snowfly said:Oh another thing I just thought of don't know if it is connected or not. I suffered with lots of mouth ulcers as a child so much so my mum told a doctor, along with tummy troubles. And my tongue used to have blotches on it. Wondering if there a connection there. Don't really suffer with the mouth ulcers anymore though. Wonder could crohn's of affected mouth area then and move to other problems down below as I got older? Just a thought.
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I was on Humira briefly because of an issue with an insurance company and Remicade. It didn't do much for me, and a friend of mine had a severe allergic reaction to it when she was put on it. Having said that, Crohn's is a fickle disease, and not everybody reacts the same to each medicine.CreateAStir said:I have been living with Crohn's Disease for 11 years now.
Now I have a fistula between the small intestine and my bladder.
My doctor is recommending I begin Humira.
Is anyone using Humira at this time, and can you tell me what luck you are having?
Also, people are recommending to me to go to the Mayo Clinic or to Johns Hopkins for further diagnosis.
Anyone have any experience with either of those?
Thank you all so very much!
kello82 said:hi snowfly, im sorry i missed you thread sooner, but welcome!
i agree with the others, from the symptoms youve mentioned it DOES sound like crohns to me, however so many members here can attest to how difficult a correct diagnosis is to attain. crohns is a very tricky one.
im so sorry you had to get rushed to the hospy what did they make of it? did they just draw blood and send you on your way?
you are definitly in the right place here for advice and help, ok? we will be here to help you through this! keep posting and keep us updated
welcome again
crohnsappleadams said:Don't knock the antidepressants. IBD-related pain is often stress induced, and you sound stressed. I've seen a few studies which indicate that Wellbutrin in particular is very effective in combating the symptoms of Crohn's disease. Besides, Crohn's disease slows or sometimes outright stops the absorption of B12, which in turn can trigger depression or bipolar disorder.