment with a specialist was within 1 month on NHS.

Good luck and you will likely find more usable support on this forum than can be found from friends/family/doctors so be sure to pop by the forum if you need to at the various points of your 'bad gut mystery' journey :cool2:

 

[Abbynormal]

I wait 3 months between seeing my Gastro doctor but I have an IBD nurse who I can ring and speak to in the mean time. I didn't get seen by a Gastro doctor till I was admitted to hospital as tests that I had done at my gp surgery took ages to get results and I ended up having a bad flare up before I got referred.

 

[POTTYTIME!]

Sounds like symptoms I had. I have server CD. I had a colonoscopy, biopsy, blood test, and a barium scan. All came back for crohn's.

I see you are across the pound so im sorry how your health care system works. I have daily access to my doctor personally or at least his nurse. I dont know what I would do if I had to wait 3 months to see him. Sounds like your symptoms are worse than IBS. But am I in no way a doctor. Only thing I can say is I had/have same symptoms and its CD.