Proctectomy a week on Thursday

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The bottom does take a while too heal mine a yr on 23rd this month and I had to have another op on 25th April 2014 to remove a blind ending sinus in my bum just wasn't healing where it was and had loads of pain and discharge. Fingers crossed you'll be totally fine and have no problems. Not everyone has problems. Let us know how you get on and if you need a chat we are here for you.
 
Hi Rachel, I have been thinking about you and wondering if you had your surgery. I know how much you were dreading it. How did it go, are you any better?
 
I already can't sit for very long because of soreness. It is easier for me, I have known that this was the possible outcome for many years. I am choosing it as a positive step in managing my health. But I do think perhaps I ought to try an artificial sphincter and Remicade but I see it as delaying the inevitable. The more surgeries I have, the more traumatic I find them. But I do know how difficult coming to terms with an ostomy is. When I had a temporary one, I had to see a psychiatrist and was on strong antidepressants.
 
I'm still sore and swollen they removed sinus and cleaned it out stitched it up inside but left the skin open to heal from inside out. I've been told will take a couple of weeks to heal but I can't see how it's going to heal with it being left open but we'll see.. I've never had an open wound before. I need to bathe everyday give it a good soak and take painkillers. When I woke up I was in absolute agony they gave me loads of morphine I couldn't have anymore as I could of stopped breathing. They also put local anaesthetic in my bum before I woke up. Nothing worked I was left in agony and I was upset coz of pain but they just left me. Eventually when I got IV tramadol I threw it up straight away. I'd been telling them I felt sick for ages and they said they would get me anti sickness but never :( I got home on the evening but they was no communication they never let my parents know I was out of theatre and when my parents phoned they never told me. Nobody told me I needed to meet my parents in waiting room only found out coz some nurse was talking to someone saying I'll walk you round so you can be discharged and I said is that where I need to go coz I'm being discharged as well.
 
That is awful Rachel. I know how painful it is and I also know how useless some nurses can be. I hope you improve now that you are home. I'm here if you ever need to chat.
 
I am so sorry Rachel. The last time I was in hospital I had no one to drive me home so transport was arranged and they left me sitting in the day room all day before I found out that nothing had been arranged. As for open wounds, I had one when I had a fistula removed, when they took the packing out I passed out. The worse pain ever, it is horrid. You have been through too much
 
Rachel, i hate those people for thst!!! Whoever is responsible for putting you in that,situation should be fired!! I am so mad!!!!!!! Talk to the doctor and find out your options for pain meds. They,have to help you!! Start keepung a journal of the pain level, how long it lasts... maybe your mother could call for you
 
Am p off. Saw sergeon(junior doc) and still they will not do anything about the fistula. NOOO LETS WAIT TILL IT GETS WORSE. GRRRRRRR. sorry for ranting but i have a case of IMS ( irritable male syndrome) . Tx to the junior doc who cant frigging speak english.
 
Was at hospital yesterday. Saw a junior. Erliest mri is 28th of may and next consultant apointment is 3 week of june. Im gonna clean the fistula with iodine
 
That's not good. I have an IBD nurse who I just ring if I need help and she gets me an appointment with my Consultant ASAP or speaks to him and rings me back with what to do. It's funny how different NHS areas work.

Could your GP maybe help clean it out for you?
 
Ive called my gp . Earliest day he can see me is 6-7weeks. Unless i ring at 8am for a on the day. I also called my stoma nurse. And she will try to organise a district. Nurse.
 
Good grief, that is terrible. I hope you get sorted out soon. As Susan says salt and water is very good. Having salt baths was the first thing which helped close up my wound after my rectum was removed.
 
There should be a self help,remedy book for crohns and crohns related surgeries and procedures. Like a book for tips and advice. Dont. Know if there is such a book. Maybe its something that could be added to the forum
 
I can't believe you are having such awful problems! I can usually make an appointment a week in advance. I hope the district nurse does come out today. It is not good enough
 
For thoes who has cats and they ate worried incase the cat scrates there stoma or furnitures i recomend ., PVC Cat Pet Nail Caps Claw Control Paws off. Claw caps. You can buy on ebay they work wonders
 
It feels like consultants dont wanna help. Cuz they dont want to be responsible of fhrther complications
 
Urgh went back to work last week after having 18 days off felt fine when I was on sick apart from the pain but as soon as I go back to work boom it hits me I feel exhausted, weak and just got no energy at all. Everything is a struggle it's been 3 weeks since op and I didn't expect this. I didn't even reduce my hrs at work I honestly thought I could do it. I'm finding it all tough even typing is hard I just want to feel normal again 😭😭😭😭 I'm dreading work next week it's going to be a struggle I regret going back so soon it's the shortest time I've been off. They were going to send me home on Friday but I said no it's affecting me more than the pain. My body feels really old😭😭😭 I thought I would get away without feeling weak coz I felt fine when on sick. I blame myself as I never done anything for 18 days when on sick. Somebody please tell me how long it will last for. Can't take much more 😭😭😭 on a better note I can sit on my bum for a while :)
 
I can't take a holiday nice idea tho wish I could I need one I've used all my holidays up at work and I'm not off properly till September urgh. Wished I'd reduced my hrs for a few weeks but I honestly thought I would be ok I only do 16hrs(4hrs a day) it's too much for me at the mo. Obviously I was wrong :(
 
A company cannot force an idividual who is ill due to an illnes or treament to work hours that he or she is temporily able to. If you look it up. Its a form of discrimination. Like maternity leave.
 
it will actually be better for your recovery if you dont continue full time right now. In the long run it will help you to take it easy and listen to your body. If you are that exhausted you need to slow down somewhat :) so glad you are getting there though!!!
 
I'm not full time I only do 4 hrs a days(16hrs a week) that's my permanent contracted hrs but even so it's too much for me but I have to just get on with it :(:(
 
I am still doing really well, just came back from holiday in Spain and got engaged!! Life really does not end with a stoma, it's difficult for quite some time but we get there in the end :)
 
Congratulations!

You should post a note about this in the "Singles Living with Crohn's" Support Group. Many people there, especially those with stomas, believe that they will never find a partner. Your experience might encourage them to feel more positive and so give them more chance to find a special person to share their life.
 
Thank you Susan, I will do that.

When I first got my stoma I had a boyfriend and I thought he would leave me. He didn't and tried to help me come to terms with it, even though I tried to ignore I had it. It just goes to show, the right person will want to be with you stoma or no stoma :)
 
Hi Cheerbear,

How are you doing now? I have my proctectomy surgery on Thursday and am absolutely dreading it :-(
 
Hi I haven't been on here for a while and have missed loads of posts. I'm doing fine hurts today but might be an off day coz it stopped hurting two weeks after op and healed up got hospital on July 21st hoping I get signed off...... My stoma is so itchy even after I clean and change pouch has been for a few days now.. Could it be weather feel like scratching it off. Will be thinking of you on Thursday hope it all goes well let me know please. Hoping there is no complications for you. Hope you have a speedy recovery
 
Thank you, I really hope it goes smoothly. I'm so sick of hospitals and operations.

I'm glad you have stopped having lots of pain. How long has it been since your surgery?

Also, do you put a skin barrier around your stoma?? I find they really help when mine is sore or itchy
 
I had op 10 weeks ago on April 25th and good luck keep me posted when you can sending positive vibes. No what's a skin barrier
 
The orabase you but on stoma for when its painfull itchy etc. The cavilon spray around the stoma.
 
Had the left orchidectomy on the 9th. Surgeon failed to sew then wound up. So its now infected. Im on antibiotics. Just fed up. Hows everyone doing.
 
Hi dooom,

Sorry to hear your having such a hard time. I wish the pain would go away.

I had a proctectomy on 10th July and it's still not healed. Getting lots of pain and oozing a fair bit. I'm still packing it everyday but just doesn't seen to be getting better...

Hope you a feeling a bit better from your previous post
 
Hi Sam.

What do you use for packing the wound? I had an open wound for six or seven months and the district nurses used only saline solution and alginate dressings (Kaltostat, in my case). These are more expensive but are made from seaweed and seem to have healing properties as well as coping with the "ooze". I had absolutely no infection during the six or seven months and the wound healed very cleanly.
 
Savlon? Will that sting? No ones mentioned that to me before but am willing to try anything! Thanks!!

I'm currently having it washed with saline and packed with aquacel. Apparently the silver in the aquacel is supposed to draw out the oozing. They have also tried manuka honey on it but that didnt really do anything either.

Did you find that the wound hurts more when you have it packed? The other day I went a whole morning without packing and it was so much more comfortable!
 
Hiya the salvon does not sting. Reason i used salvon is no distric nurse came to see me. It is best you ask if you can use salvon. If the pain is bad ask for oxynorm.
 
My wound was an enormous hole the size of a large man's fist, where they removed my rectum and a large area of rotting flesh around it!

I couldn't dress it myself - I couldn't see into it, let alone dress it - so the district nurses came every day. They rang me about 40 minutes before they were coming and I took an Endone tablet to help me cope with the pain.
 

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