Possible Crohns?

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Joined
Mar 7, 2011
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Hey you guys! :thumright:

I've been reading some of your posts for the last half an hour and there is some inspirational stuff in this forum. There's also a lot of knowledge, and I hope I can get some opinions from you...


My problems began approx 2 years ago. I was fairly healthy in general, no major problems, but I began to get short stabbing pains and aches up my back passage over the course of about 2 wks. My GP thought it was a prostate infection, gave me some antibs and sent me on my way. The pains stopped and I thought no more of it.

Around 6 months later I started to become constipated. This grew increasingly worse for a year, until regular laxatives did not help. I tried inceasing my fluids, adding more fiber, switching my diet etc. Dulcolax and
Senna laxatives did not help. My stools were mis-shapen, very thin like string or ribbon-shaped. I can remember not being able to use the bathroom for 2 weeks.

At this point I lived abroad without health insurance. When I returned to the UK I had a colonoscopy and a virtual colonoscopy. Both showed no problems.

Since then I left the UK and the supervision of my gastroenterologist. My constipation is not quite as bad as it was but I still haven't had a regular bowel movement for 2 years. If my stool is anything like solid it is accompanied by some slight bleeding. For the last 6 months I have had pain just under the bottom of my left ribcage. Esp after eating and sometimes not after eating. I also have outbreaks of whitehead spots on my arms, the tops of my legs and my abdomen. I have never had these before. The strangest and most recent thing has been that my gums have receded very fast over the last 3 months, and I have been getting really bad aches in my gums and jaw, with a bitter taste in my mouth. Strange. I've also begun to feel very feverish and weak, to the point that I'm finding it hard to function in my everyday life.

There's so much knowledge n this forum and I know that everyone's symptoms are unique so I was hoping someone might be able to relate to or identify with what I'm saying. It's reached the point where it's really getting on top of me and I feel like I've had enough, but then I read what some of you have been through and I just admire your heart. I'd appreciate any advice so much.
 
Hi! Is it possible? Sure. I know medical care is cost prohibitive however you really need to go to the doctor. Now especially since you say you are weak & finding it hard to function. Gum disease is indicative of many, many things. Please go to the doctor. Yeah, could be Crohn's, could be something else.
Be careful,
Michele
 
Welcome! I am sorry you've been having such trouble. Something is obviously going on, and constipation can be a symptom of Crohn's. But it can be a symptom of many other things, as well. You did the right thing going to the doctor and having tests done. And it is good that everything came back normal, but that doesn't leave you with any answers, does it? Just keep being persistent with your doctor and get a second opinion if needed. Good luck!
 
Hi there :bigwave: welcome! I have had crohns over 20 years and many times a scope was "clear" of course they dont tell you they cant get past a certain point. I would say narrowing sounds to be the cause but I am not a doctor, having a small bowel follow through and or both an endoscopy barium follow thru. That was how I got dx'd after a year of agony. Hope you get answers soon, Keep us posted!
 
Thanks you guys!


The strange thing re my dental problems is that I don't have any gum disease. My gums are in pretty good condition, they just receded fast and ache like crazy. My dentist couldn't find the cause of it but suggested he thinks is symptomatic of an overall health problem.

Thanks, I always wondered how high the colonoscopy went, as the pain that I experience is underneath my bottom rib on the left side, so quite high up I guess. My GP in the UK was quite unhelpful, he just said that he was diagnosing me with IBS after the colonoscopy and that was it.
 
I don't know about everyone else but I believe IBS is real but way over diagnosed. It just doesn't sound right to me.
Glad no gum disease, that is a bit of good new, huh? Still scary about your gums receding though. I think your dentist is right. Please seek out a good GI where ever you are & get it sorted out.
Good luck to you,
Michele
 
I have Ulcerative Colitis and a lot of your early symptoms, irregular stools when you manage to go and pain on the left side under the ribs along with the general lower pain across the abdomen.

I didn't manage to go to the toilet properly for 8 weeks before I ended up at the doctors and was passing mucous and blood by then. The colonscopy was agony for me so they said they didn't get far but they took biopsies and diagnosed UC. Maybe you should see about getting more tests.

I had very bad eyes problems and a skin rash like eczema but nothing regarding the gums. It could be a deficiency and I would suggest you go back and get the doctors to take it more seriously. All the best and I hope they can do something for you
 
I’m so sorry for everything you are going through. It must be so scary to have your gums recede like that! Whatever is going on, I hope your Dr can get it under control soon.
Sorry I don’t have any advice but welcome to the forum!
 
Hello there,
Welcome to the board!<3 I am greatly sorry for all your problems, but I am relieved you do not have gum disease, that would be dreadful! When I started to be diagnosed with Crohn's, a few of my teeth were rotting and my gums were infected too, I had a lot of pain and my dentist exclaimed that it could be from the bowel inflammations just spreading. Otherwise I suffer with constipation and bloating, unlike most Crohnies who have diarrhea dilemmas. Its really important to have a good doctor, hope you will find one that can help!Best of luck and wishes to you!

kisses, Aya
 
Thanks for giving me such a warm welcome guys.

I find the pains in my gums and jaw strange. I guess they could be unrelated to my bowel problems but it'd be a coincidence because I've never even had a filling in my life. I have a really bad taste in my mouth too, sour and metallic. My face is constantly flushed with it.

Lord knows...!
 
Hello n8an and welcome!

Feverish & blood in stools - There are NOT good signs and should ALWAYS signal you to see a doctor!

Don't take IBS as a diagnosis as there is no bleeding in IBS. Keep screaming until you get help. Go to the ER if you need to.

Gum issues can be related to Crohn's.

I am worried for you - can you get back to the UK for some medical care???

Please do not wait too long!!

- Amy
 
I actually went to the ER with pain under my left rib yesterday morning. Dr did bloods, basic XRay of abdomen, urine test and discharged me. I then found out that my international insurance won't cover me because of a preexisting condition. I feel pretty low. Seems like whatever is going on with my health is gradually taking over my life.

I can't tell whether a low grade infection in my jaw is causing me pain, fever, spots/rashes, and bowel problems. Or whether it's a longterm bowel problem causing me fever, spots/rashes, gum problems and pain in my jaw. Not sure which way round it is...

But I want to ask you guys something. I had a virtual colonoscopy CT scan, sigmoidoscopy, blood work, stool sample, and colonoscopy with biopsies, all last year. If I had CD, wouldn't those tests have shown it?
 
That sucks about the insurance issues! Ugh!

Unfortunately a lot of people have "clean" scopes and bloodwork - nothing to show Crohn's, but something is definitely wrong! Have you had any test on your small intestine - small bowel follow thru or pill cam? If that's where the problems are, colonoscopies or colon CT won't show it.

So sorry you are going thru this. Where do you live now? Any chance of you getting back to the UK long term so you can get yourself taken care of?

- Amy
 
This sounds so much like what i went through before I was diagnosed. I had alot of the same symptoms and like you my teeth were hurting so bad that i had to get two pulled out. The doctors kept saying that it wasn't crohn's and that everything would be fine but it was just getting worse by the day. Finally I met a doctor who reffered me to a specialist who after many tests, diagnosed me with crohn's disease. Don't stop fighting and keep pushing the doctors until they help you cause even though it may not be crohn's there is for sure something going on. All the best luck to you and hope you find out what is going on soon :). My heart goes out to you!:goodluck:
 
I am going to be 100% honest with you guys. I feel so low...

10 years ago I was diagnosed with CFS and I gradually managed to overcome it during the last 2 years. My wife and I moved to the Carribean 3 years ago because we felt it would be of benefit to my health. It was. In the last 3 years I have managed to rebuild my life. I have just returned to work for the first time in 8 years and I love it so much. Now I am coming to terms with the fact that my life has been smashed by illness again. I have to return to the UK again because of a health condition and I can hardly bring myself to accept it. I'm too ill to work and because I have been out of the UK for so long I won't be elligible for sickness benefits.

In addition to that, my Dr in the UK knows that I have been away and last time almost refused me treatment. I'm flying back to the UK on Sunday.

I got a glimpse of a normal happy life for the last 3 years and now I almost wish I hadn't. The worst aspect of this is what I am doing to my wife, saddling her with debts and stress. She's my angel. We gambled on a happy life for the first time and we lucked out. It almost makes me wish I wasn't around to burden her.
 
I am going to be 100% honest with you guys. I feel so low...

10 years ago I was diagnosed with CFS and I gradually managed to overcome it during the last 2 years. My wife and I moved to the Carribean 3 years ago because we felt it would be of benefit to my health. It was. In the last 3 years I have managed to rebuild my life. I have just returned to work for the first time in 8 years and I love it so much. Now I am coming to terms with the fact that my life has been smashed by illness again. I have to return to the UK again because of a health condition and I can hardly bring myself to accept it. I'm too ill to work and because I have been out of the UK for so long I won't be elligible for sickness benefits.

In addition to that, my Dr in the UK knows that I have been away and last time almost refused me treatment. I'm flying back to the UK on Sunday.

I got a glimpse of a normal happy life for the last 3 years and now I almost wish I hadn't. The worst aspect of this is what I am doing to my wife, saddling her with debts and stress. She's my angel. We gambled on a happy life for the first time and we lucked out. It almost makes me wish I wasn't around to burden her.

I definitely know how this feels, and I'm going through the same thing. Not knowing is the worst, especially when you expect the worst. I've been suspected of CFS because it runs in my family (along with FMS, IBS, IBD, blood disorders, heart disease, valve malformations, and other autoimmune disorders!), and I have a lot of the symptoms.

I've been diagnosed with MVPD/S — "mitral valve prolapse dysautonomia," which feels like utter sh!t, and makes actual diseases hard to identify because I always think, "Well, it's just my dysautonomia". It makes it impossible for me to work most jobs, on top of having thyroid disorder and a severe blood clotting disorder that led to a two-foot long clot in my left leg.

Even manageable diseases can totally drop your quality of life, and it's sad. I do know it generally gets easier over time because we naturally adapt. There's something to be said for biological perseverance, and I hope you'll get there sooner than later with a quick diagnosis.
 
I definitely know how this feels, and I'm going through the same thing. Not knowing is the worst, especially when you expect the worst. I've been suspected of CFS because it runs in my family (along with FMS, IBS, IBD, blood disorders, heart disease, valve malformations, and other autoimmune disorders!), and I have a lot of the symptoms.

I've been diagnosed with MVPD/S — "mitral valve prolapse dysautonomia," which feels like utter sh!t, and makes actual diseases hard to identify because I always think, "Well, it's just my dysautonomia". It makes it impossible for me to work most jobs, on top of having thyroid disorder and a severe blood clotting disorder that led to a two-foot long clot in my left leg.

Even manageable diseases can totally drop your quality of life, and it's sad. I do know it generally gets easier over time because we naturally adapt. There's something to be said for biological perseverance, and I hope you'll get there sooner than later with a quick diagnosis.


Thanks, I really appreciate your kind words. Wow, you're really being tested at the moment, I feel for you. That sounds like a medical nightmare, esp dysautonomia masking the symptoms of other illnesses, it basically gives doctors a license to palm you off with the line: "it's probably just your dysautonomia".

Recently I've actually found myself staring at regular people and thinking to myself that they don't know how lucky they are. I'm not the jealous type, and I'm not half as ill as some of the people on here, but even I find myself doing that.
 
I need to ask you guys something about health insurance... I'm from the UK so I know very little about it. Infact the concept of private healthcare is totally foreign to me (and unacceptable, but I'll save that for another discussion!!!). :ymad:

I need a local health insurance policy for where I currently reside in the Carribean. So far I haven't been diagnosed with CD/Ulcerative Colitis, but from my symptoms, and from what friends in healthcare have said to me off the record, I think that that diagnosis could just be a question of time. Possibly even within the next month. I had a colonoscopy and a virtual colonoscopy CT scan when I was last in the UK in 2010, and my GP diagnosed me with IBS.

If I apply for a health insurance policy now and I'm honest about the tests that I've had and the IBS diagnosis when I'm applying, but then I get diagnosed with Crohns soon after that, will my policy be cancelled on the basis of a preexisting illness?

OR, if I don't add the details about my colonoscopy and bowel problems, do health insurance companies have the right to access medical records in other countries?

Like I said, I'm naive when it comes to private healthcare so i'd appreciate any advice at all. :confused2:
 
I'm not well versed on private health insurance either but I think it will very much depend on the policy and you may end up with one with higher premiums. Look into a few and compare them
Some have a 'moritorium' clause which usually means they accept pre-existing conditions as long as you have not needed treatment for, say, 2 years

However, that may be a moot point as IBS is not IBD

I think you're safest to declare your previous tests for some digestive discomfort where you were found to have IBS. But, as IBS is not IBD I would think that the IBS could not be considered as a pre-existing condition if you are then diagnosed with IBD

Worth checking :)
 

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