Hi everyone!
Just come across this forum, seems so interesting and supportive, so I thought I would get your views on my little girl. Even just to chat to people who maybe have gone through the same situation would be nice!
So here's our story so far...
Daughter was born, and at 2 weeks old, started having mucus and blood in her poo. She was breastfed so we put it down to a dairy/soy intolerance as her older brother was diagnosed with this so I cut out all dairy and soy immediately. The blood and mucus didn't go away, even after 4 weeks completely free. So I started cutting out other allergens, but the mucus and blood persisted. She also started to become refluxy, and wasn't putting on weight.
We decided to change to formula, and was exclusively on Elecare from 10 weeks old. But still her poos didn't clear up, and the reflux got worse and sometimes had blood in it. She was put on Nexium at 12 weeks, a low dose of 10mg a day. She had at least one very dark green watery poo with fine black grit in it, and then a mucusy poo a day, like clockwork! We got referred to a paediatric gastroenterologist.
We saw the gastroenterologist within a couple of weeks and he suggested an increase to 20mg of Nexium a day, and to try Neocate formula. She had a reaction to the Neocate, diahorrea and vomiting and refused to drink it. So back onto the Elecare!
We were moving from Sydney to NZ in 8 weeks time, so the gastroenterologist suggested to book in for endoscopy and colonoscopy before we go, but he ended up having a cancellation when she was 17 weeks old. So she had them done with biopsies. From what he could see, there was only slight inflammation in her bowels, and a bit in her oesophagus, but nothing to explain the amount of blood and mucus in her poo.
All the biopsies came back fine, apart from the ones in her left/distal colon and rectum. All showed Paneth Cell Metaplasia. So because none of the other results came back with anything significant, the doctors are a bit lost. He thinks it could be the start of something brewing, namely IBD.
He put her on Flagyl, as he decided it was too risky for a sulphur treatment in case she had a reaction so young, and there was another medication which I can't remember the name off, but it would have been impossible to give it to her because of the form it came in (pill I think). So decided on the Flagyl and after 4 days of being on it, she did a mustard coloured, peanut butter textured poo! I couldn't believe it! It seemed normal! But that lasted a week and a half and we were back to the mucus.
We moved to NZ a couple of weeks after starting Flagyl, and the GP here has been very casual about referring her to a gastroenterologist. It's very frustrating! He even tried to tell me that Flagyl is not used to treat IBD, which I know isn't true. So now just waiting to hear back from the referral system as to when we can see a gastroenterologist.
A very long story, I'm sure yours are all very long too!! Any insight or wise words would be greatly appreciated
Just come across this forum, seems so interesting and supportive, so I thought I would get your views on my little girl. Even just to chat to people who maybe have gone through the same situation would be nice!
So here's our story so far...
Daughter was born, and at 2 weeks old, started having mucus and blood in her poo. She was breastfed so we put it down to a dairy/soy intolerance as her older brother was diagnosed with this so I cut out all dairy and soy immediately. The blood and mucus didn't go away, even after 4 weeks completely free. So I started cutting out other allergens, but the mucus and blood persisted. She also started to become refluxy, and wasn't putting on weight.
We decided to change to formula, and was exclusively on Elecare from 10 weeks old. But still her poos didn't clear up, and the reflux got worse and sometimes had blood in it. She was put on Nexium at 12 weeks, a low dose of 10mg a day. She had at least one very dark green watery poo with fine black grit in it, and then a mucusy poo a day, like clockwork! We got referred to a paediatric gastroenterologist.
We saw the gastroenterologist within a couple of weeks and he suggested an increase to 20mg of Nexium a day, and to try Neocate formula. She had a reaction to the Neocate, diahorrea and vomiting and refused to drink it. So back onto the Elecare!
We were moving from Sydney to NZ in 8 weeks time, so the gastroenterologist suggested to book in for endoscopy and colonoscopy before we go, but he ended up having a cancellation when she was 17 weeks old. So she had them done with biopsies. From what he could see, there was only slight inflammation in her bowels, and a bit in her oesophagus, but nothing to explain the amount of blood and mucus in her poo.
All the biopsies came back fine, apart from the ones in her left/distal colon and rectum. All showed Paneth Cell Metaplasia. So because none of the other results came back with anything significant, the doctors are a bit lost. He thinks it could be the start of something brewing, namely IBD.
He put her on Flagyl, as he decided it was too risky for a sulphur treatment in case she had a reaction so young, and there was another medication which I can't remember the name off, but it would have been impossible to give it to her because of the form it came in (pill I think). So decided on the Flagyl and after 4 days of being on it, she did a mustard coloured, peanut butter textured poo! I couldn't believe it! It seemed normal! But that lasted a week and a half and we were back to the mucus.
We moved to NZ a couple of weeks after starting Flagyl, and the GP here has been very casual about referring her to a gastroenterologist. It's very frustrating! He even tried to tell me that Flagyl is not used to treat IBD, which I know isn't true. So now just waiting to hear back from the referral system as to when we can see a gastroenterologist.
A very long story, I'm sure yours are all very long too!! Any insight or wise words would be greatly appreciated
