So discouraged

[nomad]

so discouraged

Hi all

I am so dicouraged with the way things have gone in the last week. Started Humira 1 month ago, 4 shots in one go... felt that sudden jolt of energy, appetite, solid BMs, filstulae gradually less active.... I was SO happy, so relieved - no more pain, no fever. What a miracle drug.

Two weeks ago 2 shots... all fine, getting into the swing of things, making plans to lead a happy, regular life around these shots. I work a LOT in my job, often in different places, so this extra energy is VERY welcome.

Then last week I started feeling a gradual loss of appetite, difficult digestions... over the weekend the fistulae become more active, the pain returns, the fever has been increasing and today it is burning.

I had a vacation booked for tomorrow - five days away to rest from a very very hard working time the last two months. Had to postpone it all and I'm off to the hospital tomorrow.

I feel so discouraged, it seems I'm back to square one - which is not square one, because there is further damage every time. I know it's early and I have to be patient, but I have this very gloomy feeling it won't happen. Being a crohnie for 27 years, I have learned to read the body and what it's telling me. And it's telling me this is not going to be the miracle ride I hoped for...

Sorry to bring this negative vibe. I feel really lonely right now, have friends and family but don't want them around looking worried...

 

[beth]

Talk to your consultant about weekly shots.

 

[nomad]

Thanks for the advice Beth, will do... But first I will most likely be under the knife for yet another abscess. My perianal area is looking like a war zone, and God knows for how long it will be there. I know, one day at a time... but honestly, sometimes I feel like giving up.

 

[MikeinBklyn]

As usual I must agree with Beth. Weekly injections did the trick for me.

Fistula gone in two to three days. But, you must be clear of infection first!

Good Luck