Progress on Remicade

[SoOoO CoNfuSeD]

Hellos,

I was often on this forum when i wasn't feeling well, and thought i'd update those who are interested now that i am feeling better. I was diagnosed with crohn's in january 2012. After a year of trying the various meds and feeling myself deteriorate, i was beginning to feel really hopeless and thought i'd have to accept feeling like that forever. i was really reluctant to accept going on remicade, it scared me and i was discouraged by all the previous treatments (prednisone, imuran, mezavant, asacol). I finally accepted and began remicade in january 2013. Some of my more painful and daily annoyances were the fissures and fistulas and after doing a lot of reading i was realizing that there isn't much to help those. After maybe a week following my first remicade treatment, i actually had a normal poop!! No pain!!! it's weird how we get accustomed to pain and just forget what being normal feels like. Now April, 4 months and 3 treatments later, i wouldn't say that i'm in remission just yet, but i feel A LOT better and i might actually now see remission as a possibility. I still pay attention to what i eat, no junk food at all, i juice (at least a pint of juice a day) and try to stay active... i am still on imuran daily and am now at the 8 weeks of remicade intervals....keeping positive. Hope this gives someone hope there might just be some light at the end of the tunnel. Good luck!

 

[Jim (POPS)]

I am so glad to hear that you are doing better. I hope that you go into remission soon.

 

[Johnatron]

You started Infliximab at around the same time as me. I've had three infusions so far and feel better soon after them. I had my last one on the 4th March and I feel it's wearing off a little as I am starting to get pains again and I don't have another infusion until April 29th. Hopefully though I can last and this will be my road to remission. Hope all is going well with your treatment too. It definitely sounds promising!

 

[AlliRuns]

Started around the same time too, finally starting to see improvements. Saw my doc on Wednesday and he was pleased because otherwise, colostomy would have to be considered.

 

[SoOoO CoNfuSeD]

Hey guys! really glad to hear that you have also seen progress! Fingers crossed for remission to all of you. Johnatron, i really hope your body holds on till your next treatment. Weird thing, i'm exactly halfway until my next treatment and i've been noticing a few more cramps and bowel movements. Since i've been feeling better, i've been daring to eat a few more foods that i wasn't able to for the past year, rookie mistake i guess. I think i'm gonna stick to my safe foods and juices until my next treatment. Alliruns so glad to hear that you've seen progress too! You seem athletic... do you feel that keeping fit helps? And out of curiosity, and of you experiencing side effects?

 

[AlliRuns]

Hey guys! really glad to hear that you have also seen progress! Fingers crossed for remission to all of you. Johnatron, i really hope your body holds on till your next treatment. Weird thing, i'm exactly halfway until my next treatment and i've been noticing a few more cramps and bowel movements. Since i've been feeling better, i've been daring to eat a few more foods that i wasn't able to for the past year, rookie mistake i guess. I think i'm gonna stick to my safe foods and juices until my next treatment. Alliruns so glad to hear that you've seen progress too! You seem athletic... do you feel that keeping fit helps? And out of curiosity, and of you experiencing side effects?

I tried to add back some foods with bad results as well.. I haven't been able to tolerate raw fruits and vegetables, I tried some mango.. Bad mistake.. Sticking to safe foods as well for now.

Not sure if staying fit helps,if definitely helps my mental state, but sometimes long runs or rides, especially in the heat make my fistulas swell up.

So far, the only remi side effect was a brief outbreak of hives that lasted a few days and have gone since.

 

[rrehmus]

Hellos,

I was often on this forum when i wasn't feeling well, and thought i'd update those who are interested now that i am feeling better. I was diagnosed with crohn's in january 2012. After a year of trying the various meds and feeling myself deteriorate, i was beginning to feel really hopeless and thought i'd have to accept feeling like that forever. i was really reluctant to accept going on remicade, it scared me and i was discouraged by all the previous treatments (prednisone, imuran, mezavant, asacol). I finally accepted and began remicade in january 2013. Some of my more painful and daily annoyances were the fissures and fistulas and after doing a lot of reading i was realizing that there isn't much to help those. After maybe a week following my first remicade treatment, i actually had a normal poop!! No pain!!! it's weird how we get accustomed to pain and just forget what being normal feels like. Now April, 4 months and 3 treatments later, i wouldn't say that i'm in permission just yet, but i feel A LOT better and i might actually now see remission as a possibility. I still pay attention to what i eat, no junk food at all, i juice (at least a pint of juice a day) and try to stay active... i am still on imuran daily and am now at the 8 weeks of remicade intervals....keeping positive. Hope this gives someone hope there might just be some light at the end of the tunnel. Good luck!

Glad to hear things are going good for you. Just keep beeing patient and you'll get there. like a few other newbs here, my sel included. I was dx in january of this year and have had 3 now on 8wk intervals. Been feeling good. Tryed to expand my diet with mixed results. I stick to my safe foods as much as possible. Only reaction was also some hives that cleared after a few days. Keep positive and you'll get there. Like my gi told me it wont happen over night.:smile: