Possible Remicade side effect

[amyh]

So I just finished my induction doses of Remicade and noticed two side effects. First is my hair falling out. Doctors said it's not a common side effect and kind of brushed it off (probably along with some of my hair).

Second is the bone pain. Especially in my thigh bone above the knee. When I squat down and get back up, it really hurts. I've only noticed these things after the infusions started. Doctor is ordering a blood test to test for lupus. If it's positive, I have to go the humira route and steroids. yuk. I went into remission BEFORE I even started remicade on my own. But since I have a stricture. doc wants to keep me on. I really just want to get off and stay off.

Anyone hear of these side effects?

 

[kiny]

this girl had severe reaction and hair loss from it: http://www.crohnsforum.com/showthread.php?t=30421

don't know why they are saying humira "if" the reaction is from the remicade, humira does the exact same thing as remicade, likelyhood of having a reaction to humira if you have one to remicade is really high

another thing why I think this decision is weird is because remicade could be involved in stricturing, they don't know for sure at this point in time, but remicade might promote fibrosis, the reason is because of how stron remicade is, any unregulated wound healing can cause fibrosis, and remicade can induce very fast healing, which is fine for someone who doesn't have stricturing, but could be bad for someone who does