Stressed and Scared

[JohnathanO]

I have been dealing with Crohns for around 15 years and it has been a steady battle. I have now been having more substancila issues. For about a year I have been having more issues with the Crohns and have been told everything under the sun. I have been on Humira for about 8 months with no change. Recently i have gotten bad again and along with the Humira been put on Pred. Nothing is working. The symptoms i have now are extreme weight loss, burning and cramping on my right side with the majority of it in my back, bloat, gas, cramps, distended stomach and you can watch my intestines move by just having a glass of water.I am still passing stool but on day its hard and then and the next its water so powerful i need a seatbelt on my toilet seat. I understand thats Crohns but i worry more about colon cancer and other stuff. Oh ya add the feeling of nausea and sometome I make myself vomit to get relief. I am getting super depressed and dont know what to do. I asked to be placed on anti-depressants but I have one other bonous.....I am epileptic so if I go on anti-deprseeants my risk for a seizure is higher. I just need a little support and I hope I can get it here. My first child was born 4 weeks ago and when I look at him I cry since I feel I wont be here long enough to teach him everything I know and watch him grow up. I dont know if this is a rant, complaint or cry for help but maybe someone out there has gone through the same issue and can help me along my way.

 

[handle]

Hey JohnathanO,
You are certainly having a rough ride there. It sounds like you may have built up some scar tissue along with the inflammation. That happens over time. Might be an idea to get a scan done. The nausea and cramps are indicative.
Congrats on your new son - wow. Hope you find a decent G.I. that treats you properly.You deserve to have a long happy life ahead of you!

 

[Fizzifish]

i worry more about colon cancer and other stuff. .

Let me put your mind at ease because I too worry about colon cancer and I asked my gastro-enterologist about it last week. I have had Crohn's since 1988 and like most people it is mostly in my terminal ileum. According to Dr Gotto, unless you have had very serious long term active disease in your colon you are no more likely to get colon cancer than anyone else. He laughed when I suggested it and said I was much too young. Colon cancer is almost always diagnosed over the age of 50 and often much older so at least that is one less thing for you to worry about. Emma

 

[JohnathanO]

Smile

Thanks for the help, I had a CT in November and it showed narrowing in one spot and some minor things in another. I understand anything can happen to anyone at anytime but when the waves of depression comes on it makes it harder to cope. It is suprising a smile goes a long way. Thanks again. The fight goes on even though i am the underdog!