Repeating Flare ups

[CrohnsNewbie2]

Last night I had a flare up and was up until 3am. Of course that was lovely because I had to get up for work at 7:30. I was feeling fine this morning until I started getting stomach pain at work. It continued and then I started getting cramps and spasms. I was in my cube just crying just in total pain. Called my doctor who didn't seem to think it was a big deal and now I'm sitting at my desk in fear. I'm worried about going home and I'm worried about eating anything. I haven't eaten in hours but I don't want to for fear of more pain. I'm sick of taking medicine and I'm sick of the flare ups. And my doctor doesn't seem to care or check up. I actually am looking into another hospital because the care I have been getting is so unprofessional. So for the rant but I'm so tired of this

 

[Daisy123]

You are right to look for another doctor. You need the crohns to be under control, then you shouldn't these symptons which are disrupting your life. I changed my surgeon when I was younger and have never regretted it

 

[CrohnsNewbie2]

Thanks Daisy! Yeah the office has canceled two appointments on me and there has been an issue with the medication twice. 'Fool me once shame on you...fool me twice shame on me'. So not happy with these doctors right now. I'm in pain and the doctor was like I might call today with someone we can prescribe you. Ugh! This is just so irritating.

 

[Daisy123]

Not good at all. I am on very strong pain meds but I had to fight for them, rightly enough my GI wanted to know what was causing the pain first. But like you I was working and terrified that I would lose my job. You need to trust your doctor.

 

[shamrock15]

Yeah, starting to look for another doctor would likely be a good thing. Are you currently on any meds to control your crohn's? When I got into repeating situations like this, it usually meant there was some form of active inflammation or even stricturing happening. It needs to be checked.

 

[CrohnsNewbie2]

Yeah I have some inflammation right now and they have me on prednisone right now.

 

[Daisy123]

I am on Pentsa and Imuran. We were looking into possibility of Remicade but the scope showed just small ulcers. I hate steroids, so tend to avoid them especially as I have osteopenia. The pain is strictures rather than inflammation. But if you have inflammation it needs to be controlled by crohns meds otherwise you end up with strictures and then possibly need surgery. So you mustn't leave it.

 

[CrohnsNewbie2]

I feel like every other week there is something else wrong. I have ulcers too so I'm waiting for them to heal. No alcohol or sodas. I want to find a doctor who I can trust and who is going to listen to me. I'm trying to be proactive by not staying inside all day long. I force myself to go to work but then I end up being sick here. Can't win. I don't even go out on the weekends either...no social life here! I'm not getting sleep either which is causing me to be moody and I'm not functioning well I just want this taken care of before my wedding...even though its next year I'm so nervous that I won't be able to enjoy my own wedding. And on top of that I'm just constantly depressed and anxious. Thank you all for responding.