Not sure what is going on with my little girl!!!

[awilliams]

I hope you all can help. My 5 year old little girl started having stomach pains a few months ago after a hospitalization with influenza A. She was born with a dairy allergy that through LDA is starting to outgrow. She has been complaining of tummy pain and two weeks ago was sent home from daycare due to a painful bout. I took her to the pediatrician since I was don't watching her in pain. Upon arrival she had a low grade fever of 100.3. Over the next 6 days she struggled with intermittent pains (more so when coughing, crying, eating). I took her to ER where they ran blood, x-rays, urine and a ct. Everything came back normal except for ever so slightly elevated AST of 41 (37 being high on values). We have since received a referral for a ped gasto dr. I was able to look back to her labs in Feb when she had Flu A and her AST was 39 then. So all in all we are dealing with intermittent abdominal pain (always points to belly button), low grade fevers (runs in the 99 range when she is having bouts), stool that goes from normal to soft/greasy looking, and rising AST levels.

I am not sure what is going on with her, but it hurts me to only be able to watch her in pain.

Any ideas???

 

[CrohnsKidMom]

Sorry to hear you are going through this. Your poor girl! IBD presents differently in everyone so it's hard to know if this is what the problem is. My son was diagnosed at age 8, and he too had abdominal pain around the belly button, and low grade fevers. Can you pinpoint any other possible symptoms? Are there specific foods that bother your daughter? Does she have joint pain, or pain in her back or hips? Has she ever had any mouth ulcers (look similar to canker sores)? Has she ever had night sweats? Chronic fatigue? A fecal calprotectin test would be a good next step. Non evasive, it is usually a good indicator if inflammation is present. From there you may be looking at a MRE. Results from scopes are usually what will confirm a diagnosis. But, the GI will discuss all this with you, so it's great you have an appointment coming up. In the meantime, it might be a good idea to keep a food diary and a diary of symptoms that you can show the GI.

 

[CarolinAlaska]

I'm sorry your daughter is suffering. How are her stools? I hope the GI can get to the bottom of it all.