Prednisolone, side effects?

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Tyler_89

Tyler_89

Joined
Dec 25, 2012
Messages
17
Hi, anyone had some strange side effects of prednisolone?

ive got a pain my jaw, constant sweating :( and the main one that bothers me is i have sharpe pain in my back either side of my spine just slightly above the small of my back.. might be something completely different just strange as it all start about 2 weeks after starting prednisolone.

Thanks! :eek:
 
Yep they all pretty common on pred. I could live with them. It's the moon face that I don't want. I have only been on it 6 days now at 30mg...
 
im going to ask my doc to change them i dont mind the sweating and pain in the jaw, how ever the pain in either side of my back is a killer...each coff or sneeze is a surge of pain. thanks for your reply!
 
They should change it if you are having problems. Not sure what to, maybe someone else can advise. I am the stage of trying it lol
 
ive also been getting really hard thumping heartbeats :s not beating fast but i can feel it thudding againsts my chest. im going to make an appointment tomorrow as i want to come off this stuff.... hopefully there is something else to try!
 
I had horrible side effects from pred use....short term and long term. For me it was depression, mood swings, horrid joint pain and "moon" face.

The depression, mood swings and moon face went away but my knees have been shot ever since.
 
FullM3lt said:
I had horrible side effects from pred use....short term and long term. For me it was depression, mood swings, horrid joint pain and "moon" face.

The depression, mood swings and moon face went away but my knees have been shot ever since.
Click to expand...

Is there an alternative to pred?
 
I'm currently on pred and not enjoying it.
Having the same thumping heart beat and sweating as well as irritability and very low mood. Moon face so far hasn't been too bad...
I considered asking to come off them but too scared of what the alternative might be, tapering off now anyway so not much point.

Would be interested if there is an alternative to pred?
 
GEC said:
I'm currently on pred and not enjoying it.
Having the same thumping heart beat and sweating as well as irritability and very low mood. Moon face so far hasn't been too bad...
I considered asking to come off them but too scared of what the alternative might be, tapering off now anyway so not much point.

Would be interested if there is an alternative to pred?
Click to expand...

What dose did you start off at and for how long at full dose?
 
Started off in hospital on IV steroids, then went home on 40mg and have come down 30 - 20 - 15. And am now on 10mg.
 
I was also told by the nurses trick to avoid moon face cut out salt from diet and drink ALOT of water. To void the water retention round the face.
And for the heart thumping to avoid caffeine.

I hav to say following the advice on the moon face; this time round it has been no where near as bad as the last two times.
 
GEC said:
I was also told by the nurses trick to avoid moon face cut out salt from diet and drink ALOT of water. To void the water retention round the face.
And for the heart thumping to avoid caffeine.

I hav to say following the advice on the moon face; this time round it has been no where near as bad as the last two times.
Click to expand...

Good tips there!!! thanks!

Have your crohns symptoms got better using the pred? I am just 5 days into taking 30mg a day of pred then tapering down. With "suspected" UC. Waiting on biopsy results.
 
No problem :) hope it works for you too!
Yup they have, took longer than I expected them to, but I am now lately Crohns symptom free! Which considering the state I was in before feels like a miracle. That is what makes it so hard about this drug. It does often work so well but the side effects can be so horrible. It's hard to know which is harder to cope with.

How are you finding the pred so far? I hope it works just as well for you!
 
GEC said:
No problem :) hope it works for you too!
Yup they have, took longer than I expected them to, but I am now lately Crohns symptom free! Which considering the state I was in before feels like a miracle. That is what makes it so hard about this drug. It does often work so well but the side effects can be so horrible. It's hard to know which is harder to cope with.

How are you finding the pred so far? I hope it works just as well for you!
Click to expand...

Its hard to tell so far. My symptoms are at their worst at 0630 in the morning when i get up for work. I have been off for xmas so been sleeping by this. I should be able to tell better on Monday lol. My problem was frequent bowel movements and real bad urgency :-(

I am taking pred and mezavant at the same time.
 
good tip about the cutting salt!! i was in quite a mess also befor pred...and ive noticed a huge difference! not so much at the start but now i do....i dont drink coffee so the cafine isnt a problem...the pain in either side of my back and maniac heart thudding there the problems, mood swings i havent really had them taking this med, i have noticed stiff knees. but thought that was my new job i started as its quite laborious work. sleep pattens have change abit to...waking up now and then more offen and sleeping alot lighter...there not problems! getting more sleep now than befor, so cant complain! i hope the pred helps you without some of the horrible side effects! let us know how you get on!
 
Ah that's tough, well hopefully the pred will kick in and really work. It's still only early days! I found it was about 7-10 days before all my symptoms were noticeably improving. Although previously it had been almost instant. Proving it can be so different for everyone/ anytime!

Good luck! I hope it does work out well! And the pred doesn't cause you any issues!
 
I have only started on prednisolone 2 weeks ago was on 40mg but now on 30mg due to mood swings morbid dreams when i did get any sleep. I have heartburn, difficulty with getting my breath can feel my heart beating fast, dizzy if stand up to fast and although hungry all the time when i do eat feel very bloated and have stomach cramps.
I was on entocort prior to this for 8 weeks.
Put on some weight now at 7 1/2stone instead of 6 1/2 so that better and no more diar.. again thats good but just want to feel normal again took over a year for them to diagnoise.
Dont know if just to put up and keep quiet and follow what Dr says and hope in next few weeks will feel better or say something any sugestions.

Sorry if i am rambling .
 
I had many of the same symptoms as you and chose to stay quiet and hope they went away. Some have started to settle down now that I am on 15mg but some are still there. I wasnt sure of the alternatives and so didn't say anything. I guess it up to you as to whether you feel bad enough to go for another option.
Don't worry of course your not rambling. I know how you feel, pred is horrible. And if you any vent about it here where can you!
 
im also having the side effects, i went to my doc who is now tapering me off them and planning to start me on something else as the end of my taper, maybe you should speak to your doctor or wait it out and see how things pan out if its not effecting your daily life?

hope you feel better soon!

You cas always Vent here! better than holding it all up! everyone needs a venting period!
 
Depending where your Crohn's is located, Entocort (budesonide) might be a better alternative.
It works for Crohn's in the terminal ileum, it's non systemic, only goes to the small bowel and the start of the large, whereas Pred is systemic, going thro the whole system, hence the side effects!
I was on 80mg and know how you're all feeling! I coped by not fighting it, the dizzy stuff, the speedy whizzy feelings, insomnia etc etc
I rode the storm by staying awake, watching crap telly, just not fighting it, and this worked, the mania and rapid heartbeats reduced thro deep breathing etc
But I was still ironing and hoovering at 3am! lol
Of course once the tapering began the side effects started reducing. You'll get there, I promise! xx
 
Astra, you are so right. I think I need to do this more. The nights where I settled for staying up and watching tv or doing some Uni work in bed rather than lie there awake I felt better. I think listening to what your body is saying and as much as you can rolling with it is a great attitude to have. I need to do it more.
 
Astra
Sounds like good advise will try going with the flow and not fighting it. Well as much as i can with work and hubby LOL.

Thanks
 
Abso bloody lutely!
Why lie there fretting cos you can't sleep making your heart beat faster with anxiety, wait til sleep comes, and it will, eventually!
xx
 
I did 39 days of pred, 2 weeks at 30mg then 5 days on 5mg less a time.

Got loads of side effects, which settled then flared up again once I got into taper.

I had no improvement in symptoms and my inflammation markers were higher after trial than before.

It was so horrible to go through for nothing.

Would have been so much easier to deal with if it had worked lol so try and stick to the positives!`
 
Hi all i have started prednisolone yesterday starting at 40mg reducing 10mg per week i have used th drug a few times before and have experienced most of the side effects ( feeling dizzy cant focus moon face :( and fast hard pumping heart beats ) i can mostly cope with all of these if i know the outcome is to get better . I have proctitis uc and am inflammed at the min which means i am i terrible pain when i go to the toilet ( like i have never experienced in my lower abdominal area) and i basically feel wiped out no energy . I hope prednisolone can get me back to normal although the past couple of times i have taken it it hasnt stoppd the bleeding but has the other symptoms my consultant says not to worry about the blood at the min as thy know where it is coming from . Any one elses experienced this when taking pred ?
 
Kf1986 said:
Hi all i have started prednisolone yesterday starting at 40mg reducing 10mg per week i have used th drug a few times before and have experienced most of the side effects ( feeling dizzy cant focus moon face :( and fast hard pumping heart beats ) i can mostly cope with all of these if i know the outcome is to get better . I have proctitis uc and am inflammed at the min which means i am i terrible pain when i go to the toilet ( like i have never experienced in my lower abdominal area) and i basically feel wiped out no energy . I hope prednisolone can get me back to normal although the past couple of times i have taken it it hasnt stoppd the bleeding but has the other symptoms my consultant says not to worry about the blood at the min as thy know where it is coming from . Any one elses experienced this when taking pred ?
Click to expand...



Hia, sorry your still having symptoms at the mo. I was also suffering from bleeding due to a peri anal flare up. I have been in pred now for about 4weeks and the bleeding was the last symptom of mine to be effected by the pred. Even now I have days when I have bleeding again. My dr does nt seem too concerned as, like you, they know where it is from. I found it a bit of a shock as I was used to pred clearing all my symptoms almost instantly. I also think bleeding can look a lot worse than it really is and be quite frightening.
I hope this helps! The pred has eventually started to fix the bleeding for me. Hope it does for you too!
 
Hi GEC thanks for responding its good to get feedback when im unsure if im normal ! Ha hope all clears up soon :)
 
I guess I took a different approach to many people here, as when the side effects got too bad I worked with my doctor to counter the side effects with other medications, with a lot of success (after some trial and error).

The only really problematic side effects I was getting were insomnia and mood swings though, I haven't had any others that I minded much. I understand that some people don't want to start taking so many meds though, and would rather not compound the situation by taking things that may give them more side effects in turn, but this approach has been successful for me so far.
 
Hey UnXmas. Thanks for your post, I think it's really interesting to see how different people deal with the side effects. I have taken beta blockers for anxiety and think they had a subsequent effect on my heart palpitations/racing heart side effects.
X
 
I have been on pred 30mg for 10 days now. I am due to taper in 4 days time. I have had no improvement in my symptoms since being on pred :-(

My face has got fatter, that's about it. Oh and insomnia too.
 
It took me 7-10 days to see any real noticeable improvement in my symptoms and a lot longer for them all to be effected. Even now, after 4 weeks no I'm tapering off I have days when I have some symptoms return. Try and stay positive and make sure you keep your dr informed :) it's hard having to put up with the horrible symptoms of the disease on top of these or ribose side effects. As you can tell at 01:47 I am struggling with insomnia too! Good old pred eh.
Keep on smiling though :) it'll get better!
 

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