- Joined
- Sep 10, 2012
- Messages
- 98
Hi guys,
I'm going to Stanford GI clinic on Nov. 7th to get a second opinion on whether I have Crohn's, and then to their Rheumatology clinic in December for evaluation of Spine and Joint problems (possible Ankylosing Spondylitis or Enteropathic Arthritis).
In the mean time though, I'm getting concerned about these weird feelings I get in my feet, sometimes hands and fingers, and a couple of times lips. I guess it would be considered Peripheral neuropathy from the description I read online. My feet feel heavy, and like when you've been walking through the snow and your socks get wet, your feet get so cold they hurt and feel numb. It's not horribly painful, but just annoying and weird. In my hands it can feel hard to make a tight fist and there are patches where the skin feels sore or like it's been lightly burned. This started when I first got acutely ill 2 months ago. Somedays I thought it had gone away and then it would come back. Could I be low on electrolytes even though I don't have diarrhea or vomiting. When I went to the ER when this all started they said I was dehydrated, but I didn't understand why when I was drinking electrolytes and lots of water, and again had no vomiting or diarrhea. How else could someone be dehydrated? I'm not sweating a lot, but I do get these waves of feeling really hot on and off (maybe hot flashes, I'm 50), and I get a bit sweaty but it doesn't last more than a few minutes. I've mentioned to all the doctors I've been seeing and no one seems very concerned. My B12 was low at first but has come up to a high level with supplementation. Vit D fluctuates, it was low (23) a few weeks ago, but I've been taking more now. My magnesium, potassium, and sodium were all normal. When I mentioned to my GI doc last week that I might be nutrient deficient he said no, your blood tests looked fine. But I'm wondering if I should get my B1, B3, B6, Vit E, and Zinc tested. If I'm OK with the others, would I automatically be OK with these, or could someone only be deficient in one nutrient when the others are fine? I also wonder if I should get tested for Lyme's disease. The first Rheumatologist didn't thin I needed to be because of where we live in Monterey, CA area and that I haven't had a known tic bite. But still, maybe it needs to be ruled out. Well, I'll wait to hear what you all think. I could call my primary doctor and ask for a lab requisition for these nutrients and Lyme's. I have a feeling it would be pointless to go see a neurologist before I have the pillcam at Stanford to check for Crohn's. I don't think I'd want to take any meds for the PN at this point anyways so it doesn't mask any Crohn's signs and symptoms. But hopefully there's no permanent nerve damage going on.:blush:
I'm going to Stanford GI clinic on Nov. 7th to get a second opinion on whether I have Crohn's, and then to their Rheumatology clinic in December for evaluation of Spine and Joint problems (possible Ankylosing Spondylitis or Enteropathic Arthritis).
In the mean time though, I'm getting concerned about these weird feelings I get in my feet, sometimes hands and fingers, and a couple of times lips. I guess it would be considered Peripheral neuropathy from the description I read online. My feet feel heavy, and like when you've been walking through the snow and your socks get wet, your feet get so cold they hurt and feel numb. It's not horribly painful, but just annoying and weird. In my hands it can feel hard to make a tight fist and there are patches where the skin feels sore or like it's been lightly burned. This started when I first got acutely ill 2 months ago. Somedays I thought it had gone away and then it would come back. Could I be low on electrolytes even though I don't have diarrhea or vomiting. When I went to the ER when this all started they said I was dehydrated, but I didn't understand why when I was drinking electrolytes and lots of water, and again had no vomiting or diarrhea. How else could someone be dehydrated? I'm not sweating a lot, but I do get these waves of feeling really hot on and off (maybe hot flashes, I'm 50), and I get a bit sweaty but it doesn't last more than a few minutes. I've mentioned to all the doctors I've been seeing and no one seems very concerned. My B12 was low at first but has come up to a high level with supplementation. Vit D fluctuates, it was low (23) a few weeks ago, but I've been taking more now. My magnesium, potassium, and sodium were all normal. When I mentioned to my GI doc last week that I might be nutrient deficient he said no, your blood tests looked fine. But I'm wondering if I should get my B1, B3, B6, Vit E, and Zinc tested. If I'm OK with the others, would I automatically be OK with these, or could someone only be deficient in one nutrient when the others are fine? I also wonder if I should get tested for Lyme's disease. The first Rheumatologist didn't thin I needed to be because of where we live in Monterey, CA area and that I haven't had a known tic bite. But still, maybe it needs to be ruled out. Well, I'll wait to hear what you all think. I could call my primary doctor and ask for a lab requisition for these nutrients and Lyme's. I have a feeling it would be pointless to go see a neurologist before I have the pillcam at Stanford to check for Crohn's. I don't think I'd want to take any meds for the PN at this point anyways so it doesn't mask any Crohn's signs and symptoms. But hopefully there's no permanent nerve damage going on.:blush:
if it were me and I was concerned about anything at this point I would want to get it checked out. I wish you all the best sweetie, and I hope everything goes well when you see the GI in Stanford. :ghug:
