- Joined
- Dec 18, 2010
- Messages
- 61
Well I am 18 and have had CD and Colitis since i was 7 (11 years) I wasn't in remission until about 3 years ago and still going strong. I'm not the best patient at times and i do do my own thing if i think its ok from what i remember i started having symptoms when my parents were going through their divorce i wouldn't tell anyone that i was bleeding out my a** and pretty much filling the toilet with blood and clogging it i didn't want to tell anyone cu i knew my parents would get even more upset it wasn't until about a year later that i was actually diagnosed my dad found the toilet filled with blood after i thought i had unclogged the toilet i was scared they were going to get mad at me i was extremley pale and thin i was taken to my peds doc and saw definate ulcerations in my colon i was taken to a gi doc and then of course the colonoscopy i was diagnosed with CD and colitis i had to be hospitalized for a week due to lack of nutrtion and for observation(i still have the stuffed amimal from my hospital stay) i had to due barrium testing and i was on an iv drip of god knows what after i got out of the hospital i started feeling better i was on prednisone mineral oil and a whole slew of other meds that i don't remember the prednisone helped a lot i gained a lot of weight, i was on it for a year and a half, i was then switched to 6-mp, flagyl and pentasa this helped for a while then i started bleeding again and then i went up to the mayo clinic for a weekend and had my second colonoscopy there and endoscopy and not only did they find that the damage was more than they had originally thought i also had acid reflux...i would throw up acid...i switched gi docs(the first one gave me the creeps) i am still with the one i am i was put on foam ennamas and pentasa and some more flagyl and some more 6-mp after a while they noticed that that wasn't working so they put me on remicade after about a couple tries of remicade i developed antibodies against it and they did a small bowel to swallow more barrium(thats when they figured out i had a barrium intolerence) and they found my lymph nodes were inflamed and they had almost put me on chemo for lymphoma but they went back and retested and everything was normal i was then put on humira and that put me right into remission and then i developed an allergy to it but still stuck with it cuz it worked and then i learned about cimzia and wanted to switch to that and my doc okayed it in august of this year and also this year i started Lamictal for depression/bipolar but with all that going on ive been able to have boyfriends and go to school and im attending college to get my BA in nursing i now have the most loving and understanding boyfriend in the world sooo thats my crazy story
