I'm only on pred until I start Imuran. I've been waiting on TMPT activity precusor test results for over 4 weeks. My doc says it takes 30 business days for the results to arrive.
As soon as these are in I can start Imuran and ACTUALLY treat the disease. We're just treating the symptoms right now. I've been flaring since March 2012 but it got worse two weeks ago.
He didn't want to put me on Remicade right away because he said it was "an extreme treatment that we only give to terminal patients when everything else has failed." I looked at him incredulously and asked "Why?"
I started laughing. I went to medschool from 2006 until 2009. It doesn't make me an expert, certainly not compared to my GI's 36 years of practice experience, but I know enough about medicine to know there's nothing terminal about a treatment like Remicade. The side effects compared to Imuran are basically the same, they're both immunosuppressors after all.
He didn't want to answer my question, he kept saying "because it's the protocol."
Protocols are established by the Public Health Office in each province in Canada. They follow the guidelines offered by Health Canada and the order of each medical specialty, but the protocol recommends Imuran before Remicade not because it's better, but because it's cheaper.
So I nagged the poor doc again about the protocol, and he finally admitted the real reason, which we all know already of course.
"Because it costs 1000$ per injection," he said.
Imho, 1000$ per injection at 6 injections per year is nothing. I could afford to pay it out of pocket myself. But that's not the point, and even if wanted to pay it myself, the system doesn't allow me to do that. It's illegal.
I don't mind taking Imuran. It's just a pill. If it works fine too, all the better. But when a patient is flaring and has 10 bloody stools a day, and is allergic to 5-ASA, it behooves oneself to think the treatment that is most efficient in treating the disease should be applied. Afterall, the more expediently the disease is treated, the faster the flare will stop. There's no doubt Remicade works faster and better than Imuran. It's in the literature.
So why is it in 2013 in a modern country protocols still prioritize budgetary constraints (and doesn't allow the patient to legally help absorb the costs if he can) over the actual best course of treatment? Drove me mad in medschool and is one of the reasons I dropped out.
My GI just said "C'est la vie!" If I had private insurance I might have been able to push for Remicade. I understand the rationale that if Imuran works just as well and is cheaper, it's the proper route, but Remicade doesn't work just as well, it works better.
In retrospect I know I am already very lucky to get treatment compared to some poor unfortunate souls in the US, so I should't complain so much.
At least I can blame the pred tonight