I have started to have some new symptoms and my GI doc seems to dismiss as having no relation to starting Remicade less than 3 months ago. Afraid I have some new issues happening but wondering if maybe others here have experienced anything similar.
First two infusions I experienced some fatigue day of the infusion but otherwise no problems. After the second infusion I woke up one day with numbness on the right side of my right foot. Really bad. B-12 was normal low so started to get shots. B-12 now sky high and while that has improved I still have some residual numbness. Even though that is listed as a possible serious side effect, GI doc said he never has seen that happen and it is probably B-12.
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Week or two after third infusion I began to feel random nauseousness, worse when I wake up in morning. Still have somewhat of an appetite but not like I used to. I have pain in my upper right quadrant of abdomen - not where I usually get it in the past. I have had minor swelling of my feet and ankles - socks leave marks. I have now started to have softer stools - only once daily but light brown not usual color or consistency. I have to urinate more frequently and also feel dehydrated even though I only have one BM a day, not a frequent. I wake up with dry mouth even though I was up 3 times at night to pee.
I have also had fatigue that is not crippling but definitely don't have energy I used to have. Sleeping is not very good - wake up every hour, can only get in about 4-5 hours of sleep before it is impossible to sleep.
CBC and CMP blood work, blood pressure, etc. look normal. Not sure what to do but I feel worse than I did 3 months ago and no doctor knows why!
First two infusions I experienced some fatigue day of the infusion but otherwise no problems. After the second infusion I woke up one day with numbness on the right side of my right foot. Really bad. B-12 was normal low so started to get shots. B-12 now sky high and while that has improved I still have some residual numbness. Even though that is listed as a possible serious side effect, GI doc said he never has seen that happen and it is probably B-12.
.
Week or two after third infusion I began to feel random nauseousness, worse when I wake up in morning. Still have somewhat of an appetite but not like I used to. I have pain in my upper right quadrant of abdomen - not where I usually get it in the past. I have had minor swelling of my feet and ankles - socks leave marks. I have now started to have softer stools - only once daily but light brown not usual color or consistency. I have to urinate more frequently and also feel dehydrated even though I only have one BM a day, not a frequent. I wake up with dry mouth even though I was up 3 times at night to pee.
I have also had fatigue that is not crippling but definitely don't have energy I used to have. Sleeping is not very good - wake up every hour, can only get in about 4-5 hours of sleep before it is impossible to sleep.
CBC and CMP blood work, blood pressure, etc. look normal. Not sure what to do but I feel worse than I did 3 months ago and no doctor knows why!
