My son has had his scopes done Thursday and they said he has crohns. He has ulcers in the duodenum a lot in of ulcers in terminal ileum and patches through the large bowel. He woke up with a really thick feeding tube and not the thin silk ones no one knows why. He felt really good yesterday (day after scopes) had colour in his checks but as soon as he got down 250ml of the EEN it came back up with the tube. So tube was took out and he got the other 4 lots down but it was 1/2 strength and he was really full after it. They are upping it the 3/4 strength today then full Sunday to see if he can drink it if not he will be on over night feeds.
Scopes done and EEN started
- Thread starter Mmmd01
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Help Support Crohn's Disease Forum:
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You could try a thinner feeding tube - that might be easier to keep down. We used an infant tube - 6Fr - and that worked very well and wasn't too uncomfortable (after the first day).
Also, it takes a lot of trial and error to find a rate that works. Some kids can tolerate pretty fast rates, and others, like my daughter, need the rate to be VERY slow.
Also, it takes a lot of trial and error to find a rate that works. Some kids can tolerate pretty fast rates, and others, like my daughter, need the rate to be VERY slow.
He isn't in a feeding tube now just watered down feeds until today when he will get the full stuff he was on 250ml 5x a day today will be up to 300ml 5x but he was getting full yesterday and didn't manage to drink any water in between so will have to see if he takes it all today. We was told as long as he can finish it all with drinking it he won't need the tube back in.
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That's wonderful
Ds drank all of his orally
He drank 8-9 shakes (peptamen jr ) which were 250 ml containers a day
Good luck
Be prepared some kids have a much harder time digesting the 1.5 cal formula vs the lower cal 1.0 cal formula
Ds drank all of his orally
He drank 8-9 shakes (peptamen jr ) which were 250 ml containers a day
Good luck
Be prepared some kids have a much harder time digesting the 1.5 cal formula vs the lower cal 1.0 cal formula
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That's great! As long as he can drink it, he can probably avoid a tube. Way to go!!
We found that drinking too fast = nausea/vomiting for my daughter, so sipping worked best for her. Having the shakes cold also helped since then the taste didn't bother her as much.
Good luck!
We found that drinking too fast = nausea/vomiting for my daughter, so sipping worked best for her. Having the shakes cold also helped since then the taste didn't bother her as much.
Good luck!
My sons having modulen 300ml 5x a day but he just can't drink it he had a thin plastic tube put in yesterday because they are not sure if he can have the silk one because he can't have some plasters. He's had a few feeds now and feels better no feeling sick from it. Just need pump training now then we can go home yay been here since Thursday.
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Glad to hear that things are going better with the thin tube, and that you'll be heading home soon. My daughter used a tube for several months, and it really helped her; hope it works well for your son too.
