Not sure what is going on with my body

[KayleighMeek]

Hello,

Just thought I would post for a little update and it really helps me just to get things out in the open as I don't talk much about this to anyone.
My knee has recently started swelling and acheing again it's not as bad as its been in the past but on occasion stops me from being able to exercise which is really frustrating as I want to get as healthy as possible.
I also have an enlarged lymph node confirmed by an ultrasound of my neck the technician said it could be due to recurrent infection but I don't feel like I have anything like that, he also said he didn't know for sure and to speak to my dr. I did first went to see a GP at my local surgery and couldn't see my usual dr. Well the one I saw was just like yeah it's enlarged but some peoples are bigger than others and show up more, this is after they kept on assuring me it wasnt a node and it was a cyst.I could accept this statement if I hadn't originally gone to them saying it has gotten bigger and was worried that it may be connected to my methotrexate. I then brought it up with my GI and he brushed over it aswell so feeling a bit annoyed about it. It is still swollen now but feel like what is the point when no dr wants to look into it anymore, it also feels like a dull ache in the area where the lump is. I just don't know where to go with this now.
I have developed sores in my nostrils again which at times become very painfull and I just feel generally run down. I am not losing any weigt at the moment so one good thing but just feel crap.
The last in the list (that I can think of for now) is my stomach is having ok days and hen bad days. It can sometimes be constipation then goes right back to D or soft formed stools or weird shapes. Also still getting a small amount of blood when goin to the loo and a bit sore there.
Thank you for reading just wanted to get it off my chest so I can think a little clearer. Its deffinatley not even close to how sick I was at the begging of the year but I don't want it to get back that way, but feeling like it is going to all happen again. It's always the same when I think I am just getting my life back the disease starts to rear its ugly head again.

 

[Clash]

Do sorry you are going through all of this. My son experienced swollen lymph nodes over the years before his dx and the doctors reacted the same way. Now my son recognizes certain ones that seem to swell during gi issues so go figure. His GI ran blood work then said if it happens again let us know but nothing to worry about. Maybe you could keep pushing your docs to look further. Let them know that the anxiety it is causing is affecting your tummy problems and you would just like a more definitive answer on what is causing it. Sorry if I haven't been much help but I hope you get to feeling better.

 

[KayleighMeek]

Thank you for replying. It's reassuring to hear that it can be just caused by crohns, but sorry to hear your son has struggled with the disease, as this could explain why they are like this if I am having other symptoms. When I was a child I had my tonsils removed and had a lot of problems with my throat so maybe it's just in a cycle and coming back round again. I seem to be developing new weird and wonderfull things with each flare lol. It would have reassured me if the dr's had just spent a little more time explaining to me what could be causing it instead of saying very little and then not to worry. I wont be going to back to that GP again second time I have seen that particular one and felt no clearer and what is going on and felt more confused.

 

[KayleighMeek]

Oh and forgot another thing about that last GP appointment waited over an hour after my appointment time I was the last one in the surgery so I reckon they couldn't be bothered and wanted to go for lunch so just rushed me out. Waiting for an hour and then being rushed through made me a little angry to say the least. When I get angry I can't help it but I cry so made it to the car phoned my boyfriend burst into tears and just told him everything. The poor guy I don't think he really knew what to do lol

 

[Clash]

You sound like my daughter the more angry she is the more tears will fall her boyfriend hasn't got a chance LOL. My son also had tonsils and adenoids(sp?) Taken out as a small child so you might have something there maybe the swelling is due to the throat issues as a child. I hope you find the right doctor for you and go in with a list of concerns and questions so he'll not be able to nrush you off! Good luck!

 

[KayleighMeek]

Thanks again I am thinking of seeing a ENT dr again as I have nostril that is completely blocked at the moment and has been for a while it all gets pushed to the back of the list of problems. I also had adenoids out the same time and had grommets In my ears as I had problems with hearing.

 

[gconner]

Maybe you need a new gsstroenterolist, that is what I would do.

 

[KayleighMeek]

He gastro doctor is really good it's not him I have a problem with its my GP who has been useless but I won't be going back to the same one again.

 

[changeiscertain]

Kayleigh, I'm sorry to hear about all the trouble you're going through and not getting any answers. That is incredibly frustrating. I too have left my Dr's office in tears out of shear frustration from long waits and no answers. Ugh! And my partner hears about it as soon as I leave and I'm in traffic and I'm crying and probably not making much sense and he hasn't a clue how to react or how to handle me. Poor guy. It's a mess sometimes and I truly hope you get the answers you're needing so you can get better.

 

[KayleighMeek]

The things our other halves put up with but I don't know what I would do without him
Thank you for the support x