M
monkeybuisnessxxx
Guest
Hi there i just wanted to no what you all think of this if this seems unfair at all in how im being treated. It all really started last year after i had my appendics removed i started getting diareah and pain above my right hip, but as it didnt go away and started getting worse i just put itdown to recovering from the appendics operation however when i went to see my surgeon he sent back to my gynaecologist who earlier on in the year had removed a cyst on myright ovary who told me it want anything gynaecology but could be IBS, so started me on some anti spasmotic tabs and put me on a wholegrain diet. I tried them and i just wasnt responding to the tablets at all and started becoming constipated. He then refered me to a gastroentorelist and she then refered me for an endoscopy and the one that looks down the throat which the endoscopy come back as patchy macousa and that was it. I was then in alot of pain being sick all the time and the pain seemed to be hanging around my belly button and right side so i was admitted. In hospital they did a small bowel follow through which the radiologist described as highly suspected as crohns disease,mild inflammation and small ulcers. They started me on predisolone and pentasa and gave the diagnoses of crohns. I went home and a week later come back fora colonscopy to take biposys. The results were. Bowel prep was poor, mucosa patchy, mild congestion and erythema at terminal ileum, mildly inflammaed terminal ileum whoever no ulcers seen there. clincal diagnoses, mildly ileitis. I was still on steriods while this was going on and the biopsy result come back negative, so they descided to do Cam pill which by this time i had weaned myself off the predisolone i would say it worked but as it come down i started getting symptoms back again. The cam pill was also negative so they told me i didnt have crohns disease. They took me off pentasa and told me to not take no painkillers because i get consti[pated. This annoyed me because it was like they wasnt understandin i was in pain. I ended back in a&e the next month with stabbing pains round the right side which they thought could be gyne again, did a laproscopy but could not see nothing wrong with ovarys and said it was deffinatly a problem with my bowels. I was by this time losing weight because i had no appetite and kept being sick etc. I was refered to university college hospital and they did a anorectal test which showed my nerves in rectum was sensitive and they was going to try my out on some nerve drugs which i still havent recieved. Meanwhile i have heard of people taking ages to get diagnosed my sypmtoms are the same but feel likei am going round in circles, what about the pain what are they doing about it, nothing it is just totally unlivable, i also get pains under my right rib like a achy feeling which isnt really nice. just wondered what you lot had to think of this should i get a second opionon? By the way just to add that do you think its right to do tests when you've been given steriods to actually take away the inflammation? i just dont understand that seems a bit silly to me. Also seeing physiotherapist for back pain and still losing weight and diareah and cant keep anything solid down
