Predfoam + oral steroids 2 weeks

[Danceruk]

Hi guys

Not sure where to post so hope this is okay. Just wanting any advice really.

Been back to GP after 1 week of pred and not much improvement, a little better with the bleeding and slightly less bowel movements. Maybe from 12-14 a day down to under 10

Given me 30mg pred + two pumps pred a day - to taper off the pred after 7 days in 5mg stages. He has said if it is not better then I will have to be admitted, am hoping it responds well.

I have not had a flare in 3 years, currently studying and working full time, I knew the stress would cause a flare before my exams..it was just unavoidable. Have spoken to the exam board- hopefully should be able to get extra time for toilet breaks etc etc.

GP has said as I have been controlling it with diet for 3 years I wont get to see a consultant again unless I have 3 more flares. I guess depending on how I respond to this treatment will see - Can go privately to see the gastro that diagnosed me.

I am currently having great trouble drinking or eating. Drinking is causing the main trouble. The GP just says to force myself to drink - I am literally doubled up after less than 50ml. Lucky if I can drink 200ml each day. I have been having lollies just to get some extra fluid. Got Mint tea to try, but warm liquid seems to be even more uncomfortable right now.Having a little to drink, tried to eat, 2 small spoons of rice and that was agony. Will continue to try.. now lost 7lb. Any ideas or anything I could try?? Willing to give anything a go.. got today to stay in bed.. so can experiment :eek2:

Thanks guys, sorry for such a long post!

 

[stussy]

when i had my last flare, i was given pred foam, i wasnt to impressed with having to do it, but it got 'straight to the problem' if you know what i mean, and it did help settle things very quickly

Hope it does the same for you, have you tried liquid foods at all?

Clairex

 

[merrywidow]

i didnt take to predfoam, i had to fart it out again. i couldnt get the dose right either. as the stuff expanded

 

[stussy]

i didnt take to predfoam, i had to fart it out again. i couldnt get the dose right either. as the stuff expanded

:lol2:

i forgot to add that, yes it makes you fart .... badley and holding it in is ermmm a challenge :lol2:

 

[Danceruk]

LOL

I dont have any issues with the pred, just lay down and go to sleep after!

Liquid is pretty uncomfortable but as its so hot I am having to drink sips here and there.

Hanging in there, bleeding been bad today, going to have 2 pumps now for the rest of the week

Thanks for the replies guys

 

[Chrismac]

I had issues with the predfoam.. it actually made me bleed! Plus feel incredibly uncomfortable.. with stabbing pains and stuff. Not trying that one again, even though that was 5 years ago now.

Glad the pred works ok for you

 

[RollinontheRvr]

I don't know what pred foam is but my GI put me 40 mg of Prednisone per day on my last flare which was just last month. I was taking the 40 mg's for 5 weeks while off work on disability and then tapered down at 10 mg's/day each week. This week I am going to be taking 5 mg's/day and then next week I will be down to 2.5 mg's/day.

As for the rice, I would stay away from that or anything else that has fiber in it. My GI put me on a meat and potatoes diet last year when I was first dx'd. No fiber, no coffee, or anything that made my stomach turn just from thinking about it...:yrolleyes:

 

[Danceruk]

I cant say its doing anything!!

Going back tonite, hopefully get some strong painkillers

Sticking to water only. BM reduced down to under 10 a day.. but still feel like I've been punched in the guts 24/7!!

Should I just ask for cocodomal??