Pain Poll

[sawdust]

Do you believe that you have already experienced at some point in your life your "worst pains" associated with IBD, or do you believe that you have yet to experience them?

 

[tishbite]

I'm pretty sure post-surgery when I had a partial obstructions was some of the worst pain I have ever had in my life. I also couldn't eat. I hope it can't get worst then that but I am pretty sure I have experience my worst pain.

 

[tiloah]

I will never allow myself to be in that much pain again. I had no idea just how much pain I was in until I had the surgery. If it ever gets that bad again I will be in my GIs office demanding a second surgery and/or pain meds.

 

[Jennifer]

Worst pain I've had that was sort of disease related but not quite was when I woke up from my bowel resection and the nurses telling me that I needed to get up to pee (no cath and stomach muscles were shot). It hurt a lot to get on that toilet but I was not prepared for actually having to try to pee and that pain made me almost throw up. It was the pain from a sudden dry heave that was the worst and almost made me pass out (saw black for a bit but pulled myself together). I've never had any other pain like it from Crohn's or when I broke my arm.

 

[SarahBear]

I went ahead and said I think I've experienced the worst pain. It's been so bad that I was on the verge of passing out, in sweating, screaming, paralyzing agony. It can't get much worse or I'll just pass out.

I do, however, think I'll experience that again. After all, my doctor is currently keeping me unmedicated. I won't be surprised if I have a worse flare at some point in my life that causes more frequent pain, so in that regard I don't think I've seen the worst yet.

 

[Ki3]

Your making me nervous about surgery :S The worst pain ever was during a flare up, I have a high pain threshold and never complain, but I couldn't stop whining and my legs were kicking about I thought I was going to pass out :O

 

[ronroush7]

The worst pain I have experienced so far is when they tried to get me up and moving the day after my resection. But it got better.

2

 

[Rebreb]

I think vie experienced the worst the pain can get. When I saw my GI yesterday I told him I've had a heart attack and the worst pneumonia ever. And I would take the two of those combined any day over a flare up

 

[Daisy123]

The worst pain is during obstructions. I nearly passed out on a number of occasions

 

[theOcean]

The worst pain I ever experienced was developing my fistula during my worst flare. I became all backed up because of it too, and even after getting it drained it still hurt so badly for awhile that no pain medication or opiates could touch it.

 

[Absentminded]

Definitely. The worst pain I had was after my second surgery when I had internal bleeding. I spent a week with a rugby ball sized haematoma in my abdomen, and even with oramorph, zomorph and tramadol I was in agony. I then spent another 5 weeks in agony in hospital as they tried to work out how to get rid of it.

I never ever want to be in that much pain ever again. It was constant, no let up, no position that made it ease, just agony.

 

[sasz11]

The worst pain I was in was after a blockage. Which led to a perforated bowel. I was asleep and woke up screaming in pain. I must have annoyed everyone at the hospital. After 4 hours I was on shut down and not phone wasn't touching pain 3 hours later I was rushed in with emergency surgery. That 6 hours was the worst point and pain in my entire life.

 

[DougUte]

My worst pain was a blockage. I never want to experience pain like that again. I was so inflamed that a kernel of corn or a pea could have blocked me totally.

 

[Nym]

Worst pain would have to be pre-op fistula abscess. Morphine is wonderful ♪ The post-op wasn't too bad until seton removal / replacement. I went through that twice. Never went back to that sadistic ___.

Coming in a very close second is the time I had a binge on ginger. The pulp got clogged in the tract and had me in fear of another abscess developing. After a week of being unable to sit down I started doing salty sitz baths ..... all over within 24hrs. Phew.

 

[Asher]

I selected other because I have yet to experience any digestive pain from IBD. I never have cramps and if I do it's only mild and temporary until I go to the bathroom and then it stops.

Edit: actually I had some very bad cramping and has pains when I was in the hospital for a flair. I had a colonoscopy/enema and after it my belly was so bloated and full of pain that I was in tears.