Post Resection Surgery Upate

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Feb 8, 2008
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Hi everyone. I told you I'd post my experience of resection surgery once i felt up to it. Well today's the day. The surgery was a Ileocaecal resection. This is pretty long winded account but I'd thought I'd get in alot of detail for those of you, like me prior to my surgery, who want as much info as possible on personal experiences.

I had the surgery 2 weeks ago today. Once i got to the hospital i had the normal pre-op prep. i.e. blood taken, vital signs taken, chat with surgeon and the anesthesiologist etc. The anesthesiologist discussed with me what kind of pain relief i would prefer post-op. He gave me the choice of epidural or morphine via a manual clicker. I went for the morphine.

I was called early as they had a cancellation and so i prepared. Gown on, anti-embolism socks on. I was taken down to theater soon after. There's something strange about that journey down to theater, it's a bit lonely and gives you too much time to think about what's about to happen. The good thing is that it doesn't last long and very soon after i was out for the count.

I woke up in recovery and can't really remember too much. I was eventually taken up to my room. The whole process of surgery and recovery room took about 4 hours i was told. The resection had been a success, i was told. About 8 inches of bowel was removed along with my appendix. The surgeon also found that i had a Meckel's Diverticulum which is a rare congenital abnormality of the small intestine (google it for more info). He took that out too. The surgery was done the old fashion way, the size of the inflammation and stricture meant it could not be done laproscopicaly. I has a cannula in my arm that was attached to a fluid drip and the morphine clicker. I also had a catheter inserted, you know where, into my bladder.

I was told i could drink after 1 day and eat as soon as i felt up to it. I think it was about day 3 or 4 before i tried to eat anything though. The catheter was removed after about 3 days, not an experience i would want to repeat in a hurry. They had me up from the bed by the second day and walking, all be it slowly, by the third day. The pain was terrible when i tried to get up from the bed or chair, it pretty much brought me to tears it was that bad. By this time the morphine had been taken away and i was on tablet pain relief and prednisone for the remainder of my stay. The prednisone would live up to its terrible reputation later in the week but more of that later.

I was released after 6 days (Thursday). The scar was checked and looked fine prior to me being released and i was told to come back in 4 days to have the staples removed. I was given strong pain relief to take home and told to stop the prednisone steroids. And so i went home. A day past at home and the pain gradually increased and i started to notice the area around the scar dressing became red and my abdomen became inflamed on one side. On the Friday evening the dressing was stained and i began to smell something quite disgusting coming from the wound. I decided to change the dressing and upon its removal i saw that there was discharge coming from in between 2 of the staples. What was coming out smelt of nothing you can imagine. It was time to go to A&E (ER). As you have probably already guessed, the wound had become infected. The doctor in A&E layed me down and what happened next i would not wish on anyone. He removed several more staples and then started squeezing the area around the wound. I was told later that about 3 coke cans of pus came out, no i was not looking to see for myself, the smell i could not get away from however. I doubt i'll smell anything worse in my entire life. I was eventually back in the ward on IV antibiotics with stoma bag placed over the open part of the wound to collect any draining pus. I spent 4 more day in hospital waiting for the drainage to get under control and the results of swabs to come back. Luckily the infection was of the outer would and not of the bowel resection itself.

The surgeon told me that with an infection this bad most people would have had a high fever and the wound would have been inflamed and red whilst i was still in hospital the first time round. I however had none of these symptoms whilst i was recovering from the resection surgery. It was all down to the prednisone. They were masking all the symptoms of the infection. It was only when i was told to stop taking them that after a day the symptoms took hold. He told me that a similar thing happened to a women patient of his who was on prednisone for a lung complaint. He had seen her for a consultation. She felt fine and was sitting on the chair reading the newspaper. The prednisone was masking the symptoms of a ruptured bowel, she needed emergency surgery whereby he found solid faeces leaking into her abdomen. This drug really is both fantastic and terrible at the same time. I was in love with prednisone before this happened.

Anyway, i was released for the second time 2 days ago. I am now ready to start my recovery period. I now have a large wound half of which is closed and half open. I am told it will have to be left open to close in its own time. It will need to be changed and cleaned every couple of days. I still have pain when i try to get up but it seems to be improving day by day. I will keep you all up to on how my recovery goes.

Take care. Feel free to ask any questions.
 
I am glad you are through the worst of it. Prednisone does not sound like it helps out the sugical aspect at all. I wonder if it slows down healing as well?

Have you had any trouble going to the toilet since you had the morphine? The Oxicodone they gave me bound me up pretty good.

Dan
 
Hmmm, hope the remainder of your recovery goes much better. I was amazed the docs kept you on pred, or any other drug that suppresses the immune responses. Its something anyone else considering surgery would be well advised to question IF they are on similar meds. And to think, you weren't the 1st case where pred had a potentially dangerous impact. Its' a wonder that tapering patients off pred pre surgery isn't standard 'operating' procedure (OK, I couldn't help myself - hope you've still got your sense of humour). Take care..
 
Hi Freddo-
First, glad you are home and recovering well now - quite a story....and thank you for all the information as I have ben told since you have left that I am heading into a resection/fistula repair in the summer myself (earliest opening) and the surgeon really hopes I am tapered off the pred by then...so maybe he is aware of stuff like that happened to you.
Thank You again - this is the type of info I am looking for about the surgery as it is daunting to me, and really hope you are feeling better every day!
 
Hi Dan, i was OK with the morphine. No adverse effects really. I only used it for about three days after the resection and was warned that when my bowels started working again that it would be pretty loose, which it was. In fact for a couple of days it was pretty much just blood (sorry for the gory detail) coming out from the internal wound. The painkiller i didn't like and did have an adverse effect was co-codamol which is paracetamol and codiene. Terrible stuff.

Hi Kev, yeah i was surprised when they kept giving me the pred after surgery. I think with me the reason was that the surgery was nearing emergency as the pred was surpressing symptoms but having little effect on stricture itself. I couldn't come off the pred straight away as i was on a relatively high dose. I have now been told to stop taking it with no ill effect so far, fingers crossed. (don'y worry i've still got a sense of humour, its came through the surgery intact. Although laughing does cause some pain so i try to steer clear from anything remotely funny at the moment)

Hi Keara, sorry to hear about the surgery. Obviously we would all prefer not to have to have any but i honestly think that this is going to be the best think that could have happened to me, even after the complications i've had. I know it may come back but if i get a couple of years remission (at least) out if it i will be more than happy. Every two or three days i notice an improvement in my recovery. I think that if the wound hadn't become infected and left me with a semi open scar i would be feeling alot better by now, so i wouldn't worry too much about it. I was just unlucky. I would def make sure your off the pred by the time of your surgery just to make sure it doesn't work it dirty tricks on you like it did with me. I always check back to the forum so if you have any other questions or worries about the surgery either start a new post or message me directly, i will be more than happy to help.

Take care all.
 
Hey, is it just me.. or my ignorance? But does the thought of taking pred to help with a 'stricture' make sense to anyone? I guess it would help reduce inflamation, but wouldn't anti-inflamatories do the trick 'directly'.. as opposed to lowering the immune system... sometimes these questions always seem clearer in hindsight (and no, that last 'term' wasn't an intended pun)
 
Hi Freddo. I'm new here and reading your report has been really helpful. I'm heading for an Ileocaecal resection hopefully in the next 3 weeks. My stricture is lengthy and the surgeon says possibly only half a centremetre wide at the moment. Thus I can't eat anything without pain or vomiting. Although I have had Crohn's for 20 years I haven't had surgery yet and so am not looking forward to it.
I think I would opt for the epidural having had two for childbirth in the past! Morphine made me feel really out of it.

The surgeon told me that there are four things that complicate surgery: weight loss, malnutrition, steroids and infection. I have lost 1.5 st in 5 weeks but am an ok weight so should be ok. I am reducing steroids so that by the time I have the surgery they should be quite low. They have done nothing to help at all.

I was told not to take Pentasa with this stricture as they could actually block my bowel. Scary thought.

Thanks for sharing your story. I hope that you continue to do well. Good luck.
 
Well, mine is done - for the pain relief in hospital I had no choice and first had the morphine clicker but it didn't help so I ended up with stright out injections, up to one every hour for a few days and then every two hours but I never needed them near as much. I guess after having two c-sections I had some info stored about ab surgery so getiing up (second day once) was ok - but when they went to move me the first night I screamed bloody hell and told them to let me go on my own, even if it took 4 hours...and they did and it worked best for me.

I also had a rough recovery at first in the recovery room waking to terrible pain and stuff so much my hubby was kept at bay for an extra 3 hours much to his chagrin.

But I was also an unplanned surgery in many ways - if you can go in planned, do it that way for sure!

Good luck Curly.

Hope you are feeling better these days Freddo. I am one week out and look forward to being at 2-3-4...etc!
 
what dose of pred?

Freddo, when you had your surgery, how high was the prednison dose? i will be having similar surgery in a few weeks time, and one the reasons they're waiting is that they want to lower my dose to at least 15 mg (on 35 now, coming from 40) a day.
I've had surgery before (12 yrs ago) while i was on a high dose, but luckily nothing bad happened other than the stitches not healing too prettily...

Hope you're feeling well!
e.
 
Alot of surgery going on at the moment for us Crohns Forum members. I know Curly is in at the moment.

Hi Keara, i didn't realise you were going in to surgery so soon, thought it was the summer. Hope your recovery is going well. I'm at week 3 now, i think, and am getting better day by day. Going to see specialist tomorrow to see if he puts me on any post surgery meds to try and prevent the crohns from returning so soon. Did they put you on any meds after surgery?

Good luck and take care.

Hi Elp, my prednisone dose was at 20mg when i went into surgery and i took that dose for a week after the surgery also. I'm no doctor but if in future i needed further surgery i would really want to be off them all together but the lower the does the better. Maybe ask your doc if you could be off them by the time your surgery date comes around. When i was discharged the first time, before realising i had the infection, my specialist told me to come off the pred from 20mg to nothing and i felt no effects from the sudden stopping of the meds.

BTW I feeling much better, thanks for asking. Keep us up to date with how thing go with you. Take care.
 
Glad you feel better - I look fwd to three weeks...as you read over on the other thread it was an emerg surg for me so all different than the hopeful planned but at least they caught it before i perforated.

I am on pred only and they said pentasa but i haven't taken any as they pulled me off at the hospital and i have a strong mental image of black goop coming out the NG tube when they had me on it for a few days before the surgery....and with the * unknown* black tongue issues I had for two months I question the connection that maybe it was caused by pentasa as no one knew what it was.

For the pred, Elp, I am on 45 tapering and I can't go faster due to length I was on before, and while I know it can mask a lot ( I swear my taper to 30 saved my arse 2 weeks aog, literally) everything seems ok for now, but I do look fwd to be rid of the stuff in about 3-4 months.

Anyhew - freddo - ....glad you are on the rd to recovery!
 

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