Hi Everyone -
My name is Justin and I have been browsing through the forums for a few months and decided to sign up.
This all started 3-3 1/2 years ago. I went to the hospital with severe pain in my back. I actually thought I was dying!!! I shortly found out I was the father of a calcium-oxilate kidney stone. I had a stone stuck at the opening of my bladder. 2 days later they removed it with surgery. Let's just say they didn't make any new holes in my body! Since then I have been having kidney stones about every 3 months or so.
Shortly after I started having severe stomach pains. It started in the lower right side of my stomach. My doctor thought it was my appendix and I sent me upstairs to have a surgeon take a quick look at me. He determined it was not my appendix. After a few weeks it was so bad I went to the emergency room. I was told I had gastritis. I went on a bland diet and after a few weeks and I started feeling better. A few months later I started getting sick again. My entire stomach hurt. My doctor took my blood and again my white blood cell count was high. She said she thought it was gastritis and put me on Antibiotics. I was told to eat a very bland diet again for a few weeks. I did as followed and slowely started to feel better. Fast forward a few months and I was right back at my doctors office. White blood cell count was still high. She said the only way we were going to know for sure is to have an upper and lower endoscopy. I Left and made the appointment to see a gi doctor. I then cancelled my appointment as I was feeling better a few weeks later. (I should never have cancelled!!!) My stomach started to hurt a week or so later!!!
About 1 1/2 to 2 years ago my joints started hurting me. I started experiencing severe radiating pain in the majority of my joints. It would travel from joint to joint sometimes in a matter of seconds.
I was dealing with all of this off and on for a long time. I thought I was going crazy and loosing my mind. I got really sick again. Kidney stones were really bothering me, my joints were killing me, my stomach was hurting, I was having a lot of gross bowel movements, acid reflux, dry heaving......... etc..
My doctor had since left so I started with a new doctor at the same place. I told him my old doctor had wanted me to get an endoscopy and asked for a referal to the g.I. doc. He said he would but wanted to take blood work first and if I wasn't feeling better in a week he would give me a referral. I Had a small amount of blood in my urine from the kidney stones and my white blood cell count was high. I came back a week later in as much pain as the week before. He then said he did want to have an upper endoscopy done.
When I went for the scope I typed up two pages of everything that was wrong with me for the past 3 years. I was as detailed as I could. He took one look and said it sounds like I have IBD. I Received a paper in the mail saying everything looked fine but biospys showed acid reflux. I called him later and told him it was more than that and reminded him of my giant list. He wanted to me to come into the office so we could go over everything. I went in to the office and after going over everything he says I have either crohns disease or a rheumatic disease with gi problems. (My mom has Lupus, RA, Reynolds, Connective Tissue disease) and her sister had celiacs disease and died of stomach cancer. He said its most likely crohns and needs to do a colonoscopy.
He wanted me to see a Rhuematoligist while I wait for my colonoscopy. I saw her last Monday (really nice doctor and took her time). She believes I have crohns disease and that's most likely what the colonoscopy will show. They took 10 vials of blood!!! And x-rayed my joints and spine. She said between her and my g.I. doc that they will figure out exactly what's going on and re-assured me they will do everything they can to get me feeling better better soon. Unfortunately they do not want to give me any medication before my colonoscopy on the 3rd as they don't want to effect the results.
I'm currently wating for the results of the blood work and x-rays.
I'm so sick of being sick! I just want to know what's going on so I can get better.
Sorry for the long post!!!!!
Edit - I also suffer from headaches, had a few canker soars a few weeks back, night sweats, glands in neck swell at night, some weird sore on my leg, my feet turned bright red and swelled a couple days ago, my lower back swelled a week ago I could barely bend over for a few days, eye lid twitching for over a year..... I never know what's next.
Last year I was tested for all my moms autoimmune diseases but they came back negative....
My name is Justin and I have been browsing through the forums for a few months and decided to sign up.
This all started 3-3 1/2 years ago. I went to the hospital with severe pain in my back. I actually thought I was dying!!! I shortly found out I was the father of a calcium-oxilate kidney stone. I had a stone stuck at the opening of my bladder. 2 days later they removed it with surgery. Let's just say they didn't make any new holes in my body! Since then I have been having kidney stones about every 3 months or so.
Shortly after I started having severe stomach pains. It started in the lower right side of my stomach. My doctor thought it was my appendix and I sent me upstairs to have a surgeon take a quick look at me. He determined it was not my appendix. After a few weeks it was so bad I went to the emergency room. I was told I had gastritis. I went on a bland diet and after a few weeks and I started feeling better. A few months later I started getting sick again. My entire stomach hurt. My doctor took my blood and again my white blood cell count was high. She said she thought it was gastritis and put me on Antibiotics. I was told to eat a very bland diet again for a few weeks. I did as followed and slowely started to feel better. Fast forward a few months and I was right back at my doctors office. White blood cell count was still high. She said the only way we were going to know for sure is to have an upper and lower endoscopy. I Left and made the appointment to see a gi doctor. I then cancelled my appointment as I was feeling better a few weeks later. (I should never have cancelled!!!) My stomach started to hurt a week or so later!!!
About 1 1/2 to 2 years ago my joints started hurting me. I started experiencing severe radiating pain in the majority of my joints. It would travel from joint to joint sometimes in a matter of seconds.
I was dealing with all of this off and on for a long time. I thought I was going crazy and loosing my mind. I got really sick again. Kidney stones were really bothering me, my joints were killing me, my stomach was hurting, I was having a lot of gross bowel movements, acid reflux, dry heaving......... etc..
My doctor had since left so I started with a new doctor at the same place. I told him my old doctor had wanted me to get an endoscopy and asked for a referal to the g.I. doc. He said he would but wanted to take blood work first and if I wasn't feeling better in a week he would give me a referral. I Had a small amount of blood in my urine from the kidney stones and my white blood cell count was high. I came back a week later in as much pain as the week before. He then said he did want to have an upper endoscopy done.
When I went for the scope I typed up two pages of everything that was wrong with me for the past 3 years. I was as detailed as I could. He took one look and said it sounds like I have IBD. I Received a paper in the mail saying everything looked fine but biospys showed acid reflux. I called him later and told him it was more than that and reminded him of my giant list. He wanted to me to come into the office so we could go over everything. I went in to the office and after going over everything he says I have either crohns disease or a rheumatic disease with gi problems. (My mom has Lupus, RA, Reynolds, Connective Tissue disease) and her sister had celiacs disease and died of stomach cancer. He said its most likely crohns and needs to do a colonoscopy.
He wanted me to see a Rhuematoligist while I wait for my colonoscopy. I saw her last Monday (really nice doctor and took her time). She believes I have crohns disease and that's most likely what the colonoscopy will show. They took 10 vials of blood!!! And x-rayed my joints and spine. She said between her and my g.I. doc that they will figure out exactly what's going on and re-assured me they will do everything they can to get me feeling better better soon. Unfortunately they do not want to give me any medication before my colonoscopy on the 3rd as they don't want to effect the results.
I'm currently wating for the results of the blood work and x-rays.
I'm so sick of being sick! I just want to know what's going on so I can get better.
Sorry for the long post!!!!!
Edit - I also suffer from headaches, had a few canker soars a few weeks back, night sweats, glands in neck swell at night, some weird sore on my leg, my feet turned bright red and swelled a couple days ago, my lower back swelled a week ago I could barely bend over for a few days, eye lid twitching for over a year..... I never know what's next.
Last year I was tested for all my moms autoimmune diseases but they came back negative....
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