I was diagnosed with Crohn's disease 20 years ago. I was recently put on Entyvio. I have had 3 loading dose infusions so far. I had no side effects at all after the first 2 doses but after the 3rd dose several side effects hit me like a ton of bricks. Severe joint pain in the wrists, hands, ankles and feet...the pain is overwhelming. Also, muscle pain and fatigue and over-all flu like symptoms. I can barely get around and it gets worse as the day goes on. I have also developed some sort of neuropathy in my lower legs and feet which is kind of like burning restless feet with pins and needles. All of this has been going on for 2 weeks now and has had quite an impact on my daily functions. My Dr. has put me on sulfasalazine to help with the joint pain which it has taken some of the throbbing away and also Neuroton which has helped only a little with the Neuropothy. Has anyone else had these type of side effects and how long do they last. If so, what type of treatments have been given to reduce or eliminate these awful side effects? :ybatty:
ON ENTYVIO...Need advice
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Trysha
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Those could be considered serious side effects of the drug and hospital in my opinion sufficient reason for it to be discontinued
I am surprised that this has not already happened.
Was it your GI that prescribed it or another doctor.
Time for you to be asking them about stopping the drug.
Sorry to hear you are having a bad time and hope you will soon feel better
Hugs
Trysha
I am surprised that this has not already happened.
Was it your GI that prescribed it or another doctor.
Time for you to be asking them about stopping the drug.
Sorry to hear you are having a bad time and hope you will soon feel better
Hugs
Trysha
Yes we have stopped it. It's been about 2 weeks and at times the joint pain is unbearable. The neuropathy has me worried. I just hope these symptoms start waning soon. Just really do not know what to expect. It's a shame because it seemed to be working. Thank you for your reply and support.
Thanks again,
Rick
Thanks again,
Rick
Yes we have stopped it. It's been about 2 weeks and at times the joint pain is unbearable. The neuropathy has me worried. I just hope these symptoms start waning soon. Just really do not know what to expect. It's a shame because it seemed to be working. Thank you for your reply and support.
Thanks again,
Rick
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