Oh god, the symptoms keep on coming. This has been going on for a while, but is getting significantly worse. When I go to bed, the pain is horrid. I usually sleep on my left side, but the pain is like a heavy gnawing pain which stops me sleeping. If I lie on my right side it is a bit better, although that seems to be where the pain is, but still pretty horrid. If I lie on my back it is better but struggling to sleep bolt upright. I am at the hospital Tuesday but was wondering whether this could be from strictures or inflammation. :confused2:
Pain horrendous at night
- Thread starter Daisy123
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It could be from a stricture yes, does the pain seem to get worse after you eat? Strangely, I find that the easiest way for me to sleep is by laying on my stomach, even back when I had a stricture.
You definitely need to mention this when you go to the hospital, they might want to order some imaging to see if there are any areas of narrowing.
What are your bms like at the moment? Are you getting any nausea or vomiting?
You definitely need to mention this when you go to the hospital, they might want to order some imaging to see if there are any areas of narrowing.
What are your bms like at the moment? Are you getting any nausea or vomiting?
Constant diarrhoea, like water, and no control. Part of it is not being able to eat much and no fibre whatsoever. I said to my doctor that it feels mechanical. I used to sleep on my stomach until I had a temporary ileostomy which put paid to that. I have had bloods today to check for inflammation but I am not convinced I am in a flare. All of my symptoms besides the pain I think are down to malabsorption and I am late for my B12 because I couldn't get an appointment until next week. I did have a CT which showed strictures, which didn't show up on the sigmoidoscopy, but I wonder whether that is because they are in my terminal ileum and not sigmoid colon. On heavy duty pain meds, but no way to lead your life.
DJW
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That's AWFULL. Sorry you're going through this. One thing the gut does when things slow down (strictures in my case) is to try and flush the system out. This leads to very watery D. You also get a lot of pain and bloating. Your abdomine can get hard.
If youre finding the pain intense, youre vomiting and cant even keep water in, ring the doc.
Hope this is sorted out quickly.
If youre finding the pain intense, youre vomiting and cant even keep water in, ring the doc.
Hope this is sorted out quickly.
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If the CT showed strictures then yes they could be causing this pain. Are you unable to eat because of the pain or because of nausea?
As a sigmoidoscopy doesn't go that far into the intestines it's more than possible that it just didn't go far enough to see the strictures. It's very unlikely that they were there on CT and gone by the time you had the scope. You might need an MRI or a colonoscopy to get a better look.
As a sigmoidoscopy doesn't go that far into the intestines it's more than possible that it just didn't go far enough to see the strictures. It's very unlikely that they were there on CT and gone by the time you had the scope. You might need an MRI or a colonoscopy to get a better look.
Unable to eat because of pain but also because I feel full, very odd. Yes, I have had a few cross words with my IBD nurse as my hospital notes and the letter they sent to my GP said I had a colonoscopy. I am very fed up, I do trust my GI but he seems to have dropped the ball with this. The nurse after the scope said that I would need either MRE or colonoscopy but the IBD nurse seemed very put out when I said this. I haven't much patience just because I am tired and in pain and the oramorph gives me weird dreams.
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That sounds to me like the pain is being caused by the strictures.
I understand you being fed up, communication is so important and hospital staff drop that ball too often. It's understandable that your patience is wearing thin, being in pain is physically and mentally exhausting and can really wear down your ability to deal with extra stress.
I hope this gets sorted out soon. I'd say that a colonoscopy seems the next logical step since the type of stricture you have will make a big difference in the treatment options.
I understand you being fed up, communication is so important and hospital staff drop that ball too often. It's understandable that your patience is wearing thin, being in pain is physically and mentally exhausting and can really wear down your ability to deal with extra stress.
I hope this gets sorted out soon. I'd say that a colonoscopy seems the next logical step since the type of stricture you have will make a big difference in the treatment options.
Had severe distension and bloating for the last couple of weeks. The IBS diet making things worse. Gluten free not helping. So rang my IBD nurses again. And emailed because I kept on missing the calls. Had a query about whether I could take a laxative when this happens. Spoke to the IBD nurse today. According to the CT scan I have multiple small strictures in my terminal and distol ileum. So it is strictures, which are the problem. But I said I was told they weren't there when I had the scope and she said, which I had thought, the scope didn't go far enough. So I have had weeks of thinking this was IBS and it was my fault. So back on low fibre diet again, yay will be gaining more bad fat. Appointment is end September, will also see dietician again at the same time and ask for a full colonoscopy and dilation. They don't want to do anymore surgery, because I keep on stricturing around the join. It is a matter of managing the symptoms.
