Remicade question

[Gibsongirl]

Hi all
I've been on remicade since April 2015, having infusions every 8 weeks
seems to be helping my crohns, BUT starting getting pounding headaches lasting all day and for weeks at a time. Taking tramodol but it don't really help
omg!! I need some relief from these booming headaches. I do have some good days without headache but then the next day it's so bad!!
I'm wondering if anyone else suffers from these pounding headaches!!!
Thanks gibson girl

 

[aypues]

i'm not. but headaches can be caused by many, many things. have you had your iron levels checked?

 

[Gibsongirl]

Not sure about my iron
I'll mention this to my doc
Yesterday was a bad day for headaches! But today no headache hmmm!!
Thinking maybe I should stop remicade treatments!!
Take care
Thanks

 

[my little penguin]

Have you seen a neurologist ?
Severe and sudden headaches could be from a host of things that have nothing to do with remicade at all
A Neuro typically will order a brain MRI to rule out a ton and advise how to best treat the headaches

 

[Gibsongirl]

Have had a MRI done and everything good there,
My doc has mentioned seeing a neurologist but it's a year or more wait list.
I'm thinking of trying acupuncture hmmm!!
I'll go back to doc this week and see what other meds I could try for these pounding headaches
Thanks

 

[aypues]

I had frequent headaches and narrowed it down to very low iron and ferritin levels. Also watch out for any supplements you may be taking. The fish oil i had been taking gives me a headache now so i quit that!

 

[Lisa]

Also, how is your blood pressure? High pressure can bring on headaches too.....

 

[tots]

I have bad headaches too, I blame mine on my Remicade.

Did not know Iron could do that.


Lauren

 

[shamrock15]

Iron and hemoglobin could be a culprit here. Anemia does often present with headaches. Do you feel easily fatigued, low energy, difficulty sleeping? Those are all other symptoms that could show up with anemia.

 

[maher]

I started to get a lot of headaches on and off, so I decided to go for an eye test
Turned out I needed reading glasses.

Crohns affects your eyes a lot too. The specialist pointed out that we are really prone to eye infections and we should have eye drops to put a protective layer in our eyes.

Learn something new every day with this disease

Might be a thought

Wish you all the best
Steph