I see there are many several threads but I feel like I am crazy right now! I am on prednisone 40mg/day for 2 weeks and then a 5mg/week taper after that. I am on day 4. I can't do 10 more days at 40mg. I feel like an psychiatric ward combined in one right now. I don't sleep. I am depressed. I am manic. I cry. I laugh. I am losing it. I need off this medication!
Today the ravenous hunger began. I have an eating disorder, but for the last few years it has been pretty okay. The last year in particular was great for me. Now with the crohn's, for the last month, I have been losing weight fast and eating hurts and the eating disorder is creeping back up. Adding ravenous hunger to it is so upsetting. I am ignoring the hunger. That makes me feel ever worse. Eating hurts too.
The worse part is that the prednisone isn't helping at all. I got super constipated but now that has switched to D. For the first time there is mucus in it and it seems that is not a sign of getting better. Eating still hurts. I still can't tolerate solids. Nothing intestines wise has improved at all. Instead I just feel like I am absolutely crazy, just more sick.
I don't know what to do. It is a Friday and I could just stop taking it at this point since it has only been 4 days. I could also do a fast taper since the side effects are hitting me so hard. Tomorrow 20 and then Sunday 10 and then nothing on Monday. I could go back to the ER where they put me on the crap but I do not want to be admitted. I could also just wait it out til Monday and beg my doctor to fix this somehow.
I cannot survive this. This is awful!!!!!!
Background:
Just diagnosed 2 weeks ago. CT scan saw terminal ilietis. CRP is 91, ESR is high too, Iron and B12 are low. negative for parasites and C diff. 22 yr/o female with a family history of IBD stuff. Still waiting for the GI consult and official diagnostic stamp but everyone is already calling it crohn's, including the GI I saw in the ER. This is the first treatment we have tried.
Today the ravenous hunger began. I have an eating disorder, but for the last few years it has been pretty okay. The last year in particular was great for me. Now with the crohn's, for the last month, I have been losing weight fast and eating hurts and the eating disorder is creeping back up. Adding ravenous hunger to it is so upsetting. I am ignoring the hunger. That makes me feel ever worse. Eating hurts too.
The worse part is that the prednisone isn't helping at all. I got super constipated but now that has switched to D. For the first time there is mucus in it and it seems that is not a sign of getting better. Eating still hurts. I still can't tolerate solids. Nothing intestines wise has improved at all. Instead I just feel like I am absolutely crazy, just more sick.
I don't know what to do. It is a Friday and I could just stop taking it at this point since it has only been 4 days. I could also do a fast taper since the side effects are hitting me so hard. Tomorrow 20 and then Sunday 10 and then nothing on Monday. I could go back to the ER where they put me on the crap but I do not want to be admitted. I could also just wait it out til Monday and beg my doctor to fix this somehow.
I cannot survive this. This is awful!!!!!!
Background:
Just diagnosed 2 weeks ago. CT scan saw terminal ilietis. CRP is 91, ESR is high too, Iron and B12 are low. negative for parasites and C diff. 22 yr/o female with a family history of IBD stuff. Still waiting for the GI consult and official diagnostic stamp but everyone is already calling it crohn's, including the GI I saw in the ER. This is the first treatment we have tried.
