Post-Op Proctocolectomy Would do it again

[cleuger]

This should have been done a long time ago. I've been sick for a long time so glad its done now. My one complaint is I still have the drain tube down my
throat. I don't like being confined in the hospital it sort of puts you at their mercy but I have no regrets I would do again. I'm still in the hospital now not happy about how these nurses are caring for me I've been her since Thursday I have not eat or drank anything except a few ice chips I still have catheter in an still have the NG tube in. Yesterday their care was so bad my arm swelled up really bad the reason why is because the IV was not put in properly. The fluids from my IV. Now my IV is dripping Lovely!!! other then that I have very little pain thanks to pan meds and strangely I have no pain in my rectum I mean 0 and they did remove it.

 

[Susan2]

Did I see on another thread that your stoma has started working?

It's great to hear that you are so positive now because I know that you (and your parents) had a lot of fears before your op.

I would have thought that they would, at least, be starting you on some fluids by now. I have found that weekends are often a problem, however, because some of the surgeons and other specialists don't visit and the nurses won't do anything without a order from them.

 

[cleuger]

Well as much as I would have liked to have my parents support its not possible I'm 50 years old and they are both passed away.my stoma work right away but I think you may be talking about someone else :sun::Flower::Flower::Flower:

 

[DJW]

Hope they take the tubes out soon so you can get mobile.

I'm encouraged by your repots.

:thumleft:

 

[Susan2]

I'm so sorry; I do apologize :redface:

 

[UnXmas]

I'm sorry you've not got good nurses. I always seem to have lovely nurses, and it makes all the difference. That said, putting IVs in incorrectly is not, in my experience, an uncommon or particularly serious mistake. A few times I've had a nurse flush an IV, and it will sting instead of feeling cold, which means it's not in correctly. Apparently I have "bad veins", so I get this a lot, as well as sometimes being difficult to draw blood from. They should correct it right away though.

On your other thread I think you mentioned your NG tube was to drain the stomach? Or are you being fed by the NG?

They will probably start you on liquids then pureed or soft foods over the next few days.

I'm glad to hear you're pleased the surgery has been done! Being in hospital is always difficult, you're so dependent on the nurses and doctors. But as you recover, you'll be able to do more and more things for yourself, until you're ready to go home, which hopefully won't take too long!

 

[cleuger]

Thank you so much for your response yeah I don't do well in hospitals I loose my independence and that makes me cranky this IV has came out 2 times and yesterday started loosing fluid and blood on the bandage more concerned about what I'm suppose to taking and loosing it under the bandage I have no regrets at all about this surgery I would do again if I had too :thumright:

 

[semicolon_club_member]

Hey there. Could you please share a little bit about what led up to your surgery? We will soon be facing a similar surgery, it seems, but the doctor also mentioned a continent ileostomy as an option. The Crohn's has significant rectal involvement, with scar tissue and narrowing to the size of a soda straw and quarterly dilations to keep it open. We are trying to make sure we understand all the options for moving forward and the positives and negatives of each.

 

[UnXmas]

Thank you so much for your response yeah I don't do well in hospitals I loose my independence and that makes me cranky this IV has came out 2 times and yesterday started loosing fluid and blood on the bandage more concerned about what I'm suppose to taking and loosing it under the bandage I have no regrets at all about this surgery I would do again if I had too :thumright:

IVs do tend to do tend to do that.

Are they letting you eat yet?

You'll hopefully appreciate the surgery even more once you're home and things are back to normal.

 

[UnXmas]

Hey there. Could you please share a little bit about what led up to your surgery? We will soon be facing a similar surgery, it seems, but the doctor also mentioned a continent ileostomy as an option. The Crohn's has significant rectal involvement, with scar tissue and narrowing to the size of a soda straw and quarterly dilations to keep it open. We are trying to make sure we understand all the options for moving forward and the positives and negatives of each.

Hi, I have a permanent ileostomy and am very pleased with it. I used to have a lot of rectal problems, but have had none since the stoma. If you have any specific questions, just ask - start your own thread too if you like.