Sick and tired

[xoxava]

sick and tired

yes, im still alive. and ive reached my breaking point. im sick of all the tests and meds and no results. its been almost a year and im in the same position i was before. insert food, chew, sallow, run to bathroom. the people in the er i think are starting to think im crazy but they seriously have NO idea how painful this is. i cant even function with this stupid stomach pain. i have an apt tomorrow with my GI to discuss my options at this point bc i am so SICK AND TIRED of living like this. im sick of the tests. im sick of being pricked and having things shoved up my ass. ugh. ive had 6 lovely colonoscopies since i was dx in june 2010. its getting to be a bit much. i cant even go to school. and to be 19 and pooing myself?! WHAT THE HELL IS UP WITH THAT? i just want relief. and its looking like its too much to ask for.

 

[xJillx]

I am glad you are still alive - I have been wondering how you've been doing! But I was hoping your lack of posting was due to you feeling better. I am so sorry you have yet to get relief. And you're right - six colonoscopies in a year is ridiculous! Ugh...all of that prep - you poor thing! I sure hope you and your GI can come up with a new and effective course of action during your appointment. Good luck and please let us know how tomorrow goes.

 

[tiloah]

Why on earth did they need to do that many colonoscopies!?

You poor thing. I know how it feels to be on these crazy expensive meds and feel like you're just spinning your wheels in the mud... Although maybe they are keeping me from being worse than I am now, I suppose I can't say. Sometimes I think I can't bear the pain.

I hope they figure something out for you that works. You deserve to feel ok. In the mean time I am thinking good thoughts for you. *hugs*

 

[breesie]

I am so sorry to hear what you are going through. I went through several years of the same thing. They did test after test after test. I was at the ER so often that the admitting desk knew me by name. I had good experiences and not so good experiences at the ER...sometimes feeling like they thought I was crazy or a drug seeker. Sometimes I actually questioned myself.

It is so difficult to be assertive with the doctors when you feel rotten all the time. It takes energy that you don't always have. Please hang in there and keep trying. Be persistent. And trust in yourself. You know your body. and you know something is not right. Don't allow medical professionals who are clearly not doing their job (to diagnose and treat you), to discourage you from getting treatment or make you feel like you are crazy. You aren't!

Also...please try to know that you aren't alone. I just found this support forum a few days ago, and it has helped me tremendously just to know that there are others who have or are going through things you are.

Hang in there!

 

[crushingcrohns]

im surprised your insurance covered all of those. Usually you get only 1 scope a year. What meds are you on and what foods do you eat. Diet does matter, no matter what the dr says.

 

[ameslouise]

Hi Ava - How'd your GI appt go the other day?

Do you have a new plan of action?

Hope you are doing a little better today!

- Amy