Soon to have an ileostomy

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Joined
Oct 18, 2012
Messages
4,557
Some of you might have read in my previous posts that an ileostomy is something I've considered for a long time. Now my surgeon has put me on the waiting list, which means the surgery should be scheduled for a few months time. Some of you might also have read about my problems eating enough and my inability to gain enough weight to reach the healthy range. My surgeon prescribed more supplement drinks, and although he said he didn't think the surgery would cause that much weight loss, he agreed to arranging for a feeding tube if I need it.

Is it true that you don't lose much weight after the surgery? I won't be losing any small bowel, so it won't affect my ability to digest, but when I have had major surgery before, I lost a lot of weight because the anaesthesia made me feel so sick, but my surgeon said I shouldn't feel sick. He said that it sounded like with my past surgeries the anaesthetists hadn't taken into account how small I am and had given me too large a dose. Or do you think I just have an unusually strong reaction to anaesthesia? Even after minor surgeries I felt extremely nauseous for a couple of days, and have always had the nurses inject anti-nausea meds because I couldn't keep a thing down without them.

I'm still very wary of having a feeding tube - I'm a wimp and the idea of having it put down my nose makes me worry I'll pass out when they try to insert it, like I do with every other invasive procedure. And I'd rather eat real food! So hopefully by being careful about the anaesthetic and using anti-nausea meds I will be able to avoid it.

You might have gathered I am far more concerned about the actual operation than the prospect of living with a stoma. I honestly don't think I'll mind it that much as long as it functions well. I've had so long to get used to the idea and have met others who already have one, and of course I've read many of your posts about how you overcome the challenges of having stomas. :)

My surgery won't be for a while yet, but I'll probably be updating as I go through all the pre-ops and meetings with the stoma nurse in preparation. Thanks for listening.
 
Hi, I didn't have to have a feeding tube with my ileostomy. I have just got home from hospital after having mine. I suffered from nausea for 4ish days afterwards, quite mild but I had anti-nausea drugs and felt better. I found even though eating made me feel sick, it ultimately made me feel better and I felt worse when I hadn't eaten.
I have had some weight loss as I didnt eat for a week what with pre op and after surgery. but it wasn't anything significant, I would say about 5lbs.
xxx
 
I lost 14 pounds due to ileus and dehydration after colectomy. I gather your ileostomy is temporary...? I would expect to lose about 5 pounds minimum, as most people don't ingest many calories in the first 3 to 4 days after surgery. It sounds like a feeding tube would be a good thing for you.
 
I lost 14 pounds due to ileus and dehydration after colectomy. I gather your ileostomy is temporary...? I would expect to lose about 5 pounds minimum, as most people don't ingest many calories in the first 3 to 4 days after surgery. It sounds like a feeding tube would be a good thing for you.

I'm not sure if it's temporary. It is going to be reversible, but I think the plan is to only reverse it if there are problems. Btw, does anyone know what the difference is between a reversible and non-reversible ileostomy? My surgeon said it was safer to do a reversible one. He seemed quite certain about it.
 
If your stoma is to be permanent, the surgeon will most likely recommend proctocolectomy, removal of colon and rectum. If it is temp, you will keep all of your guts, but most likely have a loop ileo placed where the small intestine is all attached, but a small segment partially incised, folded outward and sewn to the skin, with one side active with output and the other side resting and producing mucus. You will most likely continue to pass mucus out your bum, but no feces.

I pass mucus everytime I urinate, but there is no pain, urgency, pressure, etc.
 
I'm not sure how I missed this post, but I'm going to chime in now :) I had nausea after my surgery but I was given gravol with my intravenous pain killers (it was the meds that made me nauseated, not the anesthetic). I'm not sure if I lost weight or not, but I suspect I did as I was only on ice chips for the first 2 weeks I was in the hospital. I never had a feeding tube either, but was on TPN intravenously to keep me nourished. I had a lot of IV's stuck in me...lol
 

Latest posts

Back
Top