Numb limbs, knees anyone???

[Irene3]

So for the third time within 2 weeks or so, I had a really numb knee. Like it goes funny and numb for a second, I move it, it's a bit better. Do any of you get numb limbs. I just read online, that it's common in crohns. It's generally the way with vit b12 deficiencies. I only get 3 monthly injections, but apparently, at varied times, our bodies if unable to absorb b12 through the intestine, may need weekly, monthly b12. I'll copy a few peoples threads, who have this deficiency. It surprised me, and I thought some of you with crohns probobly only get 3 monthly too.....

SB:
November 4th, 2009 at 6:21 pm
I have had problems with ocular migraines, vertigo, dizziness, diarrhea, stiffness and pain in muscles and joints, lesions on MRI, carotid artery bruit ,heart murmur, fatigue, memory loss and changes in cognitive ability for the past ten years. I have a long list of doctors I have seen during this time span. Recently, went to a new neurologist. He tested my B12 level. I was SOOOO LOW ,it was “unmeasurable”. Basically he couldn’t tell how LOW it was. That is severe B12 deficiency. By the way, it’s due to intrinsic value malabsorption. Have started B12 injections with highest dose possible daily with hopes to reverse some of the neurological damage that has occurred. I’m RELIEVED to FINALLY find out what was wrong with me. However,I am pissed off that it was something this simple. IF only I knew about B12 deficiency 10 years ago, I wouldn’t be in the shape I’m in. I am already feeling better with the injections,( don’t know if that’s a placebo effect), but feel I am getting my life back. After my daily injections are completed, I go to weekly, then I will have monthly injections for the rest of my life..that’s FINE with me! I am 46 years old.

4cindy:
April 15th, 2009 at 5:40 pm
i have vitamin b12 deficiency. i used to have ciliac as a child but was slowly wiened from it. now i suffer symptoms of anemia and b12 deficiency included face numbness, dizzyness, fatigue, and numbness in arms and legs. I am only 24 and i have to recieve injections monthly for the restof my life.

While a vitamin deficiency does not sound all that serious, it really can be. The signs and symptoms along can be cause for alarm. Some common signs of this problem include:
Diarrhea
Fatigue
Numbness of the extremities
Sore mouth
Loss of appetite
Nausea
Cessation of menstruation
Confusion
Memory loss
Hallucinations
Disorientation
Anemia
Nervousness
Behavioral changes
Enlarged mucus membranes
Yes, those are a lot of signs and symptoms. If you have a combination of the above, you should really see your doctor right away. Studies have shown that B12 deficiency can even cause nerve damage.

 

[Aims]

Hi, yes I have had numb knee and part of my arms and legs, I get shooting pains in my thighs, pins and needles... I always have a sore mouth too. Yesterday I had a massage that was lovely but today my whole body is so sore and skin is tender! Can't win! I think it's part of Crohns - or so my dr tells me

 

[Irene3]

Crabby....I too ask about my symptoms, and everything gets blamed on crohns. Iv been seeing the same gp for a few years since my resection, and iv taken all his advice on any 'extra manifestiation' that comes with crohns. Everything from probiotics, antifungals, antibiotics....and yet I feel life he dosnt take some symptoms seriously. After I asked for an MRI, or ct, as iv had a lot of headaches...he basically had half a grin on??? WTF? After I tell him my symptoms, he tells me to drink plenty of water. Iv been in tears a couple times now, and he smiles and says he feels because of pred, 6mp ect, the fungal overgrowth...dehydration. But a few years ago, I had the same response (not taken seriously), about crohns. For a couple of years after being told ibs, tummy bug, by several gp's, I didn't have anything for crohns, and had 70cm of stricturing rescecred. So I'm going to see the one gp who completely took my bowels seriously. And hopefully he has a look at my symptoms diary and suggest something, and if need be, send me for an MRI, or refere me to a specialist. I like my current gp, his great with the crohns, but I feel like he must think I'm a hypacondriact with the other symptoms.

 

[Jennifer]

Yeah, even if we like them and think they are great as a person, often times they may not be the best doctor for us. Its no offense to them but you gotta do what you gotta do so I do hope you see someone else to get help and that doesn't mean you can't go back to your old doctor later for any other issues that you think they may be handling well.

 

[Irene3]

Yep, I thought he's great with the crohns, and I will still see him in relation to that, as my specialist let's him know everything medication ect wise, so he does my scripts and even with...fissure,hemroids, and now skin tags and fistula or abscess...his great. But I will go see my other gp, for a second opinion. It's like you said