Prednisone diary..

[Shelbylou]

Hi guys

Well, after some sage advice from some utterly lovely people on here, and the IBD nurse that i've been allocated (spoke to her via phone and have appointment next Tuesday...yay!), I started taking the one thing that struck fear into my heart....prednisone.

Well, day one hasn't been too bad, but I still have the cramping etc as well as a wee bit of dizziness, but honestly, I woke up with that and it came hand in hand with cold sweats, as well as an episode of talking to the porceline god for a while, but that's settled now and all occured at about 4am...gotta love waking up with random symptoms lol

I took the first dose (6 x 5mg tablets), this morning with my breakfast as well as 4 x 500mg pentasa and a 400mg metronidazole. I swear, I took more tablets than my 75 year old father. There's something strangely wrong with that!

So far, the only side effects (but it's possible that they are a continuation of what went on this morning), are feeling stupidly hot, and sweating profusely. I tell ya, i'm not looking too good right now, all red faced and wet but if these are the only side effects i'll get, then i'll be a happy bunny because these are what i get round about that time of the month anyway (joys of PCOS - It seems to exacerbate teh normal pre-menstrual symptoms). To all you men out there...sorry. You probably don't wanna here about those specific symptoms)

Okay, well hold onto your hats lol. I'll update tomorrow if anyone's interested. I just thought it'd be nice (?) to document my first time journey of the good ole steroids.

Take care and big hugs

 

[Shelbylou]

Day 2 of pred

Okay, so here we are day two of the steroids and I have to say, I'm not feeling too bad.

The constant hot feeling and sweating from yesterday has subsided quite a bit, but I'm feeling quite sickly today (no talking to the porceline god though, so that's a good sign!). I'm also struggling with BM's as well, but when I have been there's been no blood so that's a good sign. I'll try lactulose because it's not a blockage (I can go), but there is still a stabbing pain round about my right hand side.

I've noticed a few of the symptoms of depression have crept in as well. I started feeling down in the dumps last night, and today i've got all the lovely doubts of self worth etc. I'm sure it's nothing and will pass, but that's just me today. Feeling blue and low and worrying about things that probably don't need to be worried about in the grand scheme of things.

Saying that though, I will admit i'm quite energetic and wide awake today. A good thing considering i've spent months feeling exhausted and washed out.

I guess i'll have to see how it goes with the ole pred. Side effects so far aren't too bad and I don't seem to have an increased appetite today (though I do feel nauseous so that could be something to do with it). I can safely say, that if it's like this for the duration of the prednisone course, then I can cope with it happily!

Okay, that's me done for the day (though I may update later if anymore side effects kick in lol).

Take care and big hugs

Michelle x

Just a quick update....Well the dizziness that I had yesterday has returned and tiredness has descended which is weird considering I have been so energetic all morning and slept well last night. My heart is pounding but honestly, some meds to that to me anyway and it'll pass soon enough. Still nothing really bad to report though. Everything is totaly copable and if anything the dizziness is akin to the room spinning after a good night out :ylol:

I will admit that the blues don't seem to be lifting though and I found myself crying at a news report on the tele (hey! it was sad...)

 

[Shelbylou]

Hey everyone from a very sheepish me...

Firstly sorry for not updating this over the weekend. I don't know how many of you are reading, or whether anyone is reading at all, but truthfully this helps me make sense of the side effects if that makes sense.

What can I say about the weekend. It's been interesting that's for sure. I'm going from having bounds of energy, to being totally drained and needing to sleep. Unfortunately, I have had moments of wanting to :voodoo: in people but i've got through that by just grinning and bearing everything.

On the plus side, no hot flushes! Woo hoo! though I have noticed that my face has swollen up a bit. Weird, not sure if it's moonface because it's way to soon for that, but there is definite swelling. I did manage to get out and do a bit of retail therapy on Saturday though, so that was nice. It makes a change from staying in the house and truthfully, it wiped me out but was so worth it. the pain has subsided quite a bit which is nice and has me worrying that taking the prednisone is going to scew the results of the Barium meal xray i have scheduled on wednesday. The IBD nurse said it wouldn't, but if it takes inflammation down, the surely it won't show and they won't know the extent of the disease. I dunno, i've got an appointment with her tomorrow so i'll ask the questions.

All in all, I have to say the side effects haven't been half bad this weekend. Just the odd few bumps in the road, but they are so small that they can literally be classified as me just being moody.

I'll update tomorrow to let you all know what's going on