Pains/Numbness in Toes, heels, hands or fingers

[Cozmo]

Has anyone experienced any pains or numbness in their toes, heels, hands or fingers?

I've been getting pains in my heels for a few years now, and I've also had numb toes when exercising.

Could this be related to Crohns?

I'm guessing a reflexologist would say that it could be as all parts of the body are connected to the feet.

I'd be interested to hear any of your thoughts or experiences.

:hug:

 

[SarahBear]

My feet tingle when my stomach hurts a lot. The worse the pain, the worse the tingle. I think in the past, with very severe pain, I've felt the tingling in my hands as well. When I exercise, my fingers tend to get very stiff and sore.

I think heatherb was talking about something similar not too long ago.

 

[David]

That sounds like peripheral neuropathy (click that). The most common cause for people with Crohn's disease is vitamin B12 deficiency. I see that you're on B12 injections every 3 months. For someone with Crohn's deficient in B12, every 3 months will usually not be often enough. When was the last time you were tested for B12 and what was the specific level? If you click through the peripheral neuropathy link, there are other causes listed as well.

 

[SarahBear]

Just noticed, it can also be a symptom of fibromyalgia.

Cozmo, is the pain and numbness constant, or how often do you experience it?

 

[Cozmo]

Just noticed, it can also be a symptom of fibromyalgia.

Cozmo, is the pain and numbness constant, or how often do you experience it?

Tahnks Sarahbear.

The pain is intermitent, pins and needles in toes when exercising and pain in heels when walking.

 

[Cozmo]

That sounds like peripheral neuropathy (click that). The most common cause for people with Crohn's disease is vitamin B12 deficiency. I see that you're on B12 injections every 3 months. For someone with Crohn's deficient in B12, every 3 months will usually not be often enough. When was the last time you were tested for B12 and what was the specific level? If you click through the peripheral neuropathy link, there are other causes listed as well.

Thanks David.

I'll speak with my Doctor about the level of B12 and maybe the possibility of increasing the injections. It's been a while since I was tested for levels in blood, although they were taking some blood samples last month at the hospital so it may have shown on that.

I've had a look at peripheral neuropathy and your right it does seem to be the case. Thanks for taking the time to share your knowledge with me :hug:

 

[CrohnsChicago]

I used to always get the tingling/numbness finger and toe sensation. I blamed it on anxiety (which i still believe is partly true) but it seemed to ease up even more after I learned of my B12 deficiency and started receiving monthly injections.

 

[heatherb]

Hi

Yes that's the sort of thing I was talking about SarahBear - like a weird sensation on the soles of my feet, sometimes hands.

I'll talk to the doc about B12 also. Thanks for the info David!

H

 

[ron50]

It is a permanent problem for me .I can't feel my legs from the knees down except when they decide to catch fire in bed at night and I have lost feeling in the fingers of my left hand. Mine is as a result of cancer and subsequent chemo but not staright away. A lot of cancer sufferes get severe peripheral neuropathy from the the platinum based chemo drugs. In my case they believe it was long term side effects of levamisole .'I have tried lyrica,endep and neurontin ,all with little or no help or relief. You can spend a lot of money and get very little relief. Ron.

 

[Susan2]

I feel for you, Ron. :hug:

One of my best friends has peripheral neuropathy quite badly but, in her case, they don't know what caused it. She is about at the upper limit of the drugs that she has been taking for the pain.

 

[Mary:)]

Does anyone know the optimum levels for B-12? My internest goes by the lab numbers but when I went to a neurologist once he tested my B-12 and although the number fell within the normal range he said it should be higher.

 

[Susan2]

Mary, there are a couple of threads about B12 in the Forum Wiki. HERE and HERE

 

[David]

I'll speak with my Doctor about the level of B12 and maybe the possibility of increasing the injections. It's been a while since I was tested for levels in blood, although they were taking some blood samples last month at the hospital so it may have shown on that.

Don't let them increase your injection rate without first getting your level tested. And when you get it tested, get the result and post it here and we can provide additional insight. It's very important to get your level tested on occasion so you can track it and correlate it with symptoms over time as well as monitor if the trend is up or down. This will allow you to optimize your dosage frequency over time.

 

[wild_one353]

try a b12 sublingual 500mcg in the form of cyanocobalamin. take daily, then try tapering off. then see if it gets better.

do you also get lightheaded or almost black out when rising from bed in the morning or after sitting for long periods?
is your sleep unrefreshing?

that could be b12.

 

[David]

Please please please get tested before supplementing yourself. It's critical that you know and track your levels. You might supplement and get just enough where you feel better and think it's working but still be deficient and are slowly getting nerve damage and other complications because of it.

 

[Cozmo]

I will get the B12 levels in my blood tested again. I have experienced sleep being unrefreshing, waking up and still being tired, although not so much lightheadedness when rising in the morning or after sitting long periods. The reason I first went to the doctor before getting diagnosed B12 deficient was because of tired/vacant spells I'd been experiencing.

 

[tots]

I read b12 should be between 200-900 but an adult will feel symptoms if they are under 500. So I started b12 along with my vitamin d(that was 18) I feel better from that, just want remission!!


lauren