Stricture-Again!!

[Grant]

Colonoscopy today, a very challenging procedure says the Dr.
Over an hour from start to finish. He got to the Astmosis & sure enough the bane of my life- another stricture. Very small about 4mm diameter. Crohns seen right the way through the procedure.
It wasn't dilated sadly maybe because its just too small. Huge amounts of Gas & Air used, that plus pain killer & sedation which seemed very slight left me as high as a kite.
Next step is either weekly Humira or fortnightly plus Methetrexate.
Bit fed up but such is life, going by some on here I'm getting away lightly.
Take Care
Grant

1st symptoms 1983
Diagnosed 1985
1997 Right Hemicolectomy & Resection
2002 Laperotomy & Resection
2010 Laproscopic Ileocolic Resection

Been on Azathioprine & Pred

Currently on Entocort 3mg every other day
Humira 40mg every two weeks
Calcichew
Pentasa 4gm daily
3mthly B12 Jabs

 

[Grumbletum]

An hour?? Oh man, that seems like a marathon - is it normal to be that long? Sorry to hear about another stricture - you are sounding very philosophical about it all Sincerely hoping that the new drug regimen will stop it from getting any worse.

 

[Grant]

Thanks Grumbletum, usually takes about 25mins. But apparently I had "loops" & I've also got adhesions. He had me on my back rh side lh side & on my ft. At one point I was on my back with a nurse squashing down on my abdomen. So I thought sod it & milked the gas & air-ha ha.:ycool:
This site has been a real eye opener for me, I make no bones when I joined about a month ago my chin was on the floor but having seen others trials & tribulations (Welshy) I've given myself a bit of a slap!
Strictures-well been there so many times, kind of knew something was up. But Dr is excellent, really nice guy who I seemed to have hit it off with. Knew he wanted to get right around to the terminal ileum & told him that no matter how much I moaned please do it. He did & I'm extremely grateful he did so I know where I stand.
He also confirmed I have another fissure on my butt :ymad:
Take Care
Kind Regards
Grant

 

[SlicedAndDiced]

Hi, I was curious how the Azathioprine and Methetrexate helped? I have had 4 illesectomies and now they are saying I need a 5th. I was on Remicade for 10 years. Switch to Humira 8 months ago and bumped it to weekly 3 months ago. My current GI says surgery and a second GI wants to add these drugs on top of th Humira and Prednisone before turning to surgery. I want to try the meds and hopefully avoid surgery but I am also getting to the point where I am sick of all these meds and just want the 3 inch section out. I have to take Norco, Lorazepam, Gabapentin, Zanaflex, Marinnol, and Zofran just to get thru the day! :ymad:

Diagnosed 1996
Feb 1996 Illesectomy (15 inch) and appendix
May 2006 illisectomy (9 inch)
July 2006 Illesectomy (6 inch), gall baldder
Jan 2015 illesectomy (3 inch)

 

[Grant]

Hi Sliced & Diced. Both are Immuno Suppressants. I've been on both, Aza was on its way to destroying my white cells so I had to stop but others get on very well with it. Methotrexate just made me feel queasy & sick almost all the time.
Rgds
Grant

 

[SlicedAndDiced]

Thanks for the quick reply! They just sent the scripts to the pharmancy so I will try them tonight. I hope it works, I am not ready for a 5th surgery. Recovery time is long and sucks!

Hope you have been well and been able to fins some stability in this life of hell called IBS.

 

[Grant]

Good luck SlicedAndDiced. I hope things go well for you & this helps you avoid another surgery.
Rgds
Grant

 

[shamrock15]

Here's hoping humira works for you. I have been on remicade for 9 years and it was the only thing that has ever really worked to stop my stricturing. I am at 6 surgeries already for crohn's, 0 in the 9 years since I have started remicade.

 

[SlicedAndDiced]

Thanks, unfortunately it doesn't seem to be because I keep having the same issues as when on Remicade. They are talking about maybe switching me to Entivio or some new one that starts with an O I think. If these add on meds don't do the trick I am assuming I will be switching. At first I thought it was working, was feeling pretty good, then I hit a wall and just crashed again. Crohns can be a very difficult and debilitating disease when it's active and want to take you down. I had 9 years of remission from 1996 to 2005, haven't been the same since, wish I could get back to those good ole days!

 

[ronroush7]

An hour?? Oh man, that seems like a marathon - is it normal to be that long? Sorry to hear about another stricture - you are sounding very philosophical about it all Sincerely hoping that the new drug regimen will stop it from getting any worse.

I agree.