My name is Gemma I am 34 and live in Norfolk England with my husband and 5 year old son.
I was diagnosed with crohns in 2004.
I as given very limited information by my then consultant and was put on Asacol which made me violently I'll so I returned to hospital and was told if I couldn't take that medication he wouldn't give me anything. I decided to seek out other advice and my gp referred me to a different hospital.
My new consultant was a very nice gentleman who experimented with different drugs pentasa ect finding they had the same sort of affect as the Asacol. This went on over a 4 year period with many courses of steroid along the way which after a bone scan they have discovered have caused the start of osteoporosis he then decided to give azathroiprine a try so I was placed on that and that was the last I ever saw of him I had 18 months worth of appointments cancelled by the hospital.
My gp decided to step in again and suggest I go back to my previous hospital as a new consultant had taken over.
On my first appointment I was assigned an IBD nurse which I have never had before and she is great.
All my previous test results had been lost so he has redone them all finding the disease has been more extensive than he had believed showing activity in both bowels plus a hiatus hernia. We continued with azathroiprine for 8 months at the highest dose he could but after needing 3 courses of steriod in such a short time he has decided for a change.
So here I am now currently medication free for 3 weeks ready to start methotrexate which to be honest terrifies me.
I have joined with the hope of finding people who have understanding of the disease I am surrounded by people who love me but it would be great to have people I could ask questions to and talk to with out feeling that might just be fed up with hearing about it
I was diagnosed with crohns in 2004.
I as given very limited information by my then consultant and was put on Asacol which made me violently I'll so I returned to hospital and was told if I couldn't take that medication he wouldn't give me anything. I decided to seek out other advice and my gp referred me to a different hospital.
My new consultant was a very nice gentleman who experimented with different drugs pentasa ect finding they had the same sort of affect as the Asacol. This went on over a 4 year period with many courses of steroid along the way which after a bone scan they have discovered have caused the start of osteoporosis he then decided to give azathroiprine a try so I was placed on that and that was the last I ever saw of him I had 18 months worth of appointments cancelled by the hospital.
My gp decided to step in again and suggest I go back to my previous hospital as a new consultant had taken over.
On my first appointment I was assigned an IBD nurse which I have never had before and she is great.
All my previous test results had been lost so he has redone them all finding the disease has been more extensive than he had believed showing activity in both bowels plus a hiatus hernia. We continued with azathroiprine for 8 months at the highest dose he could but after needing 3 courses of steriod in such a short time he has decided for a change.
So here I am now currently medication free for 3 weeks ready to start methotrexate which to be honest terrifies me.
I have joined with the hope of finding people who have understanding of the disease I am surrounded by people who love me but it would be great to have people I could ask questions to and talk to with out feeling that might just be fed up with hearing about it
