Severe neck, shoulder and back pain

[Beckah]

Hi, so I've been diagnosed with crohn's pretty recently ... At first just the stomach/bowel issues. I've had a few complications over the last month or so - mainly to do with an awful pain and stiffness in my neck and upper back/shoulders. It comes and goes but is always worse during the night and first thing on the morning. A few weeks ago it was so bad that I was actually taken into hospital but it seemed to have calmed down when they changed my medication to sulfasalazine. However after coming out in a huge rash and affecting my breathing I realised I was allergic to sulfasalazine ... Typical!! But now I've been put just onto pentasa. It seems to be working as far as the bowel is concerned but I wondered if anyone had any advice on how to help with the muscles/joints until I see my rheumotition? Once I get up and struggle around for an hour or so it seems to calm down, I also take paracetamol. My worry is that whilst it's incredibly frustrating now I don't know how I'm going to cope when I go back to work in the new year?? First time using a forum for this so any advice regarding this would be hugely appreciated!! Thank you!

 

[fuzzy butterfly]

Hi and welcome. Sorry your here tho. I fear joint pain is part n parcel of crohns. I suffer it myself as do many others. I cant seem to find any help from my gp with it. So il try my gastro doc at my appointment in jan n see what he says. Keep pushing for help as i do or you most likely will be brushed aside. Sad as that is,coz they really dont know how it is with crohns if they aint got it. I work full time with my pain, its not easy i can tell you. Hope you can get the help n meds you need . Best wishes n hugs

 

[ronroush7]

Welcome. I have minor arthritis in my lower back. I am wondering if you could try a chiropody. I hope you get some relief soon. Keep us updated.

 

[Clash]

Joint pain can definitely be an extra intestinal manifestation(EIM) of CD. Some types run concurrent of active CD inflammation while others run independent of an active CD flare. Finding a rheumatologist with knowledge of the joint EIMs of CD is important.

My son has CD but also sees a rheumatologist because he has spondyloarthropathy and polyarticular arthritis both common EIMs of CD.