Please read and any advice will help

[Monkeyboy1975]

Hello forum my name is Karl and i'm new to here i'm 5ft 5in and now weigh 7st 10lb. back in november 2001 i weighed 8st 10lb I'm greatful for any advice. My story begun back in 2007 when i had blood test to confirm helicobactor it was positive and was treated not sure if this has anything to do with this. Since then i have never felt the same but since December 2011 i have had lower right abdominal pain feels like a blockage, loss of appetite, insecure, not able to concentrate, weight loss, night sweats, lots of mucas in my stools, no constipation or diarrhea but fatigued and seem tired most of the time. When the pain is at its worst i feel so ill i unable to eat one meal a day and try to stay in bed to sleep. Back in april 2012 one of my doctors said i had IBS and game me cocodomal and mebeverine. This did not take any of my abdominal pain away so i was prescribed hyoscine which too didn't relive any pain. I went back to my doctor in may 2012 and he made an appointment for an endoscopy. While waiting for my endoscopy date to arrive i had to visit the A&E department because the pain was so servere. The emergency doctor had no idea why i was being sent for an endoscopy and gave me tramadol and advise me to see my doctor again and requested i have an ultra sound scan. I made an appointment with my regular doctor and he said i didn't need an ultra sound and just wait for my endoscopy he gave me more tramadol which take little pain away but not all. Finaly i went to my endoscopy appoinment on June 6th 2012. The specialist told me it was not an endoscopy i needed but a CT scan and an colonoscopy. I'm happy i got my CT scan date which is the 9th of this month but no colonoscopy date as yet. The other doctor in my surgery has been fantasic he is sure its crohns even though my bloods came back clear and no infection in my stools. Has anyone else got same symptons without consipation or diarreha?

Thanks for reading

 

[Grumbletum]

Hello there and a big warm welcome Yes, I had the same symptoms ( plus a couple of others ) and no D or constipation. Unfortunately, when you don't display all the classic ones it can take a while to get on the right diagnosis track. But it sounds like you're getting there and have at least one doctor fighting your corner.
My path to diagnosis was ultrasound, to barium follow through to CT scan. Then later, a couple of colonoscopies.

 

[Artificial]

Hi Karl,

When I first started to get ill I had horrifically bad pain, tiredness etc but I didn't have constipation or diarrhoea at all. I was also told it was IBS and tried mebeverine with no luck.

Hope all goes well with the CT and you get the colonoscopy date through soon

x

 

[StarGirrrrl]

Hi Karl, i'm sorry to hear things are rough for you at the moment.

I'd chase up the colonoscopy appointment, they should have at least booked you in by now.

IBS diagnosis should only be given with a range of tests coming back normal and no "red flag" symptoms, GP's are certianly not equipped to glance at you and say "IBS".

Weight loss for one doesn't occur with IBS

 

[Monkeyboy1975]

Went back to A&E this morning after a really bad night of pain's and burning sensation and was taken straight through at 9am this morning. I was given morphine for the pain but it still didn't settle down on a scale of 1 to 10 i was about 3 in pain. The doctor today said its likley i have IBD. I also rang the booking clinic to see when my colonoscopy was going to happen and was told if i travel to the next town i can have it done Thursday 5th July. I will update my profile as soon as i find out what i have. Thanks again for the reply's it means alot to me.

 

[scottsma]

Hi Karl,It can seem like a lifetime when you're not well and waiting for a diagnosis.Hopefully everything will move along quickly now and you'll get the meds you need.You're on the right forum for support and advice so keep us posted.All the best for Thursday.Try not to worry.

 

[Monkeyboy1975]

Been for my colonoscopy today but all appears fine i'm starting to get frustrated now. I wish i could say all my abdomen pain's are just all in my head but the weight loss, Pain's, Loss of appetite and mucas tell me otherwise. Thanks again for all the support x

 

[scottsma]

I've read about similar symptoms on this forum lots of times,so hopefully someone will soon give you the support and advice you need.Until then,one step at a time eh ?Keep posting and feel free to have a moan and a rant,it does you good to get it out.(the frustration,I mean)

 

[Monkeyboy1975]

Thanks scottsma i just wish some doctors were just as understanding. I feel for everyone going through IBD's i've only had my problems a few months and my symptoms seem very mild to other peoples symptoms.

 

[scottsma]

Yes,my symptoms are pretty mild too,compared to others on this forum,Although I do have flares once in a while I feel like a fraud when I read some of the posts.I used to think I was quite poorly before.I hope you have some support at home at least.Toodles.

 

[Monkeyboy1975]

It does help having lots of support on this site and i have lots of support at home and i appreciate all the support from everyone. I have been given a sick not to cover me for three weeks for the time being untill i get a diagnosis if a get one of what is wrong with me. I have felt much better over the last few day's i have just had a few night sweats and a dead right arm feeling for the last few weeks but i put that down to working on a nursing unit and moving and hanldling equipment. My right arm is a mess anyway because when i went to A&E last monday my vein colapsed from all the test's i've had done. But that was noting compared to the 9 out of 10 abdominal pain i was in at the time. I hope everyone is well and will post an update monday 9th july after my ct scan. Have a great weekend all x

 

[Monkeyboy1975]

Oh forgot to mention (sorry for too much info) but i have a small skin tag next to my anus. I knew i had it but did not link it with anything it was my GI who noticed it too but he didn't say anything about it. Any thoughts anyone? Thanks x

 

[IJP]

I hope the pain has calmed down and I hope that you will soon get to the bottom (sorry no pun intended) of what is wrong. No matter what you face there will always be people to help both medically and more importantly emotionally. Crohn's effects everyone differently, but when diagnosed there are many options to make life easier, and it does get easier.

Take care of yourself Monkey Boy.

 

[Thermo]

I have primarily all of your symptoms and I have not had diarrhea for 10 years, Crohns manifests itself in different symptoms. I get extreme pain due to the burrowing of fistulas and inflammation but I have text book BM everyday so each case is different and that’s why it's so tough to diagnose. The worst part is as the disease progresses through the years you get different symptoms and issues, everyday you wake up its a new thing that is different than yesterday it seems. Just hang in there they will figure out what exactly is going on, sometimes it’s a long painful journey just to diagnosis.