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Crohn's Disease Forum

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Joined
Jan 30, 2014
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How the heck do you do it all? I am feeling like a failure so much! I don't have enough energy to do it all. My job is suffering, my kids are suffering and I don't even have a word for the zero intimacy with my hubby. How do you all make this work? After work, I go home, get sick several times, and go to bed. I'm no longer living, I'm just existing. Can anyone offer suggestions? PLEASE?? I am really at an end of stuff.

jb
 
I know what you mean, it can be a very difficult balancing act even for healthy people between work, home, family, etc - and it's all much more difficult when you're ill all the time. Are you on any medications right now? If you're on medication but still vomiting daily, you may want to discuss with your doctor if there are other options available for you to try. You could also try things complimentary to medicine, like dietary changes, gentle exercise, meditation, etc. Have you had any bloodwork done lately? If you're low on things like b12, iron, vit d, etc, that could all have a big effect on how you're feeling and your energy levels.

I don't know what your finances are like, but is it possible for you to perhaps take some time off of work or cut down your hours? It sounds like you have a lot to juggle right now. Is your husband supportive, does he know how poorly you've been feeling, and does he help out with the kids and housework and stuff?

I don't have kids myself, but I've heard others on the forum say that they bond with their kids by lying in bed together and watching movies. You don't have to be super active to have quality time with your kids - surely they know that you're ill and not up to doing much, but just spending some time with them in any regard would probably be appreciated by them.
 
Thanks Cat-a Tonic. I can't cut down my hours, my son has an artificial heart valve and a pacemaker, and my hubby had a kidney transplant a yr ago. We NEED the money :) My hubby does try to understand, but it's really hard for him. My kids get it, but I still feel like a failure. My 12 yr old daughter does her own laundry and she cooks. The GI doctors are still trying to find something that I can take for the actual disease, but so far nothing that my body will tolerate. I can't take Zofran (sp?) and we are trying phenergan and/or compazine. So far neither is helping much. Iron is a little low, but that's the only one.
I really just want to win the lottery and sleep all day. Some times, I just feel like I will never live again.
 
Hello jb, sending:ghug: your way. I don't have Crohn's but my hubby does we have two teenage boys that are very active in sports. It's really hard for my hubby to attend some of there events. But one thing my hubby does is takes and picks them up from school. This is his way of bonding with them he's able to talk to them about practice and (girls):ymad:Like cat suggested watching movies or tv is a way to bond.
 

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